Group: http://groups.google.com/group/aacparents/topics
- School Unsupportive of AAC Device [8 Updates]
Annie Smith <ann...@gmail.com> Nov 04 12:29PM -0800
Need help!
I have an eyegaze device that school is unsupportive of me bringing to
school. They want me to sign a waiver of liability should anything happen
it they are not liable and they are contacting my Neurologist because they
claim it induces seizures (there has been no evidence of that) I want to
request an outside AAC eval (their AAC is in house within district). Again
we finally got the device and now I'm still having to battle for support at
school! *Need ideas justifying outside AAC eval.* Not willing to set my
daughter up for failure with a team that doesn't believe in her. You would
think saving the school district $20,000 and obtaining my own device would
be a good thing. Apparently not. Thoughts??
--
***What is Rett Syndrome? Watch this video. http://youtu.be/bBfPG2aQflE
***Want to make a difference for millions of girls? Visit
http://www.mikyla-cure.org/
Mcda...@aol.com Nov 05 10:04AM -0500
Hi, something similar happen to us years ago. Ask them if they have
people sign a release for electric wheel chairs or hearing devices ETC? Are
they afraid your child will have seizures or are they afraid other students
in her class will have them from her eyegaze device? We ended up filing for
due process because they said our son couldn't use his SGD in the
preschool setting. Our school district paid for the warranty for the device and we
were told if it was broken during school time their insurance would cover
it.
What state are you in? In our state of Massachusetts (home of the
World Series Champs the Boston Red Soxs) You don't have to state a reason for
an IEE. I would assume some you consulted outside said she should use an
eyegaze right? Are they refusing to accept that.....sounds like it but just
want to make sure. Keep us all posted and hopefully others will reply
that are much better educated then I am about this.
Mary-Clare
In a message dated 11/5/2013 9:41:34 A.M. Eastern Standard Time,
ann...@gmail.com writes:
Need help!
I have an eyegaze device that school is unsupportive of me bringing to
school. They want me to sign a waiver of liability should anything happen
it they are not liable and they are contacting my Neurologist because they
claim it induces seizures (there has been no evidence of that) I want to
request an outside AAC eval (their AAC is in house within district). Again we
finally got the device and now I'm still having to battle for support at
school! Need ideas justifying outside AAC eval. Not willing to set my
daughter up for failure with a team that doesn't believe in her. You would think
saving the school district $20,000 and obtaining my own device would be a
good thing. Apparently not. Thoughts??
--
***What is Rett Syndrome? Watch this video. http://youtu.be/bBfPG2aQflE
***Want to make a difference for millions of girls? Visit
http://www.mikyla-cure.org/
--
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Dawn Caldwell <dcaldw...@comcast.net> Nov 05 03:38PM
How old is your child? What was your child using before at home and at school? What is in the IEP? Why is the issue cropping up now - school has been in session awhile. Did you just get the device? Is this a new school for your child? Was the team aware that you were purchasing this device? Did you coordinate a training plan with the AAC person for the school team? How high up the chain of command have you gone?
I would suggest you contact an attorney familiar with IDEA and your state as daily communication is vital to education . The Peak Parent center ( www.peakparent.org ) is also a good resource (Shirley Swope). Either one should be able to provide you with the IDEA law that supports AAC use and a school's responsibilities. Knowing the law as it pertains to your child's rights is imperative in getting what you need for your child.
Depending on what has already been done, m y understanding of IEE is that you would have to allow the SWAAC team to do an assessment. If you did not agree with the assessment results, you can request an IEE. The IEE is then paid for by the district. They can provide you with some providers for the IEE (that may have contracted with the district in the past) but you do not have to use their providers. (You would have to find a provider that would agree to contract with your district.) No district is required to accept the results of outside providers (at anytime) but, if they pay for the IEE, it is more likely that they may accept some or all of the results.
You could also consider mediation or an IEP meeting.
An attorney can help you navigate the specifics of your situation based upon the history you have and address the immediate issue of daily communication via the right method - IEE, assessment, mediation, IEP meeting, etc.. .
IMHO, it is very difficult to find the right attorney or advocate but once you have the right person on your team who can navigate the law (and how it has been applied/interpreted by the state and federal courts) , it makes a world of difference.
Dawn
----- Original Message -----
From: Mcda...@aol.com
To: aacpa...@googlegroups.com
Cc: ann...@gmail.com
Sent: Tuesday, November 5, 2013 8:04:13 AM
Subject: Re: School Unsupportive of AAC Device
Hi, something similar happen to us years ago. Ask them if they have people sign a release for electric wheel chairs or hearing devices ETC? Are they afraid your child will have seizures or are they afraid other students in her class will have them from her eyegaze device? We ended up filing for due process because they said our son couldn't use his SGD in the preschool setting. Our school district paid for the warranty for the device and we were told if it was broken during school time their insurance would cover it.
What state are you in? In our state of Massachusetts (home of the World Series Champs the Boston Red Soxs) You don't have to state a reason for an IEE. I would assume some you consulted outside said she should use an eyegaze right? Are they refusing to accept that.....sounds like it but just want to make sure. Keep us all posted and hopefully others will reply that are much better educated then I am about this.
Mary-Clare
In a message dated 11/5/2013 9:41:34 A.M. Eastern Standard Time, ann...@gmail.com writes:
Need help!
I have an eyegaze device that school is unsupportive of me bringing to school. They want me to sign a waiver of liability should anything happen it they are not liable and they are contacting my Neurologist because they claim it induces seizures (there has been no evidence of that) I want to request an outside AAC eval (their AAC is in house within district). Again we finally got the device and now I'm still having to battle for support at school! Need ideas justifying outside AAC eval. Not willing to set my daughter up for failure with a team that doesn't believe in her. You would think saving the school district $20,000 and obtaining my own device would be a good thing. Apparently not. Thoughts??
--
***What is Rett Syndrome? Watch this video. http://youtu.be/bBfPG2aQflE
***Want to make a difference for millions of girls? Visit http://www.mikyla-cure.org/
--
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Weerunskids <weeru...@aol.com> Nov 05 10:56AM -0500
The school system is required by the federal government to either provide device OR warranty for family provided device. We had the exact same fight with our daughters school .....when I get home I will send you the law information that states the school requirements.
Merlie
Chris and Vicky Opipari <cvop...@gmail.com> Nov 05 09:01AM -0700
Has the in-house AAC done an AAC eval? If so, then you can disagree with
their finding and ask for an IEE. FAPE (Free Appropriate Public Education)
is key and if what they are providing for your daughter is not appropriate
for her needs, then you have every right to disagree and ask for the IEE.
By the way, why is the AAC not wanting to support the eye gaze device?
It's always good to understand where they are coming from - do they not
know the device and don't want to look incompetent or they're scared of it?
Sometimes finding solutions and letting them know you'll work with them
rather than fighting can be more conducive to getting what you want for
your student. It sounds like there is a lot of fear involved on the
district's part.
A lot of schools are concerned when an expensive device gets brought in
because they cannot insure it, and they are worried if it gets damaged then
they will get sued.
Do you have an outside therapist working with your daughter on using the
device? If so - they might be a good resource for the school and a good
way to provide data to the schools that it is appropriate for your daughter.
Vicky
Weerunskids <weeru...@aol.com> Nov 05 11:01AM -0500
Mary-Claire was extremely helpful to our family years ago when we fought the school system about Jessie's device. So glad we are done with battling school now that our daughter is an adult.
Merlie
Mcda...@aol.com Nov 05 11:34AM -0500
Merlie.........you have been on my mind so much lately with the Red Sox
winning! Thank you for your kind words......everyone keep me in your
thoughts and prayers as the SD again filed DP against me for keeping Lee
eligablitable for special education services.......yes you read that right! I did
it pro se.......now writing up the closing arguments! Due Monday of
Thanksgiving week............M-C
In a message dated 11/5/2013 11:01:42 A.M. Eastern Standard Time,
weeru...@aol.com writes:
Mary-Claire was extremely helpful to our family years ago when we fought
the school system about Jessie's device. So glad we are done with battling
school now that our daughter is an adult.
Merlie
On Nov 5, 2013, at 10:38 AM, Dawn Caldwell <_dcald...@comcast.net_
(mailto:dcaldw...@comcast.net) > wrote:
How old is your child? What was your child using before at home and at
school? What is in the IEP? Why is the issue cropping up now - school has
been in session awhile. Did you just get the device? Is this a new school
for your child? Was the team aware that you were purchasing this device?
Did you coordinate a training plan with the AAC person for the school team?
How high up the chain of command have you gone?
I would suggest you contact an attorney familiar with IDEA and your state
as daily communication is vital to education. The Peak Parent center
(_www.peakparent.org_ (http://www.peakparent.org/) ) is also a good resource
(Shirley Swope). Either one should be able to provide you with the IDEA law
that supports AAC use and a school's responsibilities. Knowing the law as
it pertains to your child's rights is imperative in getting what you need
for your child.
Depending on what has already been done, my understanding of IEE is that
you would have to allow the SWAAC team to do an assessment. If you did not
agree with the assessment results, you can request an IEE. The IEE is then
paid for by the district. They can provide you with some providers for
the IEE (that may have contracted with the district in the past) but you do
not have to use their providers. (You would have to find a provider that
would agree to contract with your district.) No district is required to
accept the results of outside providers (at anytime) but, if they pay for the
IEE, it is more likely that they may accept some or all of the results.
You could also consider mediation or an IEP meeting.
An attorney can help you navigate the specifics of your situation based
upon the history you have and address the immediate issue of daily
communication via the right method - IEE, assessment, mediation, IEP meeting, etc...
IMHO, it is very difficult to find the right attorney or advocate but once
you have the right person on your team who can navigate the law (and how
it has been applied/interpreted by the state and federal courts), it makes a
world of difference.
Dawn
____________________________________
From: _Mcda...@aol.com_ (mailto:Mcda...@aol.com)
To: aacpa...@googlegroups.com
Cc: ann...@gmail.com
Sent: Tuesday, November 5, 2013 8:04:13 AM
Subject: Re: School Unsupportive of AAC Device
Hi, something similar happen to us years ago. Ask them if they have
people sign a release for electric wheel chairs or hearing devices ETC? Are
they afraid your child will have seizures or are they afraid other students
in her class will have them from her eyegaze device? We ended up filing
for due process because they said our son couldn't use his SGD in the
preschool setting. Our school district paid for the warranty for the device and
we were told if it was broken during school time their insurance would cover
it.
What state are you in? In our state of Massachusetts (home of the
World Series Champs the Boston Red Soxs) You don't have to state a reason for
an IEE. I would assume some you consulted outside said she should use an
eyegaze right? Are they refusing to accept that.....sounds like it but just
want to make sure. Keep us all posted and hopefully others will reply
that are much better educated then I am about this.
Mary-Clare
In a message dated 11/5/2013 9:41:34 A.M. Eastern Standard Time,
_ann...@gmail.com_ (mailto:ann...@gmail.com) writes:
Need help!
I have an eyegaze device that school is unsupportive of me bringing to
school. They want me to sign a waiver of liability should anything happen
it they are not liable and they are contacting my Neurologist because they
claim it induces seizures (there has been no evidence of that) I want to
request an outside AAC eval (their AAC is in house within district). Again we
finally got the device and now I'm still having to battle for support at
school! Need ideas justifying outside AAC eval. Not willing to set my
daughter up for failure with a team that doesn't believe in her. You would
think saving the school district $20,000 and obtaining my own device would be a
good thing. Apparently not. Thoughts??
--
***What is Rett Syndrome? Watch this video. http://youtu.be/bBfPG2aQflE
***Want to make a difference for millions of girls? Visit
http://www.mikyla-cure.org/
--
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Weerunskids <weeru...@aol.com> Nov 05 11:56AM -0500
--
If there was ever a parent who could make the system sit up and take notice it would be you! Sending positive thoughts your way.
BTW are you on Facebook? Look me up on there so you can see how we made Jessies wheelchair into a Harley Davidson for Halloween ..... She had the leather jacket and even a leather skull cap lol
Merlie Jackson
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