Aggressive Angiomyxoma

[Hope1023]

This is a really rare tumor. I have been trying to find
information everywhere and it seems almost impossible. about a month
after I turned 17 I started to notice this knot on my inner leg
between my buttocks and vagina. I was so scared I finally told my
mother and that was the beginning of an exhausting 5 months.
In that time period I went to 5 different doctor, had every test
imaginable, went through several different diagnoses, finally I was
told that it was a tumor on April 5 2005. On the 6th I had my pre-op
blood work done and I had my surgery on the 7th, it was a nightmare.
The doctor I had was horrible with no bedside mannor and he would not
tell me anything because I was 17.