Alert - rare disease

[Nils K Oeijord]

News 4 new results for rare disease

Novartis drug helps patients with rare inflammatory diseases Reuters ZURICH (Reuters) - Novartis' Ilaris helps reduce patients' symptoms and the frequency of attacks in two rare inflammatory diseases, mid-stage studies showed, as the Swiss drugmaker looks to expand the use of the medicine. Results of two separate ... See all stories on this topic »

Rare disease causes blockage in Nick's spinal cord Noosa News UPDATE 1PM: The disease ravaging Nick Duggan's body has caused a blockage in his spinal cord and is affecting movement on the right side of his body. The 35-year-old posted a video update today on YouTube just days after a heartbreaking video log ... See all stories on this topic »

Bake sale raises money in fight against rare disease WCSH-TV SANFORD, Maine (NEWS CENTER) -- A young girl from Sanford is living with a rare disease that not many people have heard about, but Ashley Colarossi is hoping to change that. She held a bake sale on Saturday with her own homemade confections to ... See all stories on this topic » WCSH-TV

How we've coped as our two sons live with a rare genetic disease WalesOnline When Christopher Jones was nine years old, his parents were given the devastating news that he was suffering from a rare genetic condition. Within, they learned their youngest son Steven was also suffering the same fate. The brothers, now aged 25 and ... See all stories on this topic »

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[Nils K Oeijord]

News 3 new results for rare disease

One woman's tale of 'madness' saves another from rare auto-immune disease Today.com (blog) Doctors told Bill Gavigan his daughter Emily's sudden paranoia was likely schizophrenia, but after seeing Susannah Cahalan on TODAY describing the same symptoms, he demanded Emily be tested for the her rare disease. Bill, Emily, and Susannah talk ...

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FDA gives orphan drug status to Savara Pharmaceutical's AeroVanc Examiner.com The Orphan Drug Act (ODA) provides for granting special status to a product to treat a rare disease or condition upon request of a sponsor. The combination of the product to treat the rare disease or condition must meet certain criteria. This status is ...

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Alzheimer's signs found in young adults San Francisco Chronicle Signs of Alzheimer's disease can be found in people with a rare, inherited form of the illness at least 20 years before the onset of symptoms, according to new studies that may guide earlier preventive treatment. In a study of 44 adults in Colombia ...

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