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Suzanne M Johnson
Jun 1, 1999, 3:00:00 AM6/1/99
to
Hello to all
I am guilty of lurking for quite a while now so I thought I'd introduce
myself.....
I have had FM for years but was just diagnosed last week and right
now
life sucks (sorry, if that offends anyone, I have learned alot does) I
really
feel awful, my legs are not trustworthy, they feel like they are falling
apart
every time I lift them off the ground (anyone??) and ache like crazy,
at
this point all I want to do is go to sleep, but of course that is out of
the question!!
I am 54 w/f married, wonderful husband (am I lucky or what!!??) great
support, but I feel I'm cheating him!! We just can't do and go anymore
and its MY fault. I guess its a I feel sorry for me day. Some of you
seem
so strong and I need that right now, since I was the strong one in the
family
before I fell apart! Well I want you to know I read at least some of the
posts
everyday and you for the most part (GRIN) have helped me cope .
Thanks......there is a Suzanne I have seen so I'll be cerebell
mia...@my-deja.com
Jun 1, 1999, 3:00:00 AM6/1/99
to
In article <oiU43.398$ku5....@typ42b.nn.bcandid.com>,
"Suzanne M Johnson" <cere...@funport.net> wrote:
> This is a multi-part message in MIME format.
>
> ------=_NextPart_000_0017_01BEAC2C.81085CE0
> Content-Type: text/plain;
> charset="iso-8859-1"
> Content-Transfer-Encoding: quoted-printable
>
> Hello to all
> I am guilty of lurking for quite a while now so I thought I'd
introduce =
> myself.....
> I have had FM for years but was just diagnosed last week and right now
> life sucks (sorry, if that offends anyone, I have learned alot does)
I =
> really
> feel awful, my legs are not trustworthy, they feel like they are
falling =
> apart
> every time I lift them off the ground (anyone??) and ache like crazy,
at
> this point all I want to do is go to sleep, but of course that is out
of =
> the question!!
> I am 54 w/f married, wonderful husband (am I lucky or what!!??) great
> support, but I feel I'm cheating him!! We just can't do and go
anymore=20
> and its MY fault. I guess its a I feel sorry for me day. Some of you =
> seem
> so strong and I need that right now, since I was the strong one in
the =
> family
> before I fell apart! Well I want you to know I read at least some of
the =
> posts
> everyday and you for the most part (GRIN) have helped me cope .
> Thanks......there is a Suzanne I have
seen =
> so I'll be cerebell
> =20
>
> ------=_NextPart_000_0017_01BEAC2C.81085CE0
> Content-Type: text/html;
> charset="iso-8859-1"
> Content-Transfer-Encoding: quoted-printable
>
> <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
> <HTML><HEAD>
> <META content=3D"text/html; charset=3Diso-8859-1" =
> http-equiv=3DContent-Type><BASE=20
> href=3D"file://C:\Program Files\Common Files\Microsoft =
> Shared\Stationery\">
> <STYLE></STYLE>
>
> <META content=3D"MSHTML 5.00.2614.3401" name=3DGENERATOR></HEAD>
> <BODY background=3D"">
> <DIV>Hello to all</DIV>
> <DIV>I am guilty of lurking for quite a while now so I thought I'd =
> introduce=20
> myself.....</DIV>
> <DIV>I have had FM for years but was just diagnosed last week and
right=20
> now</DIV>
> <DIV>life sucks (sorry, if that offends anyone, I have learned alot =
> does) I=20
> really</DIV>
> <DIV>feel awful, my legs are not trustworthy, they feel like they are
=
> falling=20
> apart</DIV>
> <DIV>every time I lift them off the ground (anyone??) and ache like =
> crazy,=20
> at</DIV>
> <DIV>this point all I want to do is go to sleep, but of course that
is =
> out of=20
> the question!!</DIV>
> <DIV>I am 54 w/f married, wonderful husband (am I lucky or what!!??) =
> great</DIV>
> <DIV>support, but I feel I'm cheating him!! We just can't do and go =
> anymore=20
> </DIV>
> <DIV>and its MY fault. I guess its a I feel sorry for me day. Some of
=
> you=20
> seem</DIV>
> <DIV>so strong and I need that right now, since I was the strong one
in =
> the=20
> family</DIV>
> <DIV>before I fell apart! Well I want you to know I read at least
some =
> of the=20
> posts</DIV>
> <DIV>everyday and you for the most part (GRIN) have helped me cope =
> .</DIV>
>
<DIV> &
n=
>
bsp; &n
b=
> sp; =20
> Thanks......there is a Suzanne I have seen so I'll be =
> cerebell</DIV> =20
> </BODY></HTML>
>
> ------=_NextPart_000_0017_01BEAC2C.81085CE0--
>
>Hi Suzanne, I too am new here, I also really like WebMd have you tried
their boards? I was DX a little over 4 mos. ago, but have had FMS for
many years, just couldn't find the right Dr.. I am 46 and have a 19 yr.
old son, married to a really great guy that is trying so hard to learn
and understand what is going on. I would say we are truly blessed, I
know women whose families still don't believe anything is wrong with
them even after a proper DX. I have tried several different meds, and
am now on Klonopin, 2MG. at night , Soma as needed and Vicodin for the
really bad times, I just weaned myself off Wellbutrin a few weeks ago.
I think the Klonopin is going to have to go. Something is making me
depressed and that has to be the culprit, so will experiment with
something else soon as I go see my Rheum., she is wonderful. It is hard
to keep your chin up sometimes when you just feel so ***** all the
time. I am reading everything I can find and trying to educate myself.
I walk almost everyday for 20 to 30 min. and we just started a T'AI CHI
class last night, I am hoping that will help. Lots of luck to you,
there are a lot of nice people out here more than willing to give some
good advice.Barbara
"Suzanne M Johnson" <cere...@funport.net> wrote:
> This is a multi-part message in MIME format.
>
> ------=_NextPart_000_0017_01BEAC2C.81085CE0
> Content-Type: text/plain;
> charset="iso-8859-1"
> Content-Transfer-Encoding: quoted-printable
>
> Hello to all
> I am guilty of lurking for quite a while now so I thought I'd
> myself.....
> I have had FM for years but was just diagnosed last week and right now
> life sucks (sorry, if that offends anyone, I have learned alot does)
> really
> feel awful, my legs are not trustworthy, they feel like they are
> apart
> every time I lift them off the ground (anyone??) and ache like crazy,
at
> this point all I want to do is go to sleep, but of course that is out
> the question!!
> I am 54 w/f married, wonderful husband (am I lucky or what!!??) great
> support, but I feel I'm cheating him!! We just can't do and go
> and its MY fault. I guess its a I feel sorry for me day. Some of you =
> seem
> so strong and I need that right now, since I was the strong one in
> family
> before I fell apart! Well I want you to know I read at least some of
> posts
> everyday and you for the most part (GRIN) have helped me cope .
> Thanks......there is a Suzanne I have
> so I'll be cerebell
>
> ------=_NextPart_000_0017_01BEAC2C.81085CE0
> Content-Type: text/html;
> charset="iso-8859-1"
> Content-Transfer-Encoding: quoted-printable
>
> <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
> <HTML><HEAD>
> <META content=3D"text/html; charset=3Diso-8859-1" =
> http-equiv=3DContent-Type><BASE=20
> href=3D"file://C:\Program Files\Common Files\Microsoft =
> Shared\Stationery\">
> <STYLE></STYLE>
>
> <META content=3D"MSHTML 5.00.2614.3401" name=3DGENERATOR></HEAD>
> <BODY background=3D"">
> <DIV>Hello to all</DIV>
> <DIV>I am guilty of lurking for quite a while now so I thought I'd =
> introduce=20
> myself.....</DIV>
> <DIV>I have had FM for years but was just diagnosed last week and
right=20
> now</DIV>
> <DIV>life sucks (sorry, if that offends anyone, I have learned alot =
> does) I=20
> really</DIV>
> <DIV>feel awful, my legs are not trustworthy, they feel like they are
=
> falling=20
> apart</DIV>
> <DIV>every time I lift them off the ground (anyone??) and ache like =
> crazy,=20
> at</DIV>
> <DIV>this point all I want to do is go to sleep, but of course that
is =
> out of=20
> the question!!</DIV>
> <DIV>I am 54 w/f married, wonderful husband (am I lucky or what!!??) =
> great</DIV>
> <DIV>support, but I feel I'm cheating him!! We just can't do and go =
> anymore=20
> </DIV>
> <DIV>and its MY fault. I guess its a I feel sorry for me day. Some of
=
> you=20
> seem</DIV>
> <DIV>so strong and I need that right now, since I was the strong one
in =
> the=20
> family</DIV>
> <DIV>before I fell apart! Well I want you to know I read at least
some =
> of the=20
> posts</DIV>
> <DIV>everyday and you for the most part (GRIN) have helped me cope =
> .</DIV>
>
<DIV> &
n=
>
bsp; &n
b=
> sp; =20
> Thanks......there is a Suzanne I have seen so I'll be =
> cerebell</DIV> =20
> </BODY></HTML>
>
> ------=_NextPart_000_0017_01BEAC2C.81085CE0--
>
>Hi Suzanne, I too am new here, I also really like WebMd have you tried
their boards? I was DX a little over 4 mos. ago, but have had FMS for
many years, just couldn't find the right Dr.. I am 46 and have a 19 yr.
old son, married to a really great guy that is trying so hard to learn
and understand what is going on. I would say we are truly blessed, I
know women whose families still don't believe anything is wrong with
them even after a proper DX. I have tried several different meds, and
am now on Klonopin, 2MG. at night , Soma as needed and Vicodin for the
really bad times, I just weaned myself off Wellbutrin a few weeks ago.
I think the Klonopin is going to have to go. Something is making me
depressed and that has to be the culprit, so will experiment with
something else soon as I go see my Rheum., she is wonderful. It is hard
to keep your chin up sometimes when you just feel so ***** all the
time. I am reading everything I can find and trying to educate myself.
I walk almost everyday for 20 to 30 min. and we just started a T'AI CHI
class last night, I am hoping that will help. Lots of luck to you,
there are a lot of nice people out here more than willing to give some
good advice.Barbara
Sent via Deja.com http://www.deja.com/
Share what you know. Learn what you don't.
Margaret Day
Jun 2, 1999, 3:00:00 AM6/2/99
to
Suzanne M Johnson <cere...@funport.net> wrote in message news:oiU43.398$ku5....@typ42b.nn.bcandid.com...Hello to allI am guilty of lurking for quite a while now so I thought I'd introduce myself.....
I have had FM for years but was just diagnosed last week and right now
life sucks (sorry, if that offends anyone, I have learned alot does) I reallyfeel awful, my legs are not trustworthy, they feel like they are falling apart
every time I lift them off the ground (anyone??) and ache like crazy, at
this point all I want to do is go to sleep, but of course that is out of the question!!
I am 54 w/f married, wonderful husband (am I lucky or what!!??) greatsupport, but I feel I'm cheating him!! We just can't do and go anymore
and its MY fault. I guess its a I feel sorry for me day. Some of you seemso strong and I need that right now, since I was the strong one in the familybefore I fell apart! Well I want you to know I read at least some of the posts
everyday and you for the most part (GRIN) have helped me cope .
Thanks......there is a Suzanne I have seen so I'll be cerebell
Margaret Day
Jun 2, 1999, 3:00:00 AM6/2/99
to
hi there,
I read your letter & I think you would be cheating your self if
you didn't rest.I know how the guilt feels I had it for a long time & it
still comes back at times. You will need , take help when you can , educate your
family & friends about FMS, they need to know really what you are going
through. We all know it isn't easy. I have a girl who is 3yrs old & a boy
who is 5 yrsold, it's hard because I can't give them the attention they
deserve.I have to get better so I can be the mother they should have, so you
have to give into the fatigue & rest.I hope you are feeling abit
better soon, speak to your husband, he'll understand .bye for now
,Margaret
BetsyD
Jun 2, 1999, 3:00:00 AM6/2/99
to Suzanne M Johnson
Hi Suzanne,
I'm sorry that you have this fun stuff. It does feel as if it's our fault that we cannot do the same things we used to. Of course it's NOT our fault.
We'd be overjoyed to be able to return to our former activities.
You need some written info for you and your husband to read so that the 'fault' part no longer is in the picture.
Best of luck, and don't worry too much about 'offending'. We all get touchy at times, but there's usually no harm done.
Smiles, BetsyD
I'm sorry that you have this fun stuff. It does feel as if it's our fault that we cannot do the same things we used to. Of course it's NOT our fault.
We'd be overjoyed to be able to return to our former activities.
You need some written info for you and your husband to read so that the 'fault' part no longer is in the picture.
Best of luck, and don't worry too much about 'offending'. We all get touchy at times, but there's usually no harm done.
Smiles, BetsyD
Suzanne M Johnson wrote:
Hello to allI am guilty of lurking for quite a while now so I thought I'd introduce myself.....I have had FM for years but was just diagnosed last week and right nowlife sucks (sorry, if that offends anyone, I have learned alot does) I reallyfeel awful, my legs are not trustworthy, they feel like they are falling apartevery time I lift them off the ground (anyone??) and ache like crazy, atthis point all I want to do is go to sleep, but of course that is out of the question!!I am 54 w/f married, wonderful husband (am I lucky or what!!??) greatsupport, but I feel I'm cheating him!! We just can't do and go anymoreand its MY fault. I guess its a I feel sorry for me day. Some of you seemso strong and I need that right now, since I was the strong one in the familybefore I fell apart! Well I want you to know I read at least some of the postseveryday and you for the most part (GRIN) have helped me cope . Thanks......there is a Suzanne I have seen so I'll be cerebell
--
MZ
~DCP~Star~
Jun 2, 1999, 3:00:00 AM6/2/99
to
Hello Suzanne,
I just wanted to say welcome to the group.
~Diane~
"The most beautiful thing we can experience is the mysterious. It is the
source of all true art and science" Albert Einstein
TCrab13
Jun 3, 1999, 3:00:00 AM6/3/99
to
>Subject: Re: Just to say HELLO
>From: marge...@webtv.net (Marge Young)
>Date: 6/2/99 7:42 PM Mexico Standard Time
>Message-id: <3366-375...@newsd-293.iap.bryant.webtv.net>
>
>Hello, I to have Fibromyalgia and have had it for 15 or more years. I
>was diagnosed about a year ago. I have tried everything under the sun
>to make me feel better and nothing worked until now for a month I have
>been almost pain free I have energy again and it's wonderful. If you
>would like to know more infor please e-mail me at
>www.mar...@webtv.net.
>Marge
>
Marge....usually on this NG when we see someone post to a reply with a great
and wonderful product that has helped them to be almost pain free, usually it
is spam. if yo are NOT spamming I apologize in advance....
>From: marge...@webtv.net (Marge Young)
>Date: 6/2/99 7:42 PM Mexico Standard Time
>Message-id: <3366-375...@newsd-293.iap.bryant.webtv.net>
>
>Hello, I to have Fibromyalgia and have had it for 15 or more years. I
>was diagnosed about a year ago. I have tried everything under the sun
>to make me feel better and nothing worked until now for a month I have
>been almost pain free I have energy again and it's wonderful. If you
>would like to know more infor please e-mail me at
>www.mar...@webtv.net.
>Marge
>
Marge....usually on this NG when we see someone post to a reply with a great
and wonderful product that has helped them to be almost pain free, usually it
is spam. if yo are NOT spamming I apologize in advance....
If you are not, it would be a good idea to post to the entire group to what it
is that has turned your life around....
Thanks...
Teresa
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