PPS
Povl Thim
How right you are, no-body know anything about PPS even within the medical profession.
When my problems arose I was told by a rather abrupt physiotherapist, that I did not suffer from PPS.
The Physician was a bit more co-operative, but still not convinced. He wanted me to have a scan to see if anything would show up there.
Well it nothing did, and as the Orthopaedic Surgeon told me, there were nothing found they could 'put a knife into'.
Well finally after about 4 year, with slow deterioration I was finally diagnosed as having sufficient symptoms to be classed as a PPS sufferer.
That is now 3 year ago, and it continues to deteriorate slowly but surely.
I have joined the PPSG (Post Polio Support Group) here in Ireland, and we meet regularly informally for a chat and a drink.We exchange information of our experiences etc., like how to approach the Health Services or if anyone has new ideas on how to overcome the small daily problems. It works, and just to be together with other PPS'er, give us a lot of encouragement, and with this an easier view on our future.
Hope we can be of use to each other,
All the best
Povl
architect56
entering this site. I am the director and PPS researcher since 1992. I
am a polio survivor also and have been dianosed with PPS.
architect56
architect56
povl...@gmail.com
Well i5t is good to have contact with all the different people who, as
we, are suffering with the effects of Polio. I had Polio when I was an
18 month old baby, were paralysed in all of the right side, but
overcame the initial stages fairly well. I grew up with only minor
problems, and have been able to work in Heavy Engineering, building and
operating large bore Diesel Engines, as a
Marine Engineer, and as a Powerstation Superintendent. I have worked in
the Arctics (Greenland) and the Tropics (West Africa) without feeling
any problems as to heat/chill sensitivities. But now after I have
retired, I do feel the cold much more, and have problems keeping warm
on cold days/nights. However it has to be very warm before I'll
complain about it being to hot for me.
Well here in Ireland, we are building up a network where we meet
infomaly about 8 times during the year, for a chat and a cup of
coffee/tea or perhaps a beer. The chat is the most important part, as
we exchange experiences with regards to treatment, medication etc.,
also of which Doctors who might be the most understanding, and that is
a great benefit for all of us. Give us hope that some day, there might
be better treatment for us.
Povl