Alert - rare disease

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Nils K Oeijord

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Jul 6, 2012, 6:41:05 AM7/6/12
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News8 new results for rare disease
 
Medunik Canada and Orphan Europe sign a new distribution agreement to help ...
MarketWatch (press release)
BLAINVILLE, QC, July 5, 2012 /PRNewswire via COMTEX/ -- Medunik Canada, is an orphan drug company dedicated to helping Canadians with rare diseases access therapies currently unavailable in Canada. Medunik Canada is proud to announce that it ...
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Parents organize conference on child's rare disease: Remi's Glut1 disease
Pittsburgh Post Gazette
Every now and then, a child with a virtually unknown, incurable disease happens to have parents so determined and indefatigable that clinicians, researchers and doctors have little choice but to pay attention to them. Susan Sarandon played such a ...
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Ultragenyx Initiates Phase 2 Study of UX001 in Hereditary Inclusion Body ...
MarketWatch (press release)
NOVATO, Calif., Jul 5, 2012 (GlobeNewswire via COMTEX) -- Ultragenyx Pharmaceutical Inc., a biotechnology company focused on developing treatments for rare and ultra-rare genetic disorders, today announced the dosing of the first two patients in a ...
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Vancouver teen plays past rare genetic disorder
Vancouver Sun
To see Nicklas Harkins kick out a goalie pad and make a tough save on a breakaway, you'd never guess.
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Solider dies of rare illness after suffering headaches
Ynetnews
News: Combat Engineering Corps serviceman dies after being diagnosed with rare, fatal disorder; IDF launches inquest.
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Indian state's grip on rare lions may be too tight
KCAU
A spokesman says Congressman Jesse Jackson Jr.'s medical condition is more serious than initially believed and he's undergoing evaluation and treatment at an in-patient medical facility.More>>. U.S. Rep. Jesse Jackson Jr. is being treated at an ...
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'While I Still Can' offers rare look
Hernando Today
Rarely does one get an opportunity to experience the nightmare that is Alzheimer's disease from the perspective of the person who has been stricken with it.
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Midland boy with bone marrow disorder myelodysplastic syndrome needs ...
The Bay City Times - MLive.com
Lucas has a rare bone marrow disorder and family and physicians are seeking a bone marrow donor. MIDLAND, MI — It started with some bruising. In the winter, Jennifer Schau of Midland noticed her 10-year-old son Lucas Schau had excessive bruising.
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Nils K Oeijord

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Jul 8, 2012, 5:16:15 PM7/8/12
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News3 new results for rare disease
 
Dunking for St. Joseph Co. 4-Her with rare disease
WSBT-TV
SOUTH BEND – On the final day of the St. Joseph County 4-H Fair, fairgoers found a way to stay cool while helping out a good cause.A dunk tank fundraiser was held Saturday to raise money for a.
Gastrointestinal perforation rare in rheumatoid arthritis
Medical Xpress
... rare in rheumatoid arthritis. Gastrointestinal perforation is a rare but serious condition that affects patients with rheumatoid arthritis, most frequently in the lower gastrointestinal tract, according to a study published online June 21 in ...
Exome sequencing of health condition extremes can reveal susceptibility genes
Science Codex
Comparing the DNA from patients at the best and worst extremes of a health condition can reveal genes for resistance and susceptibly. This approach discovered rare variations in the DCTN4 gene among cystic fibrosis patients most prone to early, chronic.

Science Codex


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Nils K Oeijord

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Jul 10, 2012, 7:32:55 AM7/10/12
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News6 new results for rare disease
 
Childhood at odds with disorder
Visalia Times-Delta
The family at that point had been searching for answers for three years about a rare internal bleeding disorder that had wreaked havoc on Sara's body. Bills began to mount for the family; hundreds of miles of travel each month had become routine; and ...
Lux Bio Resurfaces With Defined Path for Pill for Rare Eye Disease
Xconomy
After Lux Biosciences announced in August 2010 that the FDA declined to approve its experimental drug to treat an inflammatory disorder of the eye called u.
Optical Microscope Detects Rare Cancer Cells
Photonics.com
The ability to distinguish and isolate rare cells — such as circulating cancer tumor cells and stem cells — from a large population of assorted cells has become increasingly important for disease detection. Typically, there are only a handful of ...

Photonics.com
Virus Linked to Disease Affecting Cambodian Children
Prensa Latina
Enterovirus 71 (EV-71), a lethal virus, is possibly related to deaths from a rare disease that causes high fever, and impairment of respiratory and neurological functions. The patient dies few hours after the symptoms of infection appear. The WHO says ...
Cuba scrambles to fight rare cholera outbreak
The Associated Press
... Cuba are in full prevention mode to contain a rare cholera outbreak amid fears that it may have spread to the capital, distributing chlorine and water purification drops and quarantining hospital patients with diarrhea until they are checked for ...
Eating disorders an increasing problem in older women
American Medical News
“Fifteen years ago, it was very rare to have a patient with an eating disorder at midlife,” said Ann Kearney-Cooke, PhD, a Cincinnati psychologist who specializes in eating disorders. “Now, half my patients are women 35 to 70.” Steps older women take ...


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Nils K Oeijord

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Jul 3, 2012, 4:53:12 PM7/3/12
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News8 new results for rare disease
 
Dylan Hyde's Fundraising PSA to Save Local Horse w/Rare Disease
San Diego Reader (blog)
The infection has been diagnosed as canker, a very serious and rare disease that is almost unheard of in the United States, and all the more rare in Southern California. “The Rocking Horse Ranch is right in my back yard, and I love animals,” says Hyde.
Power Boy faces rare adversary
Alexandria Echo Press
Ben, an 8-year-old Alexandria boy, teamed up with some Real Life Super Heroes to battle a rare disease that affects his nervous system.
Smoking, Head injury, Pesticide Use May Lead to Rare Sleep Disorder
Counsel & Heal
If you smoke, have had a head injury, or have been exposed to pesticide, you may be at risk for a rare sleep disorder that causes people to kick or punch during sleep, according to a study published in the June 27, 2012, online issue of Neurology®, the ...

Counsel & Heal
Rare blood disease mystery unravelled
Deccan Chronicle
A US-based research team, which includes an Indian doctor, has found vital clues that unravel the mystery behind the spread of a rare blood disease called myelo-dysplastic syndromes (MDS). The team noticed that abnormal stem cells trigger the ...
Georgia woman with flesh-eating disease leaves hospital
New York Daily News
Aimee Copeland had her makeup done, joked with her doctors and hugged her nurses before she left a Georgia hospital Monday, just two months after she was infected with a rare life-threatening, flesh-eating disease.

New York Daily News
Research and Markets: Epidemiology: Trigeminal Neuralgia - The Disease is not ...
Business Wire (press release)
DUBLIN--(BUSINESS WIRE)--Research and Markets (http://www.researchandmarkets.com/research/j5qzkz/epidemiology_trig) has announced the addition of the "Epidemiology: Trigeminal Neuralgia - The Disease is not as Rare as Previously Thought" report ...
News chase
Newsworks.org
Good morning Feeders! Tom MacDonald will get more details for on Philadelphia s contract with its firefighters And Lizz Fiedler will explain the $3 billion GlaxoSmithKline settlement with several.
Rare cholera outbreak kills 3 in eastern Cuba
MiamiHerald.com
HAVANA -- A rare cholera outbreak has killed three elderly people in Cuba and sickened dozens more. The Communist Party daily Granma says 53 people tested positive for the disease in Manzanillo, 430 miles (700 kilometers) east of Havana. The three ...
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