Re: Dr. Charles Stratton's work on CFS/C.Pneumoniae was never published.
Ron phillips
It's been a little over a year. I am working full-time (as a computer programmer.) When I started, I couldn't think straight after about two hours -- or not straight enough for this job. Now I usually do good work until noon, then OK work until quitting time.
The brain fog is one of the first things to improve
under treatment, so it is a little difficult to assign a number
or percentage to my recovery. My brain is about 80% recovered, my
exertion tolerance is perhaps 20%, but they're interconnected, so don't
take the numbers too literally.
When I started, I could vacuum one room of the house per day. Now I can usually do the whole house, and go to the library or something, too.
I recently replaced most of our bathroom (all the floor, the vinyl, and some of the ceramic tile.) Even with help, this was too much and I am recovering from that setback.
Stratton estimates at least three years of treatment are needed to completely recover from CFS. He says that of all the diseases associated with CPn, CFS is one of the toughest, in part because so few patients will stick with the protocol that long.
The important thing is: I stopped getting worse. I was starting to consider my disability options before I began treatment. My doctor was impressed enough that he has started several other CFS patients on the protocol since I started it. He does say, though, that it's not for everyone -- again, not because the protocol doesn't work, but because they don't follow it.
Ron
Date: Sun, 8 Apr 2007 13:08:39 -0400
From: Geo <ge...@VERIZON.NET>
Subject: Re: Dr. Charles Stratton's work on CFS/C.Pneumoniae was never published.
Fascinating. I've never heard of that before. I'll have to look into it. How
long have you been on the treatment and how much have you improved? Thanks.
> -----Original Message-----
> From: Chronic Fatigue Syndrome discussion CFIDS/ME
> [mailto:CF...@LISTSERV.ICORS.ORG] On Behalf Of Ron phillips
> Sent: Friday, March 16, 2007 4:35 PM
> To: CF...@LISTSERV.ICORS.ORG
> Subject: Re: [CFS-L] Dr. Charles Stratton's work on
> CFS/C.Pneumoniae was never published.
>
> Eeek! Bobbie Sellers pointed out that the link didn't come
> through. Let's try it again:
> http://www.cpnhelp.org/chlamydiapneumoniaechronicfatigue is the link.
>
> Again, the treatment for this organism is relatively cheap,
> and any willing doctor can administer it. Just in case that
> sounds too good to be true, let me add that it is not easy
> for the patient. It takes a while, and many people find the
> treatment uncomfortable, at least at first.
>
> Ron
------------------------------
End of CFS-L Digest - 8 Apr 2007 to 9 Apr 2007 (#2007-46)
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Anita Haviland
misplaced that post and need it very much as I am going to see my doctor
this week.
Anita
Ron phillips
Dr.Wheldon originally used it to treat people with primary progressive MS, so some of the references are oriented toward MS. However, that is the treatment protocol most of us are currently following. Dr. Stratton and Wheldon collaborate extensively behind the scenes, and they are working to refine the treatment for various C.Pn. related diseases; the diseases don't react quite the same way to the protocol.
Ron
1. Dr. Charles Stratton's work on CFS/C.Pneumoniae was never published.
----------------------------------------------------------------------
Date: Sat, 14 Apr 2007 09:42:05 -0400
From: Anita Haviland <anitah...@MAINECOASTMAIL.COM>
Subject: Re: Dr. Charles Stratton's work on CFS/C.Pneumoniae was never published.
Please, are you the person who is taking the antibiotics in pulses? I =
have
misplaced that post and need it very much as I am going to see my doctor
this week.
Anita
-----Original Message-----
From: Chronic Fatigue Syndrome discussion CFIDS/ME
[mailto:CF...@LISTSERV.ICORS.ORG] On Behalf Of Ron phillips
Sent: Monday, April 09, 2007 11:59 AM
To: CF...@LISTSERV.ICORS.ORG
Subject: Re: [CFS-L] Dr. Charles Stratton's work on CFS/C.Pneumoniae was
never published.
Hello, Geo=20
It's been a little over a year. I am working full-time (as a computer
programmer.) When I started, I couldn't think straight after about two =
hours
-- or not straight enough for this job. Now I usually do good work until
noon, then OK work until quitting time.=20
The brain fog is one of the first things to improve
under treatment, so it is a little difficult to assign a number
or percentage to my recovery. My brain is about 80% recovered, my
exertion tolerance is perhaps 20%, but they're interconnected, so don't
take the numbers too literally.
When I started, I could vacuum one room of the house per day. Now I can
usually do the whole house, and go to the library or something, too.
I recently replaced most of our bathroom (all the floor, the vinyl, and =
some
of the ceramic tile.) Even with help, this was too much and I am =
recovering
from that setback.
Stratton estimates at least three years of treatment are needed to
completely recover from CFS. He says that of all the diseases associated
with CPn, CFS is one of the toughest, in part because so few patients =
will
stick with the protocol that long.=20
The important thing is: I stopped getting worse. I was starting to =
consider
my disability options before I began treatment. My doctor was impressed
enough that he has started several other CFS patients on the protocol =
since
I started it. He does say, though, that it's not for everyone -- again, =
not
because the protocol doesn't work, but because they don't follow it.
Ron
Date: Sun, 8 Apr 2007 13:08:39 -0400
From: Geo <ge...@VERIZON.NET>
Subject: Re: Dr. Charles Stratton's work on CFS/C.Pneumoniae was never
published.
Fascinating. I've never heard of that before. I'll have to look into it. =
How
long have you been on the treatment and how much have you improved? =
Thanks.
> -----Original Message-----
> From: Chronic Fatigue Syndrome discussion CFIDS/ME=20
> [mailto:CF...@LISTSERV.ICORS.ORG] On Behalf Of Ron phillips
> Sent: Friday, March 16, 2007 4:35 PM
> To: CF...@LISTSERV.ICORS.ORG
> Subject: Re: [CFS-L] Dr. Charles Stratton's work on=20
> CFS/C.Pneumoniae was never published.
>=20
> Eeek! Bobbie Sellers pointed out that the link didn't come=20
> through. Let's try it again:=20
> http://www.cpnhelp.org/chlamydiapneumoniaechronicfatigue is the link.=20
>=20
> Again, the treatment for this organism is relatively cheap,=20
> and any willing doctor can administer it. Just in case that=20
> sounds too good to be true, let me add that it is not easy=20
> for the patient. It takes a while, and many people find the=20
> treatment uncomfortable, at least at first.
>=20
> Ron
-----------------------------
End of CFS-L Digest - 8 Apr 2007 to 9 Apr 2007 (#2007-46)
*********************************************************
=20
_________________________________________________________________________=
___
________
No need to miss a message. Get email on-the-go=20
with Yahoo! Mail for Mobile. Get started.
http://mobile.yahoo.com/mail
------------------------------
End of CFS-L Digest - 12 Apr 2007 to 15 Apr 2007 (#2007-49)
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Anita Haviland
I cannot thank you enough.
I live in Maine and we have a small but very good hospital. My doctor is one
of the best, but he is also a bit conservative. I have sort of set him up a
bit by telling my orthopedist (saw him last week, knee "healed" from
injury), who is his good friend, about the protocol. I told him that I
needed for my MD to ask others about this treatment plan who are researchers
outside of Maine. I added that if he asked people in the state, he might go
into a "double think." I didn't say it, but it would be like the dumb
leading the dumber. Well, the orthopedist smiled, and said, "I get you."
Sooo, I suspect he might tell my guy about my worries.
I left a copy of the original paper off at his office, and I'll call them
tomorrow. I've printed out more. Of course, I want him to go to the site,
phone the other doctors, and figure out what to do from there.
Unfortunately we're going to have a large storm this evening and tomorrow
which may keep us off the road. I'd love to take this packet to his office
in person.
I've had this since 1987, was diagnosed by the second MD who saw me. The
first was my allergist who had diagnosed 4 previous cases of mono. Wasn't
that, so I went to my PCP who spotted it immediately. I joined CFS-L as soon
as I could find it, back in the days when home computers were just starting
to really get going on the internet. I stayed there for a long time; people
committed suicide, one friend died of heart failure at age 40, another was
ostracized by his physician father (and family) who told him to just get up
and out of bed. The pain was incredible.
After years, I left, and just two weeks before the post about Dr. Stratton's
work, I rejoined. The timing was exquisite for me. I'm sending it on to the
three people I still am in contact with from my initial membership.
What is the community's take on Ampligen? It is recently available under a
compassionate use certificate, but I sort of doubt that drug insurance plan
would approve it. If you go to their website, there is a little bit about
the compassionate use certification.
Hemespherix Biopharma now has support from the Japanese for it as an adjunct
for strengthening the effect of flu vaccinations. It takes 12 years for a
drug to be approved, and the 12 years is about done with it.
Again, thank you very much.
Anita Haviland
Geo
seen in a long time. I've just started maneuvering thru the maze of my HMO.
My PCP is sending me to a communicable disease specialist and we'll see
where that goes. And I've just started rummaging thru
http://www.cpnhelp.org/chlamydiapneumoniaechronicfatigue to try and get a
more complete understanding.
-George
> -----Original Message-----
> From: Chronic Fatigue Syndrome discussion CFIDS/ME
> [mailto:CF...@LISTSERV.ICORS.ORG] On Behalf Of Ron phillips
> Sent: Monday, April 09, 2007 11:59 AM
> To: CF...@LISTSERV.ICORS.ORG
> Subject: Re: [CFS-L] Dr. Charles Stratton's work on
> CFS/C.Pneumoniae was never published.
>
Donna Parker
-----Original Message-----
From: Chronic Fatigue Syndrome discussion CFIDS/ME
[mailto:CF...@LISTSERV.ICORS.ORG] On Behalf Of Geo
Sent: Monday, April 16, 2007 12:42 PM
To: CF...@LISTSERV.ICORS.ORG
Ron phillips
The protocol I'm currently using is a derivative of Dr. Stratton's original protocol. Drs. Stratton and Wheldon found that for many people, the original Stratton protocol was just causing too many bacterial die-off related side effects. The Wheldon protocol is detailed at http://www.cpnhelp.org/wheldon. Its basis is actually quite simple: this bacteria goes into a 'cryptic' form when it is hit with antibiotics. They don't kill it, but they do force it into the low-metabolizing cryptic form. If the antibiotics are stopped the bacteria simply revs back up.
Stratton's protocol uses two antibiotics to force the bacteria into the cryptic form, and then uses a bactericide to kill it while its metabolism is too low to repair the damage the bactericide causes. For CFSers, there's some poetic justice there!
However, since this bacteria lives inside the patient's cells and renders them immortal, when the bacteria dies, the cell dies. The bacterial toxins spill into the body, and depending on how many of what kind of cells die, it can be "unpleasant."
Wheldon's protocol built on Stratton's, because his first patients were infected mostly in their Central Nervous System. The CNS takes so long to recover that he began "pulsing" the bactericide once a month. This proved to be a much easier way to let patients "ramp up" their treatment as their recovery allowed them to tolerate it.
Most of the CFS patients that are being treated according to Stratton's original findings use Wheldon's protocol, at least at first, because CFS involves large bacterial loads in several organ systems. Both protocols use a boatload of supplements to try to limit the damage caused by the dying bacteria.
Ron
Date: Mon, 16 Apr 2007 14:03:50 -0700
From: Donna Parker <do...@CREATIVEFORMSONLINE.COM>
------------------------------
End of CFS-L Digest - 16 Apr 2007 to 17 Apr 2007 (#2007-51)
Donna Parker
Donna