Alert - rare disease
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Nils K Oeijord
Nov 22, 2012, 6:33:56 AM11/22/12
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| Jeannette twins to get stem cells to fight rare disease Pittsburgh Post Gazette When Audra and Jason Trapletti of Jeannette sit down to Thanksgiving dinner, they will give special thanks for the support of family and community. The couple's 8-month-old twin daughters, Avria and Aubrey, were diagnosed this fall with a very rare ... See all stories on this topic » | ||
| No stopping Hayden: Alexandria teen an active athlete despite battling rare ... Alexandria Town Talk Hayden Parker of Alexandria, center, runs the Hayden's Heroes 5K at England Airpark earlier this month. Parker was born with a rare condition in which his body cannot break down a certain amino acid. / Melinda Martinez/mmar...@thetowntalk.com ... See all stories on this topic » | ||
| Young girl finally to sleep peacefully after treatment for rare disease WWL NORCO, La. -- When a young couple from Norco had their first baby, a nurse noticed something unusual about her breathing. At two days old, a rare diagnosis changed their lives. Now, after eight years, technology offers promise that their little girl ... See all stories on this topic » | ||
| Shire links with Boston Children's Hospital for pediatric rare disease research The Pharma Letter Ireland-headquartered Shire (LSE: SHP) has entered into a three-year, broad research collaboration in rare diseases with the Boston Children's Hospital. The goal of the collaboration is to develop novel therapies to treat a number of rare pediatric ... See all stories on this topic » | ||
| Faces of Rare Disease: Duchenne Muscular Dystrophy KPLC-TV There is a deadly and fast-moving form of muscular dystrophy that affects one in every 3,600 male infants. The outlook is grim, with most young men never reaching the age of 25. In this "Faces of Rare Disease," 19-year-old Ross Grimball talks about ... See all stories on this topic » |
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Nils K Oeijord
Nov 18, 2012, 9:16:14 AM11/18/12
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| Fundraiser for Bridgeport boy fighting rare neurological disease NewsChannel 9 WSYR Fundraiser for Bridgeport boy fighting rare neurological disease. Images. Zumba benefit for Camillus boy with rare neurological disease. Set Text Size Small, Set Text Size Medium, Set Text Size Large, Set Text Size X-Large. Print Story. Published: 11 ... |
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