On 2013-04-20, Lewis <g.k...@gmail.com.dontsendmecopies> wrote:
> In message <op.wvty5...@compaq-sr1839uk.home>
> RuneMaster <
runem...@runes-online.com> wrote:
>> On Fri, 19 Apr 2013 13:11:14 +0100, Daibhid Ceanaideach
>> <
daibhidc...@aol.com> wrote:
>
>>> I've not seen it yet myself, but apparently Sir Pterry has an appearance
>>> in
>>> the Maureen Lipman doc "If Memory Serves Me Right", available on iPlayer
>>> here:
>>>
>>>
http://www.bbc.co.uk/iplayer/episode/b01s0zvx/Maureen_Lipman_If_Memory_Serv
>>> es_Me_Right/
>>>
>>> I think he's only got a brief bit, but it looks interesting.
>>>
>
>> Quite brief, but showing his speech-to-screen dictation software as well
>> as a brief explanation on how his condition began and developed.
>
>> He is looking more frail every time he appears on TV (his orang-utan
>> documentary with Rob was excellent) and he spoke again of his involvement
>> in the Assisted Dying debate/movement.
>
>> It seems very clear that he will definitely chose this way out, rather
>> than endure the slow but inexorable slide into a non-functional (mental)
>> state. I just hope this will not happen for a few years yet, but fear
>> that it may not :-(
>
> One thing we, sadly, learned is that the more mentally active a person
> is, the faster the slide happens. In our case a active person who did
> crafts and jigsaw puzzles all the time slid into goldfish-state<1> in a
> little more than 2 years.
>
><1> Short-term memory immeasurably short, no long term memory at all for
> people or places.
>
M'lady and I cared (fsvo) for a retired couple of teachers - he
developed one of the forty-something conditions and followed the path
you described over a two year interval. TANJ.
M'lady was diagnosed with a less common one and has been taking meds for
four years now - which have been very good at slowing the 'progress' but
not reversing. Assuming that she doesn't develop reactions and
complications, she may have years of effective life before her (though
she shan't get her driver's licence back.)
Pterry has yet another and less common condition and a correspondingly
smaller data set of reactions to treatments but he's willing to beta
test and has considerable advice, support and resources available.
--
"With what confusion thinking's fraught!
I sometimes think I'll think no more.
For when I spend much time in thought
I unthink things I thought before."