Phoenix Rising: the CFIDS Association Interview
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Cort Johnson
Feb 2, 2011, 11:10:19 PM2/2/11
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This week on PR we feature a comprehensive interview with Jennifer Spotila, former Chairman of the Board of the CFIDS Association. She discusses the CAA's tangled relationship with the CDC, their stance on XMRV, their approach to advocacy, their Research effort and more.There are two companion pieces to the interview
- The CFIDS Association from 2000-2010: an Overview - in which I look take my best look at the ups and downs of the organization over a turbulent decade
- The CFIDS Association Timeline: 2000-2010 - which lists year by year events and financial data from the CAA
Pandora has gotten a gang of CFS organizations to support their letter asking Dr. Unger to make some big changes in the CDC's program. Check out the letter and sign their petition of support!
Next check out a review of "Invisible" a movie by Rik Carlson. Rik created the Vermont CFIDS Foundation and, you may remember, wrote an gritty autobiography of his life with ME/CFS called "We're Not in Kansas Anymore: Chronic Fatigue Syndrome and the Politics of Disease". Now he's documented what life is like for people with ME/CFS in Vermont.Finally check out an Olympian who is supporting ME/CFS in this videotalk produced by Dan Moricoli.Next week an interview with a CFS author with a very interesting (and hopeful) story indeed!
--Cort JohnsonPhoenix Rising - A non-profit 501(c)(3) charitable organization dedicated to improving the lives of people with chronic fatigue syndrome (ME/CFS) and other neuroendocrineimmune disorders
--Cort JohnsonPhoenix Rising - A non-profit 501(c)(3) charitable organization dedicated to improving the lives of people with chronic fatigue syndrome (ME/CFS) and other neuroendocrineimmune disorders
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Cort Johnson
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