I'm more interested in what you know
Graeme
I do, as hard as it may be to believe, know about search engines etc for
finding stuff. What I really wanted to know was what YOU know. That's got
nothing to do with what can be gleaned from the internet. If the syndromes
I asked about were liquids I'd know gallons about all.
CN Haynes
disorders (like LKS), AND disorders because portions of a child's brain did
not develop, or genetics (typically milder) or other things because my
oldest son has oral motor dyspraxia with dysphasia and functional dysarthria
which may or may not be related to the neo-natal seizures he had when he was
2 days old - the cause of which was never determined.
When we started out there was very little on the internet... but there was
the National Organization of Rare Diseases. It was one of the few places
that listed apraxia or dyspraxia (it was not included on a very large
reference page from a speech language pathologist at Mankato University
(http://www.mankato.msus.edu/dept/comdis/kuster2/ ).
If you check the NORD website for Weavers:
http://www.rarediseases.org/ you will find information PLUS a list of
organizations that deal with it in the US - which may have information
available for your area:
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Weaver%20
Syndrome
"Graeme" <mostly_...@ihug.co.nz> wrote in message
news:alo13e$s3p$1...@lust.ihug.co.nz...