IVIG

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kimso...@comcast.net

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Apr 20, 2009, 10:40:37 PM4/20/09
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I was told 6 months of this would be all a patient needed ... some have been on it for years?!  It doesn't seem to be helping me at all.  My worst pain is in my ribs and around my back .... constant .... hurts to breathe ... how long does it take for IVIG to work?  Thanks

 

Kim


 

veronica taylor

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Apr 20, 2009, 11:45:46 PM4/20/09
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for what kind of condition?

--- On Mon, 4/20/09, kimso...@comcast.net <kimso...@comcast.net> wrote:

kimso...@comcast.net

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Apr 20, 2009, 11:52:22 PM4/20/09
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CIDP (chronic inflamammatory demylinating polyneuropathy - eats all the coating off your small nerve fibres and causes the pain) or Epstein- Barr Virus ... it's not helping at all ... maybe all the pain is constant fibromyalgia ... everywhere on rainy days ... chest and back on normal days ... hurts to breathe ... how about u?

veronica taylor

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Apr 21, 2009, 12:49:03 AM4/21/09
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CIPD or peripheral neuropathy. I have joined a support group and I started taking colostrum capsules. pain or stiffness is worse when it rains. when were you first diagnosed? do you use any aids to help you walk or what kinds of issues do you deal with dal to day?

veronica taylor

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Apr 21, 2009, 1:46:23 AM4/21/09
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do you have a good neuro?

kimso...@comcast.net

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Apr 21, 2009, 11:05:10 AM4/21/09
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(CIPD) diagnosed 7 months ago ..... had 3 years ... horrible when humid, raining, or pressure bad ... i'll ask about colostrum capsules (thanks) ....is this like life-time or can we stem-cell it or immune modulate it?

Imran Khan

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Apr 21, 2009, 11:15:37 AM4/21/09
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Improve your diet, get rid of the toxins or stem cell
--
Dr. Imran Khan
Diplomate American Board of Neurology
Nanotech Medical Center
http://www.cidpusa.org

Mark Leventhal

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Apr 21, 2009, 11:55:59 AM4/21/09
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Few scientific studies suggest that adult human consumption of bovine colostrum is beneficial to general health. Proponents of the use of bovine colostrum by humans as a dietary supplement or as Medical Food claim that bovine colostrum raises both general immunity and physical strength, and sometimes cite the few studies of bovine colostrum in humans. While numerous studies shows safety when used by adults, most of these studies do not show great efficacy of normal colostrum for human consumption, but show significant efficacy for specific health and immunity parameters when using Hyper Immunized colostrum (see below)
 

Mark 

 


From: IV...@googlegroups.com [mailto:IV...@googlegroups.com] On Behalf Of kimso...@comcast.net
Sent: Tuesday, April 21, 2009 11:05 AM
To: IV...@googlegroups.com
Subject: Re: IVIG

kimso...@comcast.net

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Apr 21, 2009, 6:31:08 PM4/21/09
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I didn't think so, so I changed .... this one is afraid of doing a biopsy!  My elderly Mother had to talk her into doing one to see if the IVIG is doing anything ... any suggestions?  have you tried stem cell trial?  only one i could find is in chicago.

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