Ritalin? - Fibro Fog
Joan
an RN & now a grief & illness counselor has it)mentioned it to me. He
knows my $ situation, so he knows I can't jump into new meds so fast
(at least until I win my SSDI case, if ever???!!).
Anyone else hear of this? I met the dr & his wife at a Fibro seminar
last year.
Joan (from Fla)
Kathy
I take dexedrine for a very stubborn case of clinical manic depression
that did NOT respond to any anti depressants or mood stabilizers out there
and if the drug did? It unfortunately caused my crohn's disease to flare
up so my pc doc prescribed me dexedrine and remeron and without them I
don't think I'd be able to focus on anything for any amount of time.
I was given the script for dexedrine long before I hurt myself surfing and
developed post traumatic FMS shortly afterwards. I have read that a few
good rheumy's will
RX their FMS, CFS, and MPS patients ritalin or dexedrine just so their
quality of life is better for a few hours each day instead of none. It
does make a huge difference in the way I feel. I do NOT feel jumpy or
speedy at all nor do I suffer from insomnia and dexedrine was once RX'd
as a weight control substance but I actually gained 15 lbs while taking
the dexedrine.
Dexedrine and Ritalin are both given for ADD or ADHD and I have had ADD
since as long as I care to remember! ;)
Did this help you at all Joan? It sure helps with my fibro fog that's a
given but I doubt my pain specialist would have given me dexedrine so if
any of you think you can ask your pain specialist or PCP for some
controlled substance think again! It's harder to get dexedrine than
oxycontin's as I have experienced and known of other p people in my
similar situation with a multitude of health care problems but the right
psychopharmacologist??? And no anti depressants that work against manic
depression?? Odds are good that you'd get an RX for either ritalin or
dexedrine.
*Peace Profound Joan*
and many pain free days in 2002!
*Silkwood SRC ...Builder of Dreams*
Laura
it while on it.
We insisted he be taken off the med because he would just sit and stare into
space.
He learned how to control his hyper activity and attention problems internally
with the help of a game called chess, yes chess.
Don't laugh chess and games of strategy like risk and other games like those
collector card games really did help him.
I do not know why your have to take ritalin but if it is for an attention or
hyperactivity problems maybe thinking games that command your focus may also
help you too. Just a thought.
Laura, Keeper of the Hounds
Servant to 4 Cats, Shadow, Terra, Storm, Shotzie.
AKA
Lady's and Boomer's Mom. Slave to the Cats.
Joan
Hi Kathy,
Yes it was helpful. I have to find out the price as I don't have
medical coverage. I'm like Mo (mrmossis) - turned down by judge (I
think HE had fibro fog as his denial comments was totally
contradictory to reports & my personal info given to him by my atty &
myself).
In addition, I need to find out the side affects (I can research all
this via the pc), although I wouldn't be hesitant to try it - except
for the finances.
Again, thank you
Joan
Joan
1st - I'm servant to 3 cats! Shana (inherited when my mom passed away
in June), Mommsy (was complete feral, now a loveable butterball), &
Rivka (the brat).
One thing is that I'm adult. And like any med, we all respond
different. But my rheumy said he's been having good results with it.
My girlfriend (also has FM) & I kid around about having only 2 brain
cells! And sometimes they just don't work right. Somes they go on
vacation, or just "go", etc. The past week (maybe longer, I don't
remember!), I'm losing words like crazy. I couldn't even remember
"fanny pack" that I had to buy to use with my scooter.
I'll check into it, but have to consider my $'s.
Thanks....
Joan
Joan
Hi Kathy,
Yes it was helpful. I have to find out the price as I don't have
medical coverage. I'm like Mo (mrmossis) - turned down by judge (I
think HE had fibro fog as his denial comments was totally
contradictory to reports & my personal info given to him by my atty &
myself).
In addition, I need to find out the side affects (I can research all
this via the pc), although I wouldn't be hesitant to try it - except
for the finances.
Again, thank you
Joan
>Hi Joan,
Laura
option that has worked for some.
Tracy Blumenthal Zelman
that the outcomes for fibro, particularly when used with methotrexate, which I
take for RA, have been very promising.
I can't believe the difference. I can't say fatigue, memory loss, general pain
is gone, but after 8 weeks, its been cut about 1/2. I no longer feel
completely debilatated. I also asked him abut continuing on Wellbutrin, and he
said it would help "the mix". It took a couple of days to get used to it, but
then everything was fine.
As far as cost, Ritalin is available as a generic, so it should not be that
high. Only down side, is becuse its a Schedule II drug, you have to have a
new, written prescription each time. The doc can't write for refills or call
it in.
Hope this helps!
Tracy
"if you're on thin ice you may as well dance..."
rinehart
things! I agree I don't think it would be a great way to lose weight. My son
used to take Ritlin but I like him on the Dexedrine better b/c he eats more
and has gained the weight he needed to being in his early teens.Melissa
"Kathy" <silk...@austin.rr.com> wrote in message
news:3C5E2812...@austin.rr.com...
Caitriona Mac Fhiodhbhuidhe
>My son was on ritalin for a very short time and he was always foggy and out of
>it while on it.
>We insisted he be taken off the med because he would just sit and stare into
>space.
That's odd. How did the doctor go about titrating for the right
dosage?
Kitten
Goddess of Mischief
Caitriona Mac Fhiodhbhuidhe
wrote:
<snipped>
>
>In addition, I need to find out the side affects (I can research all
>this via the pc), although I wouldn't be hesitant to try it - except
>for the finances.
Suggestion: Have the doc look into Concerta as well. It contains the
same med as Ritalin (methylphenidate) but in a 12-hr osmotic release.
Ritalin is a 3-4 hour med.
Side effects and other info can be found at:
http://www.concerta.net/consumer/about/?id=concerta/consumer/about/safetyinfo.inc
YS takes Concerta, but is now to the point where he only takes it on
days he feels he needs extra help focusing.
Kitten
Goddess of Mischief
Caitriona Mac Fhiodhbhuidhe
Zelman) wrote:
<snipped>
>As far as cost, Ritalin is available as a generic, so it should not be that
>high.
That's the downside of Concerta. It's still new enough to not have a
generic. It's only been available for a year and a half, since abt 3
weeks before YS was dx'd with AD/HD. IIRC, Concerta at the strength
YS takes it (54mg) is abt $75 for a 30-day scrip. The 18mg and 36mg
dosages should be less expensive. Thankfully, Chewy has fairly decent
insurance (just not as good as I had before I was laid off).
>Only down side, is becuse its a Schedule II drug, you have to have a
>new, written prescription each time. The doc can't write for refills or call
>it in.
That reminds me. I gotta call the doc for YS's 6mo checkup. Thanks.
Kitten
Goddess of Mischief
Laura
>dosage?
>
>Kitten
>Goddess of Mischief
His DR at Curative had his grade school teacher and us fill out a log on how he
was doing from hour to hour during the day.
The MPS ex ed teacher seldon followed threw and was not helpfull even though
she was the one who insisted he be put on it at the IEP and M- Team meetings.
You know something about teachers and this med?
I noticed being a Scout leader for many years how many kids are on ritalan.
Something don't add up when out of about 60 kids a little less than half take
this and several more of the parents have had the teachers try to push them to
put their kids on it.
His DR at Curative had his grade school teacher and us fill out a log on how he
was doing from hour to hour during the day.
The MPS ex ed grade school teacher seldom followed threw and was not helpful
even though she was the one who insisted he be put on it at the IEP and M- Team
meetings. This was when he was in first grade.
I remember we noticed his whole personality changed and not for the better. He
stopped playing with toys he found fun before, in fact he stopped playing with
anything. He was quiet and compliant but what made him who he was seemed gone
and he just stared into space much of the time.
I have seen this kind of thing happen since in other kids taking ritalin.
You know something about teachers, schools and this medicine?
I noticed being a Scout leader for many years how many kids are on ritalan.
Something don't add up when out of about 60 kids a little less than half take
this and many more of the parents have had the teachers try to push them to put
their kids on it.
Sometimes I think some teachers just have a low tolerance for normal variations
in child behavior. Maybe it makes their job easier if everyone is the same, but
that is not the real world.
Not everyone is the same or has the same makeup and I don't think that is a bad
thing. I do agree medication is needed if the problem is hindering any learning
at all or is so disruptive as to hinder others in the class but other means may
work just as well in the long run but it takes more work.
I have found my so called learning disability has been a help and a pain in
some areas.
I may have had trouble in some areas in school, but my mechanical abilities far
exceeded those of my peers. I could see and solve problems and puzzles others
couldn't. My son shares this ability, which is why he finds computers and
engineering fascinating. He tutors others in auto cad, I did real well in
mechanical drafting. I figure everyone has their nitch and should be allowed to
follow their natural abilities and not be forced into a one size fits all
educational system that stifles creativity and naturel ability's.
Tracy Blumenthal Zelman
(Caitriona Mac Fhiodhbhuidhe) writes:
>That reminds me. I gotta call the doc for YS's 6mo checkup. Thanks.
Hey....any time! :-)
Joan
> I understand because I also have a learning disability. Just offering another
> option that has worked for some.
I always felt that I might have a learning disability. I mentioned it
to my therapist of approx 13 yrs (no longer see her). During these
years I seemed to accomplish certain things on a very intelligent
level, so we just thought that my learning problem was my parents.
(Not a joke).
Even though this FM has taken over, I'm sure that if I was still able
to work as before, that I would still question the learning part. I
guess it's still something that I won't ever get an answer to, but
that's ok. At least I know the Fibro Fog is real & have all of this
ng to validate it!
Joan
Joan
supposed to be good with prices), it cost me $10.71 for 60 .5 mg + $4
for delivery.
The pharmacy I found charges $5.71 for the 60 .5 mg + no chg for
delivery (I tip a $1.
I will check the prices. But now there seems to be an additional med
that has to be added.
When ya have absolutely no income, every penny in the bank goes for
bills & a roof over my head. There's no hubby, no income, no welfare
- food stamps, that's it.
Isn't wonderful how the system is actually keeping me disabled? I
would love to try different things to see if I could work a few hrs a
week. But cannot with the way I presently feel.
Joan
Audi Gerstein
That is too funny... two of my cats are Shayna and Mamacita (who is feral).
It's nice to know that I'm not the only one with a sense of humor in cat
naming.
Anyway, to stay on topic, my 17 yr. old daughter takes concerta. She
changed from ritalin to the longer acting medication at her own request.
Unfortunately, I suspect that it is expensive. We pay a copay, so I haven't
paid attention. She has described it as more consistent and having less of
a high/low feeling. She takes it around 7 am and makes it through to around
4 pm. I have noticed that the "crashes" are gone.
On the ritalin, some of the parents of ADD and ADHD children have found that
the generic does not work as well as the namebrand.
audi
Joan
But of course! When I had 4 gerbils, 3 were pregnant when purchase (I
didn't know it). They were B/W. When the babies came, they all
looked alike. Someone asked me if I named them. I did - Sweet Pea -
all of them! LOL
> That is too funny... two of my cats are Shayna and Mamacita (who is feral).
> It's nice to know that I'm not the only one with a sense of humor in cat
> naming.
> Anyway, to stay on topic, my 17 yr. old daughter takes concerta. She
> changed from ritalin to the longer acting medication at her own request.
> Unfortunately, I suspect that it is expensive. We pay a copay, so I haven't
> paid attention.
Thanks to my appeals judge who denied me disability, I have no medical
benefits. So if I get hit by a car, it better be a fatal one as I
won't have $s to pay any hospital bill.
My case is now at the Appeals Council. My situation is almost the
same as Mo's, except I'm single.
Thanks for the info.
Joan
Patrick Richards
Provigil is costly though and don't know about the other.
I had to use high doses to get results and as time went on it did not work
for me but narcoleptics take some sort of stimulant to help them out during
the day.
But I am having some breathing problems and co2 problems so that might be
why for me.
Could not hurt to try if you can as it would be a big plus if it helps.
One thing that strikes me since I have and still have some sleep disorders
and have had 6 sleep studies if anyone with fm had a sleep study if they
have the fog their sleep would show alpha intrusion into their deep sleep
and that would help their case if it was not treatable which it is
sometimes.
"Joan" <jks...@netzero.com> wrote in message
news:1b118e13.02020...@posting.google.com...