I was told 6 months of this would be all a patient needed ... some have been on it for years?! It doesn't seem to be helping me at all. My worst pain is in my ribs and around my back .... constant .... hurts to breathe ... how long does it take for IVIG to work? Thanks
Kim
CIDP (chronic inflamammatory demylinating polyneuropathy - eats all the coating off your small nerve fibres and causes the pain) or Epstein- Barr Virus ... it's not helping at all ... maybe all the pain is constant fibromyalgia ... everywhere on rainy days ... chest and back on normal days ... hurts to breathe ... how about u?
(CIPD) diagnosed 7 months ago ..... had 3 years ... horrible when humid, raining, or pressure bad ... i'll ask about colostrum capsules (thanks) ....is this like life-time or can we stem-cell it or immune modulate it?
Mark
I didn't think so, so I changed .... this one is afraid of doing a biopsy! My elderly Mother had to talk her into doing one to see if the IVIG is doing anything ... any suggestions? have you tried stem cell trial? only one i could find is in chicago.