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Engelmann's Syndrome
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Christina
5/29/11
Google CED Group
Hello all, It seems that Google are making some changes to the Groups services they offer and this is
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Google CED Group
Hello all, It seems that Google are making some changes to the Groups services they offer and this is
5/29/11
Christina
6/7/10
Apologies!!
Hi everyone. Some of you may have noticed that recently we have been having people posting SPAM
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Apologies!!
Hi everyone. Some of you may have noticed that recently we have been having people posting SPAM
6/7/10
SubZero
, …
Christina
3
4/20/10
Treatment with stem cells
Hello Fabio, I apologise for taking so long to reply. I have not heard of any treatments for CED,
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Treatment with stem cells
Hello Fabio, I apologise for taking so long to reply. I have not heard of any treatments for CED,
4/20/10
Christina
2/20/10
CED Questionnaire...
Hi everyone, Below are a list questions that have been devised by members of this group in order to
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CED Questionnaire...
Hi everyone, Below are a list questions that have been devised by members of this group in order to
2/20/10
Ingrid
3
1/27/10
Cataratas- disease
HI Angie so sorry for your head pain, i´m not have important problems with my head, i hope your
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Cataratas- disease
HI Angie so sorry for your head pain, i´m not have important problems with my head, i hope your
1/27/10
Ingrid
, …
gemtwinks
3
12/24/09
Special days
Best Wishes to all of you for a Blessed Christmas and prosperous New Year!!! Sheryl
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Special days
Best Wishes to all of you for a Blessed Christmas and prosperous New Year!!! Sheryl
12/24/09
Inneke VdB
, …
Christina
3
9/4/09
Hello, I'm a new member
Hello Inneke Welcome to our group, I am pleased that you found us! :o) You are very lucky not to have
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Hello, I'm a new member
Hello Inneke Welcome to our group, I am pleased that you found us! :o) You are very lucky not to have
9/4/09
Laura
, …
Fabio Pinheiro
13
8/26/09
scared
Hy Mary, My wife wrote a letter with help of a friend Who know english. Can you send It to Dr. Wilcox
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scared
Hy Mary, My wife wrote a letter with help of a friend Who know english. Can you send It to Dr. Wilcox
8/26/09
Blaise Roche
2
8/11/09
CED
Hello Laura, Welome to the engelmann's group. I have Camurati Engelmann"s disease too. I
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CED
Hello Laura, Welome to the engelmann's group. I have Camurati Engelmann"s disease too. I
8/11/09
Ingrid
,
Christina
3
7/14/09
Alkaline phosphatase
Hello Christina Thanks for answering I will tell you that my current level of alkaline phosphatase is
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Alkaline phosphatase
Hello Christina Thanks for answering I will tell you that my current level of alkaline phosphatase is
7/14/09
Ingrid
6/19/09
Thanks for answering
Thanks for answering I appreciate this I hope you keep in touch a fraternal hug from chile Ingrid.
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Thanks for answering
Thanks for answering I appreciate this I hope you keep in touch a fraternal hug from chile Ingrid.
6/19/09
Christina
6/19/09
KEEPING IN CONTACT
Hi everyone, its been a while since I have been on here to check my messages as I havent been getting
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KEEPING IN CONTACT
Hi everyone, its been a while since I have been on here to check my messages as I havent been getting
6/19/09
Ingrid
6/16/09
Hi .... i`m a new member
Hi My name is ingrid i have CED, i live in santiago chile and my English is very little.:) I looking
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Hi .... i`m a new member
Hi My name is ingrid i have CED, i live in santiago chile and my English is very little.:) I looking
6/16/09
Allison
3/3/09
Just wanted to welcome all the new people
Hi, I am Allison and have been a member of this group for a long time now though when I got my new
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Just wanted to welcome all the new people
Hi, I am Allison and have been a member of this group for a long time now though when I got my new
3/3/09
Jo
, …
gemtwinks
4
1/28/09
Hello, I'm New
Jo, Welcome! Like you I live in the midwest (Minneapolis) and was diagnosed in my twenties, but have
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Hello, I'm New
Jo, Welcome! Like you I live in the midwest (Minneapolis) and was diagnosed in my twenties, but have
1/28/09
GRETCHEN OBST
12/9/08
new email
Hi all, I hope everyone is enjoying the season! I had a great wknd @ a friends wedding!! THANKS Gabes
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new email
Hi all, I hope everyone is enjoying the season! I had a great wknd @ a friends wedding!! THANKS Gabes
12/9/08
gemtwinks
,
Christina
2
6/23/08
Hello, I'm new
Hi there, I am so glad you found our site and would like to welcome you to our small CED community! I
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Hello, I'm new
Hi there, I am so glad you found our site and would like to welcome you to our small CED community! I
6/23/08
Lauren
6/23/08
Chris - we are thinking of you! xoxo
Hey Everyone, Just letting you know that our faithful leader isn't very well at the moment. Chris
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Chris - we are thinking of you! xoxo
Hey Everyone, Just letting you know that our faithful leader isn't very well at the moment. Chris
6/23/08
Elsa
, …
gemtwinks
3
6/10/08
new member Lillian Gonzalez, Phoenix, AZ
Dear Elsa, I am also new to this group. I have CED, but haven't had many problems (some pain and
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new member Lillian Gonzalez, Phoenix, AZ
Dear Elsa, I am also new to this group. I have CED, but haven't had many problems (some pain and
6/10/08
Lauren
6/4/08
GARD - Finding CED Newbies!!
Hey Everyone, I recently received an email from GARD - The Genetic and Rare Disease Information
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GARD - Finding CED Newbies!!
Hey Everyone, I recently received an email from GARD - The Genetic and Rare Disease Information
6/4/08
Loll
, …
Mary
4
4/28/08
Hello
Hi Loll!\ My name is Mary and I have suffered with CED my whole life. I was diagnosed when I was 17
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Hello
Hi Loll!\ My name is Mary and I have suffered with CED my whole life. I was diagnosed when I was 17
4/28/08
Lauren
2
4/26/08
Keeping Warm in Cold Weather
"Feelin' hot hot hot!" :o) Originally posted by Christina on Wed, August 29, 2007 - 4:
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Keeping Warm in Cold Weather
"Feelin' hot hot hot!" :o) Originally posted by Christina on Wed, August 29, 2007 - 4:
4/26/08
Mary
, …
GRETCHEN OBST
7
4/21/08
Need your help!
Hi all, As I read everyone med list, I realize that i have been on most of these @ some point in my
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Need your help!
Hi all, As I read everyone med list, I realize that i have been on most of these @ some point in my
4/21/08
Eugene Tiffany
, …
Lauren
6
4/5/08
The Behinninh
Welcome Back Patrick! It's great to hear from you and I hope you are well. I look forward to
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The Behinninh
Welcome Back Patrick! It's great to hear from you and I hope you are well. I look forward to
4/5/08
GRETCHEN OBST
, …
Mary
3
4/3/08
doctor
Hi there! I was just looking at the posts and saw your note! Your cousin is Stephanie Wallace? I met
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doctor
Hi there! I was just looking at the posts and saw your note! Your cousin is Stephanie Wallace? I met
4/3/08
Niki
, …
Lauren
4
3/16/08
Thank you!
Here here, Gret!!!!! I completely agree with you and am rather concerned that Eugene missed the most
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Thank you!
Here here, Gret!!!!! I completely agree with you and am rather concerned that Eugene missed the most
3/16/08
GRETCHEN OBST
, …
Lauren
5
3/16/08
W/C
Hi Gret, How are you chooky? I hope your pain has eased off for a little while at least. I agree with
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W/C
Hi Gret, How are you chooky? I hope your pain has eased off for a little while at least. I agree with
3/16/08
Lauren
3/16/08
CED Groups
We have 3 CED support groups in cyber space at the moment... 1. Google group (this one) 2. Tribe -
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CED Groups
We have 3 CED support groups in cyber space at the moment... 1. Google group (this one) 2. Tribe -
3/16/08
Mary
,
GRETCHEN OBST
2
2/12/08
Letter for Nikki
Mary , I could not have said it better! Is there a way that we could sign our names to that? or to
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Letter for Nikki
Mary , I could not have said it better! Is there a way that we could sign our names to that? or to
2/12/08
Mary
, …
GRETCHEN OBST
4
1/9/08
CED
Hi Gret, Good to hear from you! Dr. Wilcox is my doctor! He has been my doctor for years. I didn'
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CED
Hi Gret, Good to hear from you! Dr. Wilcox is my doctor! He has been my doctor for years. I didn'
1/9/08