HCP Lifespan 3.0 release

[quentin devignes]

Good morning, 

I hope this message finds you well. We are currently working on a project that requires using the HCP Lifespan data. However, we would like to have access to the SSAGA data. I have read that this data will be part of the Lifespan 3.0 release, which may occur in fall 2023. Do you have more information regarding this potential release? Is it still scheduled for fall 2023, and, if yes, do you have a rough idea of when it is going to happen? This information would help us draw up a provisional timeline for our project. 

Thank you for your help!

Best,

Quentin 

[Elam, Jennifer]

Hi Quentin,

We expect the Lifespan 3.0 Release to occur this fall, likely in November, unless there is some issue that arises.

Best,

Jenn

Jennifer Elam, Ph.D.
Scientific Outreach, Human Connectome Project
Washington University School of Medicine
Department of Neuroscience, Box 8108
660 South Euclid Avenue
St. Louis, MO 63110
314-362-9387
el...@wustl.edu
www.humanconnectome.org

---

From: quentin devignes <qdev...@gmail.com>
Sent: Wednesday, September 13, 2023 10:00 AM
To: HCP-Users <hcp-...@humanconnectome.org>
Subject: [hcp-users] HCP Lifespan 3.0 release

 

* External Email - Caution *

--
You received this message because you are subscribed to the Google Groups "HCP-Users" group.
To unsubscribe from this group and stop receiving emails from it, send an email to hcp-users+...@humanconnectome.org.
To view this discussion on the web visit https://groups.google.com/a/humanconnectome.org/d/msgid/hcp-users/363e869d-543d-4795-b98d-be42f8c777b3n%40humanconnectome.org.

 

---

The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail.

[Tamás Andrei Földes]

Greetings,

When will there be an announcement of the contents of the upcoming release 3.0?

Thanks,

Tamas

[Elam, Jennifer]

The Lifespan 3.0 release on the NIMH Data Archive (NDA) will include: 

unprocessed and preprocessed imaging and behavioral data for cross sectional visit 1 (V1) data on: 

      1306 HCP-Development (ages 5-21) subjects

      1199 HCP-Aging (ages 35-100+) subjects

Longitudinal V2 (216) and V3 (179) data for peripubertal HCP-Development subjects. 

Longitudinal V2 data for 599 HCP-Aging subjects across the full range of ages.

Imaging modalities include structural, resting state fMRI, task fMRI for 3 tasks/project, diffusion, and arterial spin labeling.

The formal announcement/documentation of the full contents will occur at the time of release.

Feel free to ask more questions about what will be included, processing, access etc.

Best,

Jenn

Jennifer Elam, Ph.D.
Scientific Outreach, Human Connectome Project
Washington University School of Medicine
Department of Neuroscience, Box 8108
660 South Euclid Avenue
St. Louis, MO 63110
314-362-9387
el...@wustl.edu
www.humanconnectome.org

---

From: Tamás Andrei Földes <foldes...@gmail.com>
Sent: Thursday, September 14, 2023 10:48 AM
To: HCP-Users <hcp-...@humanconnectome.org>
Cc: Elam, Jennifer <el...@wustl.edu>; qdev...@gmail.com <hcp-...@humanconnectome.org>
Subject: Re: [hcp-users] HCP Lifespan 3.0 release

 

To view this discussion on the web visit https://groups.google.com/a/humanconnectome.org/d/msgid/hcp-users/6785bdf5-b3b5-4196-92ae-cc416aab0c48n%40humanconnectome.org.

[Tamás Andrei Földes]

Thank you for the quick reply! 

I would be very interested in the average time interval between V1-V2 and V2-V3? 

I remember seeing a planned timeline on the website once, but I can't seem to find it at the moment...

To view this discussion on the web visit https://groups.google.com/a/humanconnectome.org/d/msgid/hcp-users/CH3PR02MB10309ACF1512D417F09039CB2CCF7A%40CH3PR02MB10309.namprd02.prod.outlook.com.

[Elam, Jennifer]

I don't have final averages, but when we were scheduling HCP-Development the V1-V2 time was 15 months +/- 6 weeks and the V1-V3 time was 30 months +/- 6 weeks.

For HCP-Aging, V1-V2 was 22 months +/- 6 weeks.

Best,

Jenn

Jennifer Elam, Ph.D.
Scientific Outreach, Human Connectome Project
Washington University School of Medicine
Department of Neuroscience, Box 8108
660 South Euclid Avenue
St. Louis, MO 63110
314-362-9387
el...@wustl.edu
www.humanconnectome.org

---

From: Tamás Andrei Földes <foldes...@gmail.com>

Sent: Thursday, September 14, 2023 1:51 PM
To: hcp-...@humanconnectome.org <hcp-...@humanconnectome.org>

To view this discussion on the web visit https://groups.google.com/a/humanconnectome.org/d/msgid/hcp-users/CANn%2BJnYq5amNXn-0Zx2gjjYRywFKVoxRgTNAGCg2zeSvSn3TBw%40mail.gmail.com.

[cindy]

Hello,

The new release for HCP-Aging will add 1199 new subjects? or that number is counting the already 725 available from release 2.0?

Best,

Cindy Lucero

To view this discussion on the web visit https://groups.google.com/a/humanconnectome.org/d/msgid/hcp-users/CH3PR02MB10309ACF1512D417F09039CB2CCF7A%40CH3PR02MB10309.namprd02.prod.outlook.com.

[Elam, Jennifer]

Hi Cindy, 

The 1199 includes the 725 already released. However,  there are 599 longitudinal (visit 2) sessions that will also be included. 

Best, 

Jenn

Jennifer Elam, Ph.D.
Scientific Outreach, Human Connectome Project
Washington University School of Medicine
Department of Neuroscience, Box 8108
660 South Euclid Avenue
St. Louis, MO 63110
314-362-9387
el...@wustl.edu
www.humanconnectome.org

---

From: cindy <cindyluc...@gmail.com>
Sent: Wednesday, October 11, 2023 11:33 AM
To: hcp-...@humanconnectome.org <hcp-...@humanconnectome.org>

To view this discussion on the web visit https://groups.google.com/a/humanconnectome.org/d/msgid/hcp-users/CADBoXTayd1jjgWf0h55nKnSb2yX7UuQegrHieSxtCsw108-xyQ%40mail.gmail.com.

[Elam, Jennifer]

Hi Sina,

We are hoping for a February release, but the timing is in the hands of the NDA. We have started the process of preparing the release with them but are awaiting them for the next step that will allow us to verify that the data packages we will release contain the correct data.

Best,

Jenn

Jennifer Elam, Ph.D.
Scientific Outreach, Human Connectome Project
Washington University School of Medicine
Department of Neuroscience, Box 8108
660 South Euclid Avenue
St. Louis, MO 63110
314-362-9387
el...@wustl.edu
www.humanconnectome.org

---

From: Sina Mansour L. <sina.manso...@gmail.com>
Sent: Tuesday, January 16, 2024 1:20 AM
To: HCP-Users <hcp-...@humanconnectome.org>
Cc: Elam, Jennifer <el...@wustl.edu>; cindy <cindyluc...@gmail.com>

Subject: Re: [hcp-users] HCP Lifespan 3.0 release

* External Email - Caution *

Hi everyone,

I hope this message finds you well.

I am reaching out to inquire about any updates regarding the release date. I am currently engaged in an analysis, currently based on release 2.0, and it seems that the upcoming release could significantly enhance the outcomes. Could you please provide an estimate for the release date or any information on when we can expect it?

Your assistance is greatly appreciated.

Thank you,
Sina

[Elsie Lin]

Hello, 

It's great to hear that Lifespan 3.0 is about to be released. 

As far as I'm aware, the Lifespan 2.0 task fMRI data did not include the necessary .fsf files for the HCP Pipeline task analysis. I'm curious if these files will be included with the 3.0 release. If not, what would you recommend for obtaining these .fsf files? Do you suggest creating these files with FEAT ourselves?

Best, 

Yi-Hsuan 

el...@wustl.edu 在 2024年1月16日 星期二晚上9:15:38 [UTC+8] 的信中寫道：

[Harms, Michael]

We have some possible models that people can choose.  We’ll get those fsf templates into the HCPpipelines in GitHub at some point relatively soon.

 

-- 

Michael Harms, Ph.D.

-----------------------------------------------------------

Professor of Psychiatry

Washington University School of Medicine

Department of Psychiatry, Box 8134

660 South Euclid Ave.                        Tel: 314-747-6173

St. Louis, MO  63110                          Email: mha...@wustl.edu

To view this discussion on the web visit https://groups.google.com/a/humanconnectome.org/d/msgid/hcp-users/d9f03a15-a379-447a-8271-763e8396bffbn%40humanconnectome.org.

[Elam, Jennifer]

Hi Sina,

Exact age in months will be included for all subjects in the LS 3.0 Release. We are waiting on the NDA to proceed with the release process and are therefore unsure when the release will occur. 

Best, 

Jenn

---

From: Sina Mansour L. <sina.manso...@gmail.com>

Sent: Wednesday, January 24, 2024 2:06 AM
To: Harms, Michael <mha...@wustl.edu>
Cc: hcp-...@humanconnectome.org <hcp-...@humanconnectome.org>; Elam, Jennifer <el...@wustl.edu>; cindy <cindyluc...@gmail.com>

Subject: Re: [hcp-users] HCP Lifespan 3.0 release

* External Email - Caution *

Hello,

That sounds great, looking forward to the upcoming data release this Feb.

Speaking of which, release 2.0 indicates individuals aged 90+ as 100 because it was considered PHI. I have read in the threads that there is now IRB approval to share the exact ages of those individuals. Do you know whether that information (chronological age of those above 90) will be included in release 3?

Thanks,

Sina

	Sina Mansour L.   Research Fellow
	National University of Singapore
	Computational Brain Imaging Group

[Keith Jamison]

Hi Jenn,

Do you know if any of the following birth-control and hormone-related fields are going to be populated for the HCP-Aging Lifespan 3.0 release? They are in the "mchq01.txt" record but currently all empty.

mchq_36: "Do you currently use a hormonal contraceptive (oral, implant, patch, or hormone-secreting IUD) or are you on any hormone therapy?"
mchq_37: "If yes, please list contraceptive using the code below"
bcpever: "ever taken birth control pills or progesterone"
rlhq2q1: "Current use of ORAL contraceptive pills?"
bc_type: "What kind of birth control did you use?"
bc_type_specify: "Please specify the brand of pill, injection, IUD, implant, etc. you used:"
gynecological_hist_3*: additional hormone-related questions

Thanks!

-Keith

[Elam, Jennifer]

Hi Keith,

We did not ask about birth control or contraception except in relation to the Straw 10 menopause questions that are already released in the mchq01 NDA structure. So we don't have data to populate the NDA elements you cite.

Best,

Jenn

Jennifer Elam, Ph.D.
Scientific Outreach, Human Connectome Project
Washington University School of Medicine
Department of Neuroscience, Box 8108
660 South Euclid Avenue
St. Louis, MO 63110
314-362-9387
el...@wustl.edu
www.humanconnectome.org

---

From: Keith Jamison <keith....@gmail.com>
Sent: Friday, February 2, 2024 2:33 PM
To: HCP-Users <hcp-...@humanconnectome.org>
Cc: Elam, Jennifer <el...@wustl.edu>; hcp-...@humanconnectome.org <hcp-...@humanconnectome.org>; cindy <cindyluc...@gmail.com>; Sina Mansour L. <sina.manso...@gmail.com>; Harms, Michael <mha...@wustl.edu>

[Elam, Jennifer]

Hi Stefano,

We have had another issue on the NDA side that we are told they are working on fixing. Unfortunately we have no control of their timing. We are expediting all the release steps on our side so there are no delays from our end. Hopefully the release date will be in a few weeks. 

Best, 

Jenn

Jennifer Elam, Ph.D.
Scientific Outreach, Human Connectome Project
Washington University School of Medicine
Department of Neuroscience, Box 8108
660 South Euclid Avenue
St. Louis, MO 63110
314-362-9387
el...@wustl.edu
www.humanconnectome.org

---

From: Stefano Vicentin <stefano....@studenti.unipd.it>
Sent: Thursday, April 11, 2024 5:29 AM
To: HCP-Users <hcp-...@humanconnectome.org>
Cc: Elam, Jennifer <el...@wustl.edu>; cindy <cindyluc...@gmail.com>; Sina Mansour L. <sina.manso...@gmail.com>; Harms, Michael <mha...@wustl.edu>; Keith Jamison <keith....@gmail.com>

Subject: Re: [hcp-users] HCP Lifespan 3.0 release

* External Email - Caution *

Good morning everyone, 

I was wondering if there are any updates on the release of the HCP Lifespan 3.0. 

Specifically, I would like to have confirmation that the dataset will be released within this month, as previously told me. 

Thanks in advance for your help and support! 

SV

[Stefano Vicentin]

Hi Jennifer, 

Thank you very much for the update.

Since the time for my project is running out, I would like to know if there have been any updates on the new data release date. Alternatively, is there anyone on the NDA side to contact to ask them if they have a planned release time? 

Thank you again for your patience and kindness

SV

[Bram Diamond]

Just circling back on this! What is the expected release dat for HCP-A 3.0?

Cheers,

Bram

[Elam, Jennifer]

Hi Bram and all,

As you've probably learned by now,  it is hard for us to give an accurate estimate due to the steps we have to coordinate with NDA. However, the list of remaining steps is smaller and I now have some bandwidth to push them to get those tasks done and that can help.  

We are also working on an alternative way to share HCA data particularly, which we are hoping to use soon pending some regulatory sign off. Stay tuned, hopefully we'll have some good news in the next several weeks. 

Best, 

Jenn 

---

From: Bram Diamond <bramd...@gmail.com>
Sent: Monday, May 19, 2025 9:16 AM
To: HCP-Users <hcp-...@humanconnectome.org>
Cc: Stefano Vicentin <stefano....@studenti.unipd.it>; Elam, Jennifer <el...@wustl.edu>; cindy <cindyluc...@gmail.com>; Sina Mansour L. <sina.manso...@gmail.com>; Harms, Michael <mha...@wustl.edu>; Keith Jamison <keith....@gmail.com>

[Elam, Jennifer]

Hi Guilia,

The descriptive text before that set of answers says:

A. Have you ever taken any medications prescribed to you by a doctor for 12 months or longer for the following reasons:

DO NOT COUNT OTC. (over the counter medications)

 

Then for mh6a6 6. Women Only: For birth control?

 

We will add that contextual information back into the data dictionary as the descriptive variable mh6a.

 

Best,

Jenn

 

________________________________________

Jennifer Elam, Ph.D.
Scientific Outreach, Human Connectome Project
Washington University School of Medicine

el...@wustl.edu
www.humanconnectome.org

 

From: Giulia Lorenzon <giulil...@gmail.com>
Date: Friday, November 14, 2025 at 4:04 PM
To: HCP-Users <hcp-...@humanconnectome.org>
Cc: Elam, Jennifer <el...@wustl.edu>, Stefano Vicentin <stefano....@studenti.unipd.it>, cindy <cindyluc...@gmail.com>, Sina Mansour L. <sina.manso...@gmail.com>, Harms, Michael <mha...@wustl.edu>, Keith Jamison <keith....@gmail.com>, bramd...@gmail.com <bramd...@gmail.com>
Subject: Re: [hcp-users] HCP Lifespan 3.0 release

Hi Jenn,

  Does variable mh6a6 refer to ‘ever used’ or ‘currently using’ birth control in the new release?

Thanks 
Giulia

Sina Mansour L.   Research Fellow

	National University of Singapore
	Computational Brain Imaging Group

 

[Elam, Jennifer]

Thanks to the whole team for HCA and AABC that has worked very hard to develop and make the switch to ConnectomeDB powered by BALSA!

We hope the community enjoys analyzing the data. We encourage everyone to share their resulting work as studies on BALSA linked to their publications. 

Best, 

Jenn

---

From: Bram Diamond <bramd...@gmail.com>
Sent: Saturday, November 15, 2025 6:33 AM
To: Elam, Jennifer <el...@wustl.edu>
Cc: HCP-Users <hcp-...@humanconnectome.org>; Stefano Vicentin <stefano....@studenti.unipd.it>; cindy <cindyluc...@gmail.com>; Sina Mansour L. <sina.manso...@gmail.com>; Harms, Michael <mha...@wustl.edu>; Keith Jamison <keith....@gmail.com>

Subject: Re: [hcp-users] HCP Lifespan 3.0 release

 

Wonderful! Thank you for your perseverance, Jenn! :-)

Bram

[Diego Lombardo]

Thank you, Jenn and the whole HCP team, for all the work on the data release. The community greatly appreciates your effort and support. 

Diego

[Bram Diamond]

Wonderful! Thank you for your perseverance, Jenn! :-)

Bram

On May 20, 2025, at 10:05 AM, Elam, Jennifer <el...@wustl.edu> wrote: