I too had this rare tumour!

[ronnie]

Hi....I was diagnosed with this tumour in 2004 and have radical
surgery to remove tumour in2007 followed up by radio therapy
treatment. Unfortunately, I had to have a full hysterectomy due to
the location of the tumour. I had an MRI after the first 6 months and
was clear, am now waiting to another MRI in approximately 8 months to
see if I have remained clear of this tumour. Neety and I are already
in contact following subscription to the Rarer Cancers Forum. Where
abouts are you - UK??