Newbies Welcome Pkg Pt 3 of 4 - 2/1/07
acoftil
Part 3 of 4
RESEARCH FUNDING
None of these organizations are actually research organizations though
they do all fund research.
National Fibromyalgia Partnership
http://www.fmpartnership.org/FMPartnership.htm
"Our Mission is to make medically-accurate, quality resource
information on fibromyalgia (FM) available to our membership,
healthcare professionals, and the community-at-large."
American Fibromyalgia Syndrome Association
http://www.afsafund.org/research.htm
"AFSA is a non-profit organization dedicated to research,
education and patient advocacy for fibromyalgia syndrome (FMS) and
chronic fatigue syndrome (CFS)."
Immune Deficiency Foundation
http://www.primaryimmune.org/about/about.htm
"The Immune Deficiency Foundation (IDF) is the national non-profit
health organization dedicated to improving the diagnosis and treatment
of primary immune deficiency diseases through research and education.
IDF is governed by a Board of Trustees, has an active Medical Advisory
Committee comprised of prominent clinical immunologists, a nationwide
volunteer support network, and a dedicated professional staff."
FMS Awareness Day:
http://fmaware.org/may12/may12_2003overview.htm
FMS Awareness Pin
http://fibromyalgia-syndrome.com/AwarePin.htm
FMS = Why me?
http://pages.ivillage.com/cl-bhbeverly/www.html
My wife has Fibromyalgia
http://users.ilnk.com/health/fibromyalgia/fibromyalgia.htm
Newsletter
http://members.aol.com/fibrocloud/main.htm
Articles
http://www.suite101.com/welcome.cfm/fibromyalgia
Writings
http://www.pendulum.org/related/related_fms.html
http://www.tidalweb.com/fms/courageous.shtml
DISABILITY LINKS
U.S.
http://www.ssa.gov/
http://www.ssa.gov/news.htm#kits
U.K.
http://www.dwp.gov.uk/lifeevent/benefits/disability_liv_allowance2.asp
http://www.disabilityuk.com/masterpages/dla1a.htm.
http://www.bhas.org.uk/dla.htm.
http://www.bhas.org.uk/medical_visit.htm.
http://www.rnib.org.uk/xpedio/groups/public/documents/publicwebsite/publi
c_checklist.hcsp
FMS EXERCISE VIDEO TAPES
Dr. Sharon Clark/Dr. Robert Bennett
I have this tape thus can recommend it:
http://www.myalgia.com/Videos/Aerobics_tape.htm
http://www.amazon.com/exec/obidos/tg/cm/member-glance/-/A1AFSBZ63FL8YA/re
f=cm_cr_auth/102-0196001-1994516
If interested use this google link:
http://www.google.com/search?hl=en&ie=UTF-8&q=Fibromyalgia+Exercise
+Video+Tapes
SLEEP/INSOMNIA
http://web.tampabay.rr.com/lymecfs/drugs.htm
http://www.talkaboutsleep.com/
http://www.muhealth.org/~fibro/fm-md.html
http://www.wfprofessional.com/fms.htm
OTC antihistamines, e.g. diphenhydramine (benadryl), doxylamine
can help but are not without possibility of some risks so check with your
doctor:
http://www.emedicine.com/emerg/topic38.htm
http://www.jclinpharm.org/cgi/content/abstract/29/3/257
CHRONIC MYOFASCIAL PAIN (formerly Myofascial Pain Syndrome)
http://www.sover.net/~devstar/cmpsdef.htm
http://www.drshankland.com/myofascial.html
http://www.tidalweb.com/fms/
http://members.aol.com/fibroworld/
Worksheet I use: http://www2.rpa.net/~lrandall/fmslog.html
http://www.health-books-web.com/Fibromyalgia_and_Chronic_Myofascial_Pain_
A_Survival_Manual_2nd_Edition_1572242388.html
VISION SYMPTOMS
Common Vision-Related FMS&MPS Complex Symptoms
http://fibromyalgia.ncf.ca/dseye.htm
**new 2/15/05 from Joan
Visual Dysfunction in Fibromyalgia/Chronic Fatigue Syndrome
By Lesley J. Vedelago, O.D.
http://www.cfids.org/archives/2001rr/2001-rr3-article02.asp
**New 2/15/05 from Joan
IRRITABLE BOWEL SYNDROME (IBS)
http://familydoctor.org/healthfacts/112/
http://www.ibsassociation.org/
http://www.panix.com/~ibs/
http://www.aboutibs.org/
http://www.digestioninfo.com/
http://www.healingwell.com/ibs/
http://www.niddk.nih.gov/health/digest/pubs/irrbowel/irrbowel.htm
http://digestive.niddk.nih.gov/ddiseases/pubs/ibs/
http://www.gastro.org/public/ibs.html
http://www.ibsgroup.org/
http://www.fascrs.org/brochures/irritable-bowel.html
http://www.diagnose-me.com/cond/C21225.html
All that works fairly well for me is OTC ImodiumAD when needed. AMF
Fmily Jobie advised that Walmart's Equate brand is exactly the same but
less expensive.
COSTOCHONDRITIS dx criteria differ from Tietze's Syndrome
http://www.whonamedit.com/synd.cfm/2640.html
"Tietze's syndrome and costochondritis are not identical, as the Tietze
syndrome is associated with swelling, whereas costochondritis is not."
Most sites and many doctors do not make this distinction...
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&
dopt«stract&list_uids•070630
http://www.healthsquare.com/mc/fgmc2182.htm
http://www.nlm.nih.gov/medlineplus/ency/article/000164.htm
http://www.healthlinkusa.com/content/577.html
RESTLESS LEG SYNDROME
http://www.1uphealth.com/health/restless_leg_syndrome_info.html
http://archive.abcnews.go.com/sections/newsuse/wnt0908_restless/index.htm
l
http://www.findarticles.com/cf_dls/g2603/0006/2603000624/p1/article.jhtml
[cont'd in Part 4 of 4]