[CFS-L] FW: [CO-CURE] New Website Analyzing the Results of the PACE trial

[Tom Kindlon]

(I gave some input into this, although have been too busy the last few
months so haven't looked at final version. Tom)

-----Original Message-----
From: ME/CFS and Fibromyalgia Information Exchange Forum
[mailto:CO-...@LISTSERV.NODAK.EDU] On Behalf Of Janelle Wiley
Sent: 12 May 2012 11:02
To: CO-...@LISTSERV.NODAK.EDU
Subject: [CO-CURE] New Website Analyzing the Results of the PACE trial

A collaborative network of ME patients with backgrounds in
science/mathematics has worked over the past year to produce a website using
the actual data from the PACE trial to analyze the results. As you know,
they are not impressive.

Our website, "ME Analysis: Evaluating the results of the PACE study", makes
innovative use of graphics and animations to present its 10 conclusions in
an easily accessible format. The structure of the report enables the reader
to view the conclusions in a summarised view, or to look at the more complex
analysis leading to these conclusions.

"ME Analysis" also includes the results of an informal study of the natural
fluctuations in the health of 123 people with ME, using on of the PACE
trial's core assessments. The findings indicate that such fluctuations may
be a significant factor.

You will find the project at evaluatingpace.phoenixrising.me/home.html

Please help to pass this message on.

Janelle

_______

Janelle Wiley
@janwly on Twitter

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[Bobbie Sellers]

On 05/12/2012 07:14 PM, Tom Kindlon wrote:
> (I gave some input into this, although have been too busy the last few
> months so haven't looked at final version. Tom)

The conclusions seem to be sensible to me.
Especially the part about GET and CBT not being
effective for most patients.
I have tried to make the link active below but it may not
work.

Bobbie Sellers

[Bobbie Sellers]

On 05/12/2012 07:14 PM, Tom Kindlon wrote:

> (I gave some input into this, although have been too busy the last few
> months so haven't looked at final version. Tom)

The conclusions seem to be sensible to me.
Especially the part about GET and CBT not being
effective for most patients.
I have tried to make the link active below but it may not
work.

I fouled it up the first time. So went there again
and copied the URL of the start page.

<http://evaluatingpace.phoenixrising.me/home.html>

Bobbie Sellers

[Daniel Prince]

On Sun, 13 May 2012 19:20:21 -0700, Bobbie Sellers
<bliss-...@DSLEXTREME.COM> wrote:

> I have tried to make the link active below but it may not
>work.
>
> Bobbie Sellers

This should work.

www.evaluatingpace.phoenixrising.me/home.html
--
When a cat sits in a human's lap both the human and the cat are usually
happy. The human is happy because he thinks the cat is sitting on him/her
because it loves her/him. The cat is happy because it thinks that by sitting
on the human it is dominant over the human.