Phoenix Rising: The Year Ahead/Dr. Mikovits in Sweden/the Aussies Impress and More
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Cort Johnson
Jan 17, 2011, 12:00:21 PM1/17/11
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On Fri, Jan 14, 2011 at 7:20 PM, Cort Johnson <phoen...@gmail.com> wrote:
It's been a busy couple of weeks for ME/CFS. There was interesting news on XMRV, a conference (we weren't expecting), a look ahead at the year ahead, Dr. Mangan continues to surprise at the NIH, a quality of life blog series begins,...ME/CFS started out the New Year with a bang.
- The Year Ahead for ME/CFS - What will 2011 bring for ME/CFS? Alot! Hopefully the scientific community will come to a consensus on XMRV. The State of Knowledge Workshop at the NIH will provide a platform for further funding, the WPI will open its doors to patients, Dr. Montoya will start his push for a Center at Stanford...two International Workshops are slated......check it all out plus an overview of the studies that are expected to finish up...
- Dr. Mikovits: the Sweden Talk - Dr. Mikovits lecture in Sweden was full of new findings....a quicker test that measures viral load....possible antibody verification of the WPI's results...a new storage issue and the UK study findings.
- Australian ME/CFS Conference Impresses - Out of the blue the Aussie conference showed up with lots of interesting research in progress. Check out studies on the brain stem, autopsies, CNS inflammation, NPY, neurodegeneration, etc....all presented as capably as ever by Dr. Rosamund Vallings
- Being and Thinking: the Quality of Life Blogs Begin - In the absence of a cure what is one to do? One thing is to focus on creating as much wellness as possible can within the confines of the disorder: this series will document my efforts at improving my quality of life using various disciplines.
- Researchers on XMRV: the Twiv Broadcast - check out an overview of independent researchers on Twiv and they parse and probe the findings from the Retrovirology papers.
- Patient Input (gasp!) Wanted at the NIH - Dr. Mangan has been connecting with the ME/CFS Community in earnest. Last week he announced that Pat Fero of the Wisconsin ME/CFS Association, long-time advocate Mary Schweitzer and Ken Friedman of the Vermont, New Jersey and PANDORA Support Groups (yes, he's everywhere) were appointed to the Steering Committee for the NIH Workshop on CFS in April. (Congratulations also to Dr. Vernon and Dr. Jason). Now Mary Schweitzer wants your input on the Workshop.
- Actually 'Serving" the ME/CFS Community - Among his other tricks Dr. Mangan has also set up a Listserv that will immediately inform you of ME/CFS events at the NIH. Signup and show that we care what happens at the NIH
Next up a really intriguing interview with an author of a novel on CFS, the CFIDS Association Interview (finally!) and..........whatever else the next couple of weeks brings up.Happy New Year to everyone!--Cort JohnsonPhoenix Rising - A non-profit 501(c)(3) charitable organization dedicated to improving the lives of people with chronic fatigue syndrome (ME/CFS) and other neuroendocrineimmune disorders
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Cort Johnson
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