Alert - rare disease

[Nils K Oeijord]

News 5 new results for rare disease

Girl battling rare disease gets special treat for 6th birthday Brandon Sun Towler doesn't know anyone locally, but online groups Towler frequently checks helps her find a community afflicted by the rare disorder. "You get to know these people, they're like your family, even though we've never met." For now, Towler is happy ... See all stories on this topic »

Law reports: Failure to spot rare disease did not amount to care duty breach Post Online In March 2003, in the course of treatment received by claimant Richard Meiklejohn, a sample of the claimant's blood was sent to Professor Dokal for research purposes. It was not until November 2005 that the sample was analysed and it was found that ... See all stories on this topic » Post Online

Genetic Research Proves Autoimmune Liver Disease Is A Unique Condition RedOrbit Using DNA genotyping technology, researchers from the Wellcome Trust Sanger Institute have determined that primary sclerosing cholangitis (PSC), a rare autoimmune disease affecting the liver, is a unique condition and not a complication of inflammatory ... See all stories on this topic » RedOrbit

Mokena Family Hopes to Draw Attention to 14-year-old's Painful Disease Patch.com But the family and supporters don't want to stop with attention to one child afflicted with the disease; they want to raise awareness of this rare disease and generate funds for research. How to Attract National Attention. Ultimately the Collins Family ... See all stories on this topic »

Girl's rare brain tumour death prompts mums' charity drive Your Local Guardian Her daughter, Elsie Crosthwaite, died of rare disease Diffuse Intrinsic Pontine Gliomas (DIPGs) aged six. The tumour affects only 40 children in the UK and is terminal for those diagnosed with it. Ms O' Connor has hopes to raise £100,000 into ... See all stories on this topic » Your Local Guardian

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