Update: Rare diseases

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Nils K Oeijord

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Sep 19, 2012, 6:37:12 AM9/19/12
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> === News - 10 new results for [rare disease] ===
>
> Scientists grow drug for rare disease in corn
> Reuters
> LONDON (Reuters) - Scientists have grown a drug to treat a rare genetic
> disease inside corn plants, potentially offering a cheaper way to
> manufacture a treatment that currently costs hundreds of thousands of
> dollars a year for each patient. The move ...
> <http://www.google.com/url?sa=X&q=http://www.reuters.com/article/2012/09/18/us-corn-medicine-idUSBRE88H0Z920120918&ct=ga&cad=CAEQAhgAIAAoATAAOABAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNGSnTmAx9SJKKD6ZNobvsDjdz1cJQ>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://www.reuters.com/article/2012/09/18/us-corn-medicine-idUSBRE88H0Z920120918%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjAAOABAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNGQxeHkJD0iuhnFQ0HNX85MFQ73VA>
>
> In lab, drug-on-the-cob fights rare disease
> AFP
> PARIS ? Biologists in Canada have made a medical enzyme using
> genetically-engineered corn, a feat that could one day slash the cost of
> treating a life-threatening inherited disease, a journal reported on
> Tuesday. Inserting a section of DNA code into ...
> <http://www.google.com/url?sa=X&q=http://www.google.com/hostednews/afp/article/ALeqM5giv21uqY0kffIOWybqZol17RnltA%3FdocId%3DCNG.f2ae092077ef4ec427054e7a3c40824a.61&ct=ga&cad=CAEQAhgAIAAoATABOAFAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNHP9nuh87KD0CuQh7uvKZc3UTafgw>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://www.google.com/hostednews/afp/article/ALeqM5giv21uqY0kffIOWybqZol17RnltA%253FdocId%253DCNG.f2ae092077ef4ec427054e7a3c40824a.61%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjABOAFAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNE1MwMgKT-qqJ_HIuSavoyaLcKDRw>
>
> Rodeo to fund rare cancer research
> Tri Parish Times
> This particular disease causes tumors to form in the membrane around the
> heart. Long explained that mesothelioma in itself is a rare form of cancer
> that occurs within cells lining the body's internal organs. ?That thin
> layer of cells is called the ...
> <http://www.google.com/url?sa=X&q=http://www.tri-parishtimes.com/news/local/article_0ae0dd7a-01b4-11e2-8691-0019bb2963f4.html&ct=ga&cad=CAEQAhgAIAAoATACOAJAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNGGbWR8Y-yiiKhxyzmVrSJXn1_5-w>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://www.tri-parishtimes.com/news/local/article_0ae0dd7a-01b4-11e2-8691-0019bb2963f4.html%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjACOAJAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNG2rBr_TrvPyNJjkmzm_azaTWrq2w>
>
> Local Woman Brings Attention to Rare Muscle Wasting Disease
> Patch.com
> What has been weakening her body for 23 years is Inclusion Body Myositis, a
> rare and relentless disease of the immune system that attacks healthy
> tissue. Slaven, a Weymouth resident who emigrated from Germany to raise a
> family with her husband four ...
> <http://www.google.com/url?sa=X&q=http://braintree.patch.com/articles/local-woman-brings-attention-to-rare-muscle-wasting-disease&ct=ga&cad=CAEQAhgAIAAoATADOANAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNEW-5eSl8DpTPHTt_PUMK1XRiz2tw>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://braintree.patch.com/articles/local-woman-brings-attention-to-rare-muscle-wasting-disease%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjADOANAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNGaP9Oo0ZJrYOl2Cv28-vNtkNJddw>
>
> Baraboo woman hopes to raise awareness about rare disorder
> Baraboo News Republic
> Baraboo woman hopes to raise awareness about rare disorder. Print Email.
> 2012-09-17T20:12:00Z Baraboo woman hopes to raise awareness about rare
> disorderBy Tim Damos, News Republic Wiscnews.com. 15 minutes ago ? By Tim
> Damos, News ...
> <http://www.google.com/url?sa=X&q=http://www.wiscnews.com/news/local/article_d5118da6-012d-11e2-a71c-001a4bcf887a.html%3Fcomment_form%3Dtrue&ct=ga&cad=CAEQAhgAIAAoATAEOARAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNHUOHd2Vfs6OX_f5n6H8cD-d450xQ>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://www.wiscnews.com/news/local/article_d5118da6-012d-11e2-a71c-001a4bcf887a.html%253Fcomment_form%253Dtrue%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjAEOARAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNG4VFKeEhroq6txU4lPOYFcYJZFbg>
>
> Rare Cancers Show Potential Source of Tumor Growth
> Opposing Views
> Chromafin cells produce the hormone norepinephrine (adrenaline.) One
> patient also had a rare tumor of the duodenum known as asomatostatinoma.
> Since birth, both patients had polycythemia, a rare disease in which the
> body produces too many red blood ...
> <http://www.google.com/url?sa=X&q=http://www.opposingviews.com/i/health/rare-cancers-yield-potential-source-tumor-growth&ct=ga&cad=CAEQAhgAIAAoATAFOAVAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNE-d608cGJMfyVz5jWdeCpgi6ZLCw>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://www.opposingviews.com/i/health/rare-cancers-yield-potential-source-tumor-growth%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjAFOAVAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNGa3f3hCwVTtYRzamuYrcONDAMBqA>
>
> Local Man Copes with Rare Lung Disease
> WTAJ
> Since 1995, cases of a rare lung disease have doubled in the United States.
> In sarcoidosis, the immune system over-reacts and that causes inflammatory
> cells to clump together. As one local man discovered, the disease can take
> your breath away.
> <http://www.google.com/url?sa=X&q=http://wearecentralpa.com/fulltext-healthcast%3Fnxd_id%3D399642&ct=ga&cad=CAEQAhgAIAAoATAGOAZAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNHe1pQcnjawQxu1lHe926JbYv2QAQ>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://wearecentralpa.com/fulltext-healthcast%253Fnxd_id%253D399642%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjAGOAZAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNFec9HTKaeqGoSSVTYwQwJRAAR0xQ>
>
> Pfizer and Lilly projects first to win Pathfinder funding
> Pharma Times
> The Wellcome Trust unveiled this week that rare disease research projects
> put forward by Pfizer and Lilly are the first to win funding under its new
> Pathfinder Awards scheme. The Pathfinder Awards are designed to help get
> pilot projects that could ...
> <http://www.google.com/url?sa=X&q=http://www.pharmatimes.com/Article/12-09-18/Pfizer_and_Lilly_projects_first_to_win_Pathfinder_funding.aspx&ct=ga&cad=CAEQAhgAIAAoATAHOAdAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNGyAtQpnS249b9T21fcIIdUqr7ukw>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://www.pharmatimes.com/Article/12-09-18/Pfizer_and_Lilly_projects_first_to_win_Pathfinder_funding.aspx%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjAHOAdAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNHJj99lF0iSHglAkdBXcqVpxi-upA>
>
> Brain-eating amoeba claims 2nd victim in Vietnam
> Thanh Nien Daily
> Doctors in Ho Chi Minh City said that a six-year-old boy has become the
> second person to be killed recently by a rare disease caused by a
> brain-eating amoeba. Saigon Tiep Thi newspaper Monday quoted doctors at the
> HCMC Hospital of Tropical Diseases ...
> <http://www.google.com/url?sa=X&q=http://www.thanhniennews.com/index/pages/20120917-rare-brain-inflammation-claims-2nd-life-in-vietnam.aspx&ct=ga&cad=CAEQAhgAIAAoATAIOAhAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNH4QE-FwEWItkQ7Gjg1VbeMMumaHA>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://www.thanhniennews.com/index/pages/20120917-rare-brain-inflammation-claims-2nd-life-in-vietnam.aspx%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjAIOAhAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNEVQN7p6HP3DAoNKFON3iqkZCxj0w>
>
> Toddler bites into own flesh
> Deccan Herald
> A two-and-a-half-year old child has been diagnosed with Lesch Nyhan
> Syndrome (LNS), an extremely rare disease caused by enzyme deficiency,
> where patients chew their own flesh. According to the medical fraternity in
> Kolkata, there is no treatment for ...
> <http://www.google.com/url?sa=X&q=http://www.deccanherald.com/content/279439/toddler-bites-own-flesh.html&ct=ga&cad=CAEQAhgAIAAoATAJOAlAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNGimSVbvKGNhczprRwvEMatSy8SWA>
> See all stories on this topic:
> <http://www.google.com/url?sa=X&q=http://news.google.com/news/story%3Fncl%3Dhttp://www.deccanherald.com/content/279439/toddler-bites-own-flesh.html%26hl%3Den%26geo%3Dus&ct=ga&cad=CAEQAhgAIAAoBjAJOAlAu6_jggVIAVAAWABiBWVuLVVT&cd=I8b3vgGR9b8&usg=AFQjCNGyGCh4OmSsg2KrnfDlSRJD0vH7aw>
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