Steven

[Kelly]

Are you the only one on this web site? I am a little confused...is the
site closed? I am newly diagnosed and looking for support and info.
Kelly

[amy]

[amy]

Kelly wrote:

sorry made a mistake there i hope this site is not closed ...we need
all the info and experiences we can get. My little sis has just been
diagnosed with a form of myelitis...she has been in an incredible
amount of pain. She has lost the use of her legs at the moment but the
upper half of her body has caused her alot of agony in particular her
back and her skin.
please can anyone give advice or encouragement on this disease it seems
to be rare so there is very little info