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to Engelmann's Syndrome
Hi everyone
i like to know , what levels of alkaline phosphatase
, you have
thanks for your attention and disposal
a big hug
Christina
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Jul 14, 2009, 1:17:37 PM7/14/09
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to Engelmann's Syndrome
Hello Ingrid,
I got my results of my Alkaline Phosphotase levels which were taken
about a month ago when I had moderate pain. At this time the level was
247.
My GP said my past results have been much higher though and in
september of last year when I was feeling very unwell it was 472!
I had blood tests repeated yesterday and should have my most recent
Alk. Phos. levels soon, so I will keep you posted!
Best wishes,
Christina. xx
Ingrid
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Jul 14, 2009, 5:56:10 PM7/14/09
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to Engelmann's Syndrome
Hello Christina
Thanks for answering
I will tell you that my current level of alkaline phosphatase is 230,
I take predinosona one day yes another not (15mg) I have moderate
pain some days and another little strong
when treatment was started I had 500 alkaline phosphatases and i felt
so bad
In September I have an appointment with the doctor for treatment
evaluation.
take care and i hope you will be fine
we are in contact