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The pain is still there

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jdimi...@my-deja.com

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Dec 11, 1999, 3:00:00 AM12/11/99
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I had just had a sobbing experience with a patient. Here it is.

He is a 46 year old man who has had severe pelvic pain for 8 years. He
had urethral burning, dribbling and different degre of ejaculatory
dysfunction. So, he came to see me 6 months ago and he was very
distressed.
"Well, doc," he said, "I know I have chlamydia prostatitis and I know
this is incurable."

At this time he had been prescribed a month's treatment of Roxythromycin
by a dermatologist.

"I know you are the chlamydia man and you can tell me if I have it. But
then," he went on, "I'm afraid I might have pased it on to my children.
I want you to test them."

I agreed and he told me the whole story. He had been going to several
urologists for the last 8 years and he had had multiple courses of
antibiotics which did have some effect at the beginning. Then he began
feeling this awful pain in the prostate area and the groin.

"And then I kept going to several urologists but they all told me "It's
in your head. Go see a psychiatrist"So I did go and told the
psychiatrist "Doc, I have a ball in the bladder" and he replied "Boy,
you have a ball in your brain - you are not going anywhere." So, he put
me in psychiatry - but I am no full and in a week I told him "Doc, the
ball is gone" and so he said "Off you go!" But I know it's there".

That was six months ago. I did perform a PCR and it was positive. I
performed a cystoscopy and an urethral stricture was discovered which
was incised. A biopsy for IC histology was taken and it was positive for
IC.

I suggested a treatment for IC but the patient was not convinced this
was the problem. So, he went to see the Top Urologist in the country.

Now he came back again.
"Well,doc," he said, "the Top Urologist said I must have my prostate
taken out - so I did it. But the PAIN IS STILL THERE. How is that
possible? He told me that the prostate had several areas of
granulamatous inflammation from the intraprostatic injections of
Gentamycine and Ciprofloxacin I had 5 years ago. But I still had the
feeling of a small ball - as large as part of rice inside my bladder.
And I still pee too frequently."

I still insisted on treating IC. Who knows - maybe he'll think it over
this time?

--
Best regards,
Jordan Dimitrakov, MD


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Before you buy.

Daniel Shoskes

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Dec 11, 1999, 3:00:00 AM12/11/99
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Presuming that his prostate was removed by a radical prostatectomy,
this is the third case I am aware of where a man's symptoms were
unchanged following the operation. Dr. Alexander presented the history
of one patient whose pain did resolve after radical prostatectomy
(there was cancer found as well).

Daniel Shoskes MD
UCLA
http://www.ben2.ucla.edu/~dshoskes
Institute for Male Urology
http://www.urol.com

jdimi...@my-deja.com

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Dec 11, 1999, 3:00:00 AM12/11/99
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Yes, it was radical prostatectomy and no cancer was found.

Best regards,
Jordan Dimitrakov, MD

In article <111219991258575559%dsho...@ucla.edu>,

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http://www.hyperreal.art.pl/cypher/remailer/

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Dec 11, 1999, 3:00:00 AM12/11/99
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Daniel Shoskes wrote:

> Presuming that his prostate was removed by a radical prostatectomy,
> this is the third case I am aware of where a man's symptoms were
> unchanged following the operation. Dr. Alexander presented the history
> of one patient whose pain did resolve after radical prostatectomy
> (there was cancer found as well).
>
> Daniel Shoskes MD
> UCLA

Very confusing. Why does Quercetin help some of us so much then? Is it
that some of us have diffuse inflammation, perhaps not isolated to the
prostate but presnent also in the bladder epithelium and urethra? Are
the nerves at fault? Is is a muscle-related phenomenon (doubtful in the
extreme in my case)?

Also confusing is Jordan's recent post of a study showing minimal
inflammation in CPPS pts. Again, why would anti-infammatories and
quercetin help if there was no inflammation? Or was the inflammation so
focal that the biopsies missed it?

BTW, I remember seeing a post here about a year ago by a man who'd had a
rad. prostatectomy and claimed he was absolutely symptom free. He said
it'd changed his life completely, different man, no symptoms.

Daniel Shoskes

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Dec 11, 1999, 3:00:00 AM12/11/99
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In article <4dcdfed269a6259d...@hyperreal.art.pl>,
http://www.hyperreal.art.pl/cypher/remailer/ <m...@hyperreal.art.pl>
wrote:


> Very confusing. Why does Quercetin help some of us so much then? Is it
> that some of us have diffuse inflammation, perhaps not isolated to the
> prostate but presnent also in the bladder epithelium and urethra? Are
> the nerves at fault? Is is a muscle-related phenomenon (doubtful in the
> extreme in my case)?
>
> Also confusing is Jordan's recent post of a study showing minimal
> inflammation in CPPS pts. Again, why would anti-infammatories and
> quercetin help if there was no inflammation? Or was the inflammation so
> focal that the biopsies missed it?
>


I don't know, but Prosta-Q clearly helps patients with or without
inflammation in the EPS, so it may be having a direct effect on
endorphins (we have preliminary research to that effect) or an effect
on the muscles and nerves in the area. As I mentioned in my previous
post, it is very possible that the Krieger study missed intraductal
inflammation in up to a 1/3 of the patients. I have also said that a
clear proportion of men with CPPS have a purely neuromuscular problem
that is not helped by antibiotics, anti-inflammatories, or
phytotherapy.

cp

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Dec 12, 1999, 3:00:00 AM12/12/99
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Dr Dimitrakov,
Could you please explain the symptoms of IC and how it is treated
differently from bacterial prostatitis?
thanks very much
Charlie

jdimi...@my-deja.com wrote:

> Yes, it was radical prostatectomy and no cancer was found.
>
> Best regards,
> Jordan Dimitrakov, MD
>
> In article <111219991258575559%dsho...@ucla.edu>,

> Daniel Shoskes <dsho...@ucla.edu> wrote:
> > Presuming that his prostate was removed by a radical prostatectomy,
> > this is the third case I am aware of where a man's symptoms were
> > unchanged following the operation. Dr. Alexander presented the history
> > of one patient whose pain did resolve after radical prostatectomy
> > (there was cancer found as well).
> >

> > Daniel Shoskes MD
> > UCLA
> > http://www.ben2.ucla.edu/~dshoskes
> > Institute for Male Urology
> > http://www.urol.com
> >
>

Sergei

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Dec 13, 1999, 3:00:00 AM12/13/99
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Can you have sex after prostatectomy? Can you have an erection and
ejaculate? What are the side effects of prostatectomy. Esteemed
experts, please comment.

Sergei.


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jonathan miller

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Dec 13, 1999, 3:00:00 AM12/13/99
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Daniel Shoskes wrote:

> I have also said that a clear proportion of men with CPPS have a purely
> neuromuscular problem that is not helped by antibiotics,
> anti-inflammatories, or phytotherapy.

What is a purely neuromuscular problem? And what is "a clear proportion"?

Unfortunately, I think it means one we can't deal with with current
technology (including getting a precise diagnosis). And "a clear proportion"
is "some, but we don't even have a good idea how many".

BTW, I agree with you.

Jon Miller


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