Seeking input on Endo treatments
Brett Hodges
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Hi,
I am hoping to get more input from women who suffer from Endometriosis on=
my
non-commercial website called RemedyFind. I started the site several yea=
rs
ago in an attempt to hear from other individuals with CFS (Chronic Fatigu=
e
Syndrome), which I=B9ve had for about 20 years. After creating RemedyFind=
I
realized the concept of letting patients rate the effectiveness of the
treatments they have tried would work for many other chronic health
conditions, and so RemedyFind has now grown to include some 25 conditions
(including Endometriosis).
Obviously everyone is different, and what works for one woman won=B9t
necessarily work for another, but my hope is that certain trends might sh=
ow
themselves over time, and after hundreds or thousands of patient ratings.=
In
the future we will be adding features that allow users to view ratings
according to specific diagnoses and subtypes, as well as according to age
etc.. In the meantime, members say that it is simply helpful to hear oth=
er
patient accounts of what has, or hasn=B9t, worked for them.
Please share your opinions on what has - or hasn=B9t - worked for you. Yo=
u can
choose from dozens of treatments to rate, from medications to nutritional
supplements to alternative / complimentary therapies. Or suggest somethin=
g
I=B9ve missed. The site is free and you can be as anonymous as you would =
like
=AD you choose your own member name and your contact information is not s=
hared
with anyone. Here is the address of the Remedyfind Endometriosis section =
-
http://www.remedyfind.com/hc-endometriosis.asp
(click on =B3All Remedies=B2 to see the full list of treatments).
Many thanks,
Brett Hodges
Founder / Editor=20
(To give you an idea of how users have rated treatment to date, here is t=
he
current =B3top 10=B2 list. Obviously this list has to be taken with a =B3=
grain of
salt=B2, especially with the relatively small number of ratings to date.)
Top patient-rated Endometriosis treatments (with more than 5 ratings)
(As of May 25, 2004. The first number is the averaged rating (0 =3D poor=
est;
10 =3D best). The number in parenthesis is the number of ratings the
treatment has received.)
Hydrotherapy: Spa Therapy =A0=A0=A08.7 (8)
Emotional Support: Online Discussion Groups =A0=A0=A08.2 (10)
Emotional Support: Family / Friends =A0=A0=A06.9 (8)
Vicodin etc. (Hydrocodone; Acetaminophen) =A0=A0=A06 (9)
Hormones: Zoladex (Goserelin) =A0=A0=A05.3 (9)
Hormones: Oral contraceptives (Estrogen/Progestin) =A0=A0=A05.1 (11)
Advil etc. (Ibuprofen)=A0=A0=A05 (11)
Ultracet (Tramadol; Acetaminophen)=A0=A0=A05 (6)
Surgical Procedures: Laparoscopy =A0=A0=A04.6 (18)
Hormones: Lupron etc. (Leuprolide / Leuprorelin)=A0=A0=A02.5 (20)
--B_3168588217_978628
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<HEAD>
<TITLE>Seeking input on Endo treatments</TITLE>
</HEAD>
<BODY>
<FONT FACE=3D"Verdana"><SPAN STYLE=3D'font-size:14.0px'>Hi,<BR>
I am hoping to get more input from women who suffer from Endometriosis on m=
y non-commercial website called RemedyFind. I started the site several=
years ago in an attempt to hear from other individuals with CFS (Chronic Fa=
tigue Syndrome), which I’ve had for about 20 years. After creating Rem=
edyFind I realized the concept of letting patients rate the effectiveness of=
the treatments they have tried would work for many other chronic health con=
ditions, and so RemedyFind has now grown to include some 25 conditions (incl=
uding Endometriosis).<BR>
<BR>
Obviously everyone is different, and what works for one woman won’t n=
ecessarily work for another, but my hope is that certain trends might show t=
hemselves over time, and after hundreds or thousands of patient ratings. In =
the future we will be adding features that allow users to view ratings accor=
ding to specific diagnoses and subtypes, as well as according to age etc.. &=
nbsp;In the meantime, members say that it is simply helpful to hear other pa=
tient accounts of what has, or hasn’t, worked for them. <BR>
<BR>
Please share your opinions on what has - or hasn’t - worked for you. =
You can choose from dozens of treatments to rate, from medications to nutrit=
ional supplements to alternative / complimentary therapies. Or suggest somet=
hing I’ve missed. The site is free and you can be as anonymous as you =
would like – you choose your own member name and your contact informat=
ion is not shared with anyone. Here is the address of the Remedyfind Endomet=
riosis section - <BR>
<a href=3D"http://www.remedyfind.com/hc-endometriosis.asp">http://www.remedyf=
ind.com/hc-endometriosis.asp</a><BR>
(click on “All Remedies” to see the full list of treatments).<B=
R>
<BR>
Many thanks,<BR>
Brett Hodges<BR>
Founder / Editor <BR>
<BR>
(To give you an idea of how users have rated treatment to date, here is the=
current “top 10” list. Obviously this list has to be taken with=
a “grain of salt”, especially with the relatively small number =
of ratings to date.)<BR>
<BR>
<B>Top patient-rated Endometriosis treatments (with more than 5 ratings)<BR=
>
</B>(As of May 25, 2004. The first number is the averaged rating (0 =3D=
poorest; 10 =3D best). The number in parenthesis is the number of ratin=
gs the treatment has received.)<BR>
<FONT COLOR=3D"#330099"><U><BR>
</U></FONT>Hydrotherapy: Spa Therapy =A0=A0=A08.7 (8)<BR>
Emotional Support: Online Discussion Groups =A0=A0=A08.2 (10)<BR>
Emotional Support: Family / Friends =A0=A0=A06.9 (8)<BR>
Vicodin etc. (Hydrocodone; Acetaminophen) =A0=A0=A06 (9)<BR>
Hormones: Zoladex (Goserelin) =A0=A0=A05.3 (9)<BR>
Hormones: Oral contraceptives (Estrogen/Progestin) =A0=A0=A05.1 (11)<BR>
Advil etc. (Ibuprofen)=A0=A0=A05 (11)<BR>
Ultracet (Tramadol; Acetaminophen)=A0=A0=A05 (6)<BR>
Surgical Procedures: Laparoscopy =A0=A0=A04.6 (18)<BR>
Hormones: Lupron etc. (Leuprolide / Leuprorelin)=A0=A0=A02.5
(20)</SPAN></F=
ONT>
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Linda Scheimann
"Brett Hodges" <bho...@remedyfind.com> wrote in message
news:p1tqb0dsg2f2og2cd...@4ax.com...
> Emotional Support: Online Discussion Groups =A0=A0=A08.2 (10)
ivillage was especially helpful post hyst (2001)
> Emotional Support: Family / Friends =A0=A0=A06.9 (8)
helpful from roommate 1996-1999
> Vicodin etc. (Hydrocodone; Acetaminophen) =A0=A0=A06 (9)
used ibuprofen and occasionally roomie's robaxin and also tylenol sleepaid,
but
eventually bowel strangulation pain caused hyst
> Hormones: Zoladex (Goserelin) =A0=A0=A05.3 (9)
did not use, but today pambron and ipriflavone are of some use. drinking
proved overly estrogenic. still use caffeine.
> Hormones: Oral contraceptives (Estrogen/Progestin) =A0=A0=A05.1 (11)
used 1973-1975, orthonovum90, provera(new form)1980, not very helpful;
possibly depo-provera 1969.
> Advil etc. (Ibuprofen)=A0=A0=A05 (11)
yes
> Ultracet (Tramadol; Acetaminophen)=A0=A0=A05 (6)
less effective than above
> Surgical Procedures: Laparoscopy =A0=A0=A04.6 (18)
no, but d/c 1975
> Hormones: Lupron etc. (Leuprolide / Leuprorelin)=A0=A0=A02.5 (20)
no
Linda Scheimann
http://personal.myvine.com/~gebhard/
mid 50's