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[CFS-L] LDN

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Robert Hartsoe

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Dec 7, 2009, 3:59:49 AM12/7/09
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I rarely read or post to this list for the same reason I left a local
support group. They do more crying than managing their lives. I am a
20 year sufferer of CFS, I almost died from it. I have fought it alone
without crying in my beer. The only way I was able to beat it and
succeed was by staying positive and putting it in God's hands.
Recently I discovered LDN. do a google search on it. It has totally
changed the problems I have been living with from CFS. LDN. It
is working for thousands with CFS, MS, Autism and other problems which
seem to have no answer.

I did not put this info here for an argument by negative skeptics.
Either you want to help yourself of not. I did and it helped.

Good luck to all of you, even the experts who are unable to help
themselves, and expect others to follow their advice.

Robert

Maija Haavisto

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Dec 7, 2009, 7:28:39 AM12/7/09
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> I rarely read or post to this list for the same reason I left a
local support group. They do more crying than managing their lives.
> I am a 20 year sufferer of CFS, I almost died from it. I have fought
it alone without crying in my beer. The only way I was able
> to beat it and succeed was by staying positive and putting it in
God's hands. Recently I discovered LDN. do a google search on it.
> It has totally changed the problems I have been living with from CFS.
LDN. It is working for thousands with CFS, MS, Autism
> and other problems which seem to have no answer. 
 
Great to hear you too have been helped by LDN! It changed my life
almost three years ago and has helped many people on my Finnish CFS/ME
forum. It's now the primary drug my doctor uses in the treatment of
CFS/ME and fibromyalgia. Everyone who has CFS/ME, fibromyalgia, an
autoimmune disease, a neurodegenerative disease, cancer or HIV/AIDS or
knows anyone who does should learn about LDN.

P.S. In case anyone is interested I again have a holiday contest on my
book's website where you can win a free electronic copy of this book
about treatments for CFS/ME and fibromyalgia
http://www.brokenmarionettebook.com/?contest

--
%. _ /) That's why I didn't kill myself sooner, the pressure
`%-('`._/ ) _ of spelling mistakes. -"5 Suicide Notes" by Saracen Tate
`\ \ `'/ Maija Haavisto * @DiamonDie * http://www.fiikus.net
`.___.'mh My CFS/ME/FM book: http://www.brokenmarionettebook.com

Bobbie Sellers

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Dec 7, 2009, 10:39:41 AM12/7/09
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Maija Haavisto wrote:

Without attribution for the quote

I happen to view with extreme prejudice people who use initials
to refer to a treatment or medication. Apparently both are still to
fatigued to type out Low Dose Naltrexone. They suggest googling
on LDN which does bring up some information but is beyond the
capacity of people with serious cfids/me whatever, induced brain
fog.

<http://www.lowdosenaltrexone.org/index.htm#What_is_low_dose_naltrexone>

Low Dose Naltrexone is about 4.5 mg per day for an adult. If you can
get a prescription from a doctor you can order the special tablets on line.
Just Google for it and the first thing that comes up is the pharmacy, with
accommodatingly, a price of $38 for 90 tablets.

later
Bobbie Sellers

Bobbie Sellers

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Dec 7, 2009, 10:44:46 AM12/7/09
to

I happen to view with extreme prejudice people who use initials
to refer to a treatment or medication. Apparently both are still to
fatigued to type out Low Dose Naltrexone. They suggest googling
on LDN which does bring up some information but is beyond the
capacity of people with serious cfids/me whatever, induced brain
fog.

Clicking on the link below should take you to a page or more of
useful information about LDN. [Not knowing the incapacity of some
systems you might have to copy the information between the '<>' and past
into your browsers.}

Rita Joy

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Dec 7, 2009, 1:23:26 PM12/7/09
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Dear Robert, Thank you VERY MUCH INDEED FOR PUTTING THIS INFORMATION OUT.

I know I am "mentally challenged". SOO TIRED on far too many drugs to
count, but I do not remember having this information before.

Have done the Search. I will challenge my docs as to why I have never heard
of this before, why thy have not suggested this therapy, if it is OK'd by
the FDA., and who is Trialling this in the U.K.? I REALLY NEED HELP, AND
I NEED IT NOW.

I have been a bit quiet on this, as not much energy. All "surplus to
requirements" has been channelled into letters to docs! I Need to do this???

Have put this info out onto my "Facebook" page. Gotta check if it has been
sucessfully posted. Hope my small amount of Friends will sign the Petition.

The combination of the two Therapies seems to work for some people. It is
something, as before, that does need to be investigated and trialled, before
someone else becomes a non-living person. Seen too many of my friends not be
here due to unremitting scepticism.

Woke today with so much pain and inflammation, I could not function. It
ONLY took 2.1/2 hours to get out of my bed this morning!! Bad Day !
Cancelled VERY IMPORTANT Hospital appointments, as I knew I could not go,
even being driven. That really makes me very angry.

I contract EVERY infection, even those via friends/relatives clothes, as
they are FFI. Free from Infection. You should see my "Supplements" bowl,
three times per day. Fed-up with that chore, also.

As to the Murine Virus Breakthrough, are the docs going to test us all for
ALL the viruses, and then decide what to do with us? Makes you think!!

Keep on trucking. I want my life back, and soon. Take care, all. OO XX
big hug big kiss Rita UK

Mandi Smallhorne

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Dec 7, 2009, 1:31:36 PM12/7/09
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Rita, I send you a huge hug. Sorry it's so bad.
Mandi

Robert

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The message was checked by ESET NOD32 Antivirus.

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Robert Hartsoe

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Dec 8, 2009, 2:19:58 AM12/8/09
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When you do the Google search, the first sight you will come to will
give studies and lots of info as well as the pharmacies who know what
they are doing.

And to the poster of the following, I don't really care how you view me.
People like yourself are the reason I don't follow groups like this. I
did this one for those who may not know about it and can use the info
without prejudice. I do hope you can get to feeling better for
everyone's sake.
Robert

Date: Mon, 7 Dec 2009 07:39:34 -0800
From: Bobbie Sellers <bl...@SFO.COM>
Subject: Re: LDN

Maija Haavisto wrote:

Without attribution for the quote

I happen to view with extreme prejudice people who use initials

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