Contribute to GA4GH’s Response to the NIH’s Request for Information
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Jessica Seegobin
Feb 4, 2026, 11:01:23 AMFeb 4
to REWS Coordinator
Dear Colleagues,
The National Institutes of Health (NIH) has released a Request for Information on Draft NIH Controlled-Access Data Policy and Proposed Revisions to NIH Genomic Data Sharing Policy. This encompasses their proposed Draft NIH Controlled-Access Data Policy, which outlines expectations for controlled-access data sharing, as well as updates to its NIH Genomic Data Sharing Policy, aimed at eliminating policy redundancies.
The NIH is currently seeking input on both policies, specifically regarding the availability of controlled-access data repositories, the appropriateness of protected data types, and the impacts on imputation servers.
For more details on the request, please refer to the full NIH Notice.
How to contribute
GA4GH will be coordinating a joint response to this request for information. We invite members from the broader GA4GH community to share their feedback.
If you are interested in participating, please provide your comments using the form below by 26 February:
https://forms.ga4gh.org/t/9GkQHmrRoFus
Kindly note that while we cannot guarantee that all comments will be included as-is, your contributions will be carefully reviewed to ensure we capture the key themes and consensus of the community. We will aim to consolidate the community feedback received into a cohesive submission.
https://forms.ga4gh.org/t/9GkQHmrRoFus
Kindly note that while we cannot guarantee that all comments will be included as-is, your contributions will be carefully reviewed to ensure we capture the key themes and consensus of the community. We will aim to consolidate the community feedback received into a cohesive submission.
If you have any questions in the meantime, please feel free to reach out to the REWS team at rews-coo...@ga4gh.org.
Thank you for your support, and we look forward to your contributions.
Best,
Jessica
On behalf of the REWS team
Jessica Seegobin
Feb 23, 2026, 10:57:13 AMFeb 23
to REWS Coordinator
Dear colleagues,
This is a gentle reminder that the deadline for contributions to GA4GH’s response to the NIH Request for Information is approaching on Thursday, 26 February. For more information on the request, please refer to the NIH Notice.
We encourage all members of the GA4GH community to share their feedback. Your input is key to building a unified, joint GA4GH response.
This is a gentle reminder that the deadline for contributions to GA4GH’s response to the NIH Request for Information is approaching on Thursday, 26 February. For more information on the request, please refer to the NIH Notice.
We encourage all members of the GA4GH community to share their feedback. Your input is key to building a unified, joint GA4GH response.
If you haven’t yet had the chance, please submit your comments using the form below:
Thank you for your time and continued engagement in this effort.
Best,
Jessica
On behalf of the REWS team
Jessica Seegobin
Mar 10, 2026, 2:02:36 PM (9 days ago) Mar 10
to REWS Coordinator
Dear colleagues,
Thank you for the thoughtful contributions and input provided during our recent Open Call. Your feedback has been instrumental in shaping GA4GH’s response to the NIH's Request for Information. Reflecting the valuable input from across the community, we are pleased to share the preliminary draft of our joint response.
Next Steps
We invite you to review the attached document, and provide any final comments by 13 March.
If you have any questions in the meantime, please feel free to let us know.
Thank you for your collaboration and ongoing support.
Best,
Jessica
On behalf of the REWS team
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