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GRETCHEN OBST
Jan 8, 2008, 9:00:23 PM1/8/08
to Engelmann's Syndrome
Hi everyone,
Chrstina, can you forward the email I just sent. thanks
Correction:
The MD I talked about is @ Ceddar-Sinai Medical Center
goodnight!
gret
Love & Hugs
Gret
Eugene Tiffany
Feb 21, 2008, 11:21:19 PM2/21/08
to Engelmann's Syndrome
Ceddar-Sinai Medical Center is where my cousin, Dr. Stephanie Wallace
was at prior to relocating to Seattle, and the Children's Hospital.
was at prior to relocating to Seattle, and the Children's Hospital.
Mary
Apr 3, 2008, 6:07:59 PM4/3/08
to Engelmann's Syndrome
Hi there!
I was just looking at the posts and saw your note! Your cousin is
Stephanie Wallace? I met her and I think she would remember me! If you
ask her if she remembers a person by the name of Mary Costello. She
might not remember my name but she sat in on my brain surgery with Dr.
Danielpour!(Daniel-por) The surgery was a first of it's kind and she
was able to participate right before she left Cedars. Please tell her
I said Hello and let her know that about 8 weeks after my surgery I
got my vision back and am doing well! I am still in loads of pain on a
daily basis but my life is not in danger anymore! I also met Stephanie
when I went up to see my doctors, Dr Wilcox and Dr. Rimoin. She worked
with them and I was told that she got into this field because she has
two family members with CED. Is that you and your dad? I think I
remember hearing about you!
Is she still seeing people with rare bone disorders? If so will you
ask her how she is treating people with chronic pain? I am going to
the Pain Clinic at UCI this month and want to see what others with CED
are using for pain meds.
Thanks,
~Mary Costello
I was just looking at the posts and saw your note! Your cousin is
Stephanie Wallace? I met her and I think she would remember me! If you
ask her if she remembers a person by the name of Mary Costello. She
might not remember my name but she sat in on my brain surgery with Dr.
Danielpour!(Daniel-por) The surgery was a first of it's kind and she
was able to participate right before she left Cedars. Please tell her
I said Hello and let her know that about 8 weeks after my surgery I
got my vision back and am doing well! I am still in loads of pain on a
daily basis but my life is not in danger anymore! I also met Stephanie
when I went up to see my doctors, Dr Wilcox and Dr. Rimoin. She worked
with them and I was told that she got into this field because she has
two family members with CED. Is that you and your dad? I think I
remember hearing about you!
Is she still seeing people with rare bone disorders? If so will you
ask her how she is treating people with chronic pain? I am going to
the Pain Clinic at UCI this month and want to see what others with CED
are using for pain meds.
Thanks,
~Mary Costello
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