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Alan Ward

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Mar 18, 2006, 6:52:22 AM3/18/06
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Hello Everyone!!
Can I ask,has anyone in this group had any experience
with Non Convulsive Status Epilepticus?I have a 16yr old son with Cerebral
Palsy who also suffers this very tricky condition!!Would love to hear from
anyone who has had to deal with this nightmare!!
Many thanks and best regards,
Alan.

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john coyle

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Mar 18, 2006, 2:57:57 PM3/18/06
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Hi there Alan,

I have had and am having something kinda like what you are talking
about... I don't shake, but I do somewhat seize. Thought it was a
stroke or something - perhaps Tod's Paralysis but doctors don't know
what to make of it and never have. It is strange and due to the fact
that I have a brain tumor, it might be some sort of Jacksonian
seizure... will be in touch.

Cheers,

John


--
John W. Coyle
john.w...@gmail.com
http://www.shake-that-seizure.org

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