Experiencing AiWS while eyes are closed

[emily]

Is it possible to experience AiWS while your eyes are closed? Like, having your body feel rapidly larger or smaller when your eyes are closed. Thank you for your answers in advance!

[Ervin]

I had it happen once after dealing with some work stress. In fact the fact that I had the experience with my eyes closed was what finally made me go to my Dr. He loled and said men...i never heard of what you are describing, but my female patients would have come to me first thing. Anyway, he thought I was having seizures and ordered a MRI, came back normal. He told me he can order seizure meds, that I would have to take every day for the rest of my life. But for something that happens once every few years...do I want to do that. I decided to just live with it.

On Thu, Aug 22, 2019, 7:33 PM emily <hvpe...@gmail.com> wrote:

Is it possible to experience AiWS while your eyes are closed? Like, having your body feel rapidly larger or smaller when your eyes are closed. Thank you for your answers in advance!

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[RiverShark]

Yes, absolutely! In my case I would experience the feeling you describe usually at night or with my eyes closed. It always helped to get to a well lit area to help subdue the effects. When I was young I had a routine when it happened. I would get a large glass of orange juice, sit in the livingroom with every possible light on, turn the ceiling fan on high speed look straight up at the fan and focus on one fan blade and try and track it with just my eyes without moving. It worked for me really well. I have heard many comment in this forum in the past about vitamin C or citrus drink helping with effects. Hope this helped and if you have any more questions I would be more than happy to help.

[Tyler H]

I don't know if I had aiws when I was young or not, I do know I had what you describe. Perhaps more often with my eyes closed than with them open. I now have cluster headaches later in life. I do not know if they are related or not. I have four children. One of them has had all the symptoms of aiws a few times now. On two occasions, I had him try my oxygen tank which is the only relief I have ever gotten for my cluster headaches. Both times his aiws symptoms went away right away.

[Ervin]

I believe to some degree we all experience the same thing more or less but our individual social, mental, emotional dispositions place a certain meaning on what we experiance. The fact that this happens when we were children, gives a child like perception of the phenomenon and what it means. I remember being real sick as a child with a fever and the feeling, perception ans aura of sharp round, of course me being real small and objects and geometry in the room being large, plus it sounded like a million voices having a conversation at once but it was eerily quite and I can hear each conversation. During my life I guess I have had maybe 20 to 30 episodes. Most happened when I was in college. Something about my dorm room, single tv on in the dark would trigger it. I would go with it for 5 to 10 minutes or so and then focus on something to end the episode. 47 years old now and I don't think I I have had an episode in more tha. 10 years.

On Thu, Aug 22, 2019, 7:51 PM RiverShark <river...@gmail.com> wrote:

Yes, absolutely! In my case I would experience the feeling you describe usually at night or with my eyes closed. It always helped to get to a well lit area to help subdue the effects. When I was young I had a routine when it happened. I would get a large glass of orange juice, sit in the livingroom with every possible light on, turn the ceiling fan on high speed look straight up at the fan and focus on one fan blade and try and track it with just my eyes without moving. It worked for me really well. I have heard many comment in this forum in the past about vitamin C or citrus drink helping with effects. Hope this helped and if you have any more questions I would be more than happy to help.

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[RiverShark]

Hey Blue,

Do you have migraines?

When I was young my mom went from doctor to doctor trying to describe my symptoms; she was laughed at, and even told she was just making it up to get attention. I was probably 7 then, I'm now 38 and my mom never figured out what was going on. As I parent I can't imagine being called crazy when your mom is trying frantically to figure out what was wrong with her son to find no solution. Years of dealing with the side effects we discovered ways to deal with it. My wife stumbled finally on the name after a few years of research.

I got a doctor finally that had an idea of what was going on, I was his second patient with it. I've never met a doctor that has ever heard of this syndrome to date.

He said that it is most likely migraines that contribute to the trigger of the effects, stress, low immune system while your sick or have a fever increase the chances of the attacks. He told me that you may not be aware of the migraines as they are most likely 'silent-migraine" activity. He wanted me to see an MRI specialist that would be the one person he thought would be able to spot anything, but best case would be if we could trigger an effect. We tried to setup a time but he retired before we had a chance. Commonly they do treat with medicine that reduces seizures or migraines. I had great success with sumatriptan.

Keep in mind of course as my doctor explained, nothing is full proof as this syndrome is greatly unknown and studied.

[Ervin]

I had one pain related migraine in my life. About 2 years ago. It was a needle migraine behind my left eye that was the worst experience in my life. So as my Dr. Said he believes these are painless migraines that are related to seizures, I believe his take. I know many who suffer from migraine that describe it as horribly debilitating. So in our case for what ever reason we have painless migraines and the part of the brain it effects deals with sensory elements. Brother, I always thought as I was growing up what was happening was what it meant when people said their eyes were tired. When I was in college I would explain to my girl...hey it's happening. But years later when I had an episode in my sleep, I said this isnt about tired eyes and felt crazy telling my Doc. Good thing he is good at what he does. While I haven't had a noticeable episode in years, sometimes I have a milder feeling of it that isn't as pronounced. Out of curiosity I wonder how many sufferers need corrective vision.

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[D]

Yes closing your eyes doesn't always make the experience stop. I've experience upside down vision as well which is very unpleasant. You are totally disorientated.

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[Lúthien]

Well, I’ve always been near-sighted with the right eye needing more correction (-6.5) than left (-2.75). They both also need a cylindrical correction. 

My AIWS episodes were relatively mild though and they stopped when I was 18. Some years after that, I started to have cluster headaches (one-sided, on the right). Those resolved when I was 32 and was treated for some other problems related to being exposed to DES (https://www.cdc.gov/des/consumers/daughters/) - so I supposed the cluster headaches were related to a hormonal imbalance.

But now you mention it: maybe there’s also a relation with the nearsightedness, and maybe with the AIWS as well. Anyhow, I’m more than happy that they’ve not returned in years *knocks on wood*  

Luthien