Engelmann's Syndrome
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Engelmanns@googlegroups.com
Description
Camurati-Engelmann's Disease (CED, Progressive Diaphyseal Dysplasia) is an extremely rare, genetic bone disorder. It affects mainly the long-bones of the body and causes severe pain to anyone who suffers with it!
If you have, or know of anyone who has this condition, then PLEASE get in touch!!
If you have, or know of anyone who has this condition, then PLEASE get in touch!!
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English (United States)
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