[CFS-L] Update NICE ME Guideline

[Dr. Marc-Alexander Fluks]

Source: NICE
Date: August 27, 2021
URL: https://www.nice.org.uk


NICE statement on next steps for ME/CFS
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NICE announces next steps for ME/CFS guideline

NICE recognises the importance to patients of the updated guideline on
the diagnosis and management of myalgic encephalomyelitis (or
encephalopathy)/chronic fatigue syndrome (ME/CFS) and is keen to move
forwards as quickly as possible.

Following the pause to the publication of the guideline NICE has today,
27 August 2021, announced that it is to hold a roundtable event to
better understand the issues raised and determine how it can gain
support for the guideline to ensure effective implementation.

The meeting, which will be held in September 2021, will have an
independent chair and will include representatives from patient
organisations and charities, relevant professional societies and from
NHS England and NHS Improvement, NICE and the guideline committee.

Paul Chrisp, director for the Centre for Guidelines at NICE, said: 'Our
aim throughout this process has been to use the best available evidence
as well as the lived experience of people with ME/CFS to address and
resolve the continuing debate about the best approach to treating people
living with this debilitating condition. We remain optimistic that we
can reach a way forward to publish a guideline that will have the
support of people living with ME/CFS, the people who care for them and
the professionals who treat them.'

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(c) 2021 NICE