Farewell

[uphand]

Seems I have had trouble unsubscribing from this group, so please Moderator remove me from this group. 

 

Sadly my mom passed away Sept 14th from MDS.  From her diagnosis to her death was one year and two months.

 

We had a WONDERFUL time with her in hospice care.  My sister and I slept on the living room floor and enjoyed all ten days of hospice with her. 

 

The doctors thought she needed her gallbladder out, and her blood never did coagulate due to the MDS.  21 days in the hospital, test after test, blood transfusion, after blood transfusion but nothing was helping.   Very sad....but mom never complained and was alert and calm until the day she went to sleep. 

She slept peacefully for two days, and then went to Heaven. 

 

There is SO MUCH we did not know about this condition.  We tried to educate the surgeon that her platelets were only 37 - not acceptable for surgery.  But he knew we were not nurses or doctors and really didnt listen.   After it was clear that mom's body was not recovering ...the Surgeon came in and said " I really didn't understand how serious her platelet issue was."     But why didnt our oncologist educate him?  Our oncologist gave permission for the surgery.  All very sad.  We are not angry, for we know she would have died within a few months anyway, and she was at peace that we had done EVERYTHING the doctors recommended, we tried everything.....so she was able to rest knowing she had a higher appointment.

 

Please keep educating and learning.

Bonnie in FL