> Hi. I have been on depakote for about six months. It is really working
for me! I think the combination of depakote along with Parnate and
Trilafon works much better than if I had depakote alone. Julie.
Hi. Depakote has been great for me. After I got over a few stomach
problems, it worked quite well. For myself though, I think it is the
combination of my meds that really works. When i change the mix, I have a
lot a problems. I take depakote, parnate, trilafon, cogentin and some
ativan as needed. It is these together that have stopped -for the most
part - my rapid cycling mood swings that I had for 10 years. I feel very
lucky. On my few bad days I want to remember that! Julie
I too once had long thick beautiful black hair. I have lost so much
hair due to the Depakote that I cut my hair short. It still looks
straggly and sickly. I miss my long hair! I have been on Depakote for
8 months and my hair is still coming out in handfuls. Can anyone tell
me if/when this will stop? Or should I expect to look like I am doing
chemotherapy for the rest of my life? Joan
good luck ...
manna
little blue haired (bipolar II) punk rawker grrrrl
On Tue, 25 Feb 1997, Roy wrote:
> Date: Tue, 25 Feb 1997 17:20:52 GMT
> From: Roy <ro...@nabem.com>
> Newsgroups: alt.support.depression.manic
> Subject: Re: DEPAKOTE EXPERIENCES
>
> Julie Fast <jul...@speakeasy.org> wrote:
>
> >On Sat, 22 Feb 1997, Philip Dawdy wrote:
> >
> >> Curious about peoples' experience with depakote. i just switched to it
> >> after seven and a half years of up and down--duh!--luck with lithium. so
> >> far it seems okay, but what about long-term experiences.
> >> thanks.
> I got ulcers in my mouth after about three months, and raising the
> dose from 3 a day to four a day. Then Neurontin ripped through
> mystomach. In the third week of Zyprexa I am staying calm but not
> very ambitious.
>
> Roy
> 46 and still bipolar.
>
>
******************************************************************************
happy hearts fall from my stupid hands.
*******************************************************************************
<good things snipped>
>For me, and I need to emphasize that this was a decision based on
>_my_ previous experience with BP and medications, we decided the
>long-term risk of the continued weight gain with no end in sight
>outweighed the risks of discontinuing the depakote.
>
>--
>Bear Giles
Bear brings out an excellent point...It is an individualized
thing...All types of psych medications must be Rx'd according
to the person's own needs. Men will often respond differently
than women due to hormonal influences. On the *continuum* of
Bipolar Affective Disorder, The same person will have differing
needs in different stages of growth and development. One
misperception I have noticed in some folks is the assumption that
BP is BP. For most people, this brain disorder changes over time
and will require medication changes and adjustments for a variety of
reasons. Any coexisting medical or psych disorders will influence which
drugs are chosen and dosages as well.
IMHO, a psychiatrist must be the MD who prescribes and regulates
psych drugs for those who have a chronic medical condition like
Bipolar Affective Disorder....A good psychopharmacologist is the
ideal. There are some wonderfully informed and experienced
family doctors out there, but I, for one, have a specialist.
I happen to be a person who stays on Depakote despite a weight
gain. Mine did not continue, it stabilized. The side effects I do
have are better for *me* than the risk of another mania.
In addition to Depakote, I take Wellbutrin. I am one of those people
who *has* to have a mood stabilizer while taking an antidepressant
due to AD-induced mania and rapid-cycling. YMMV
I haven't posted in a while, but those of you who know me will
recognise me...It's good to hear from you. I see that nothing has
changed :)
Best Wishes,
Delane
--jenna stoner bitch
"you can try and suck me dry but theres nothing left to suck..."
>-Jenna--welcome to the group--I hope it is cathartic and informative for you.
I too had bad shrink experiences (5 in 5 years?) and went 10+ years without seeing one while having meds (lithium and norpramine) dispensed by my friendly general practitioner. However, last year things reached the point it was necessary to have more specialized help with the meds, and my doc referred me to a shrink who doesn't want to do a bunch of talk therapy and get deep, just see how I'm doing and if meds need adjusted. With the hell you describe going through with your meds, it seems you would benefit from seeing a specialist, but one who really believes this stuff is biochemical, not a bunch of Freudian, therapy of the month club crap, and who will give you a long leash (like see you 1/2 hour every 3 months) once things seem stabilized. No offense, just a suggestion.
George L. (39 and bipolar for 20 years)
I was on Depakote for one week when it appeared that lithium might
have been affecting my heartbeat.
It made me so nauseous and gave me such a severe headache the entire
time I was taking it that I was unable to work or even think.
>Joan <esn...@jeeves.ucsd.edu> wrote:
Depakote is also called Epilim isn't it?
Is sodium valproate it's generic name?
I need to know because I'm really getting confused with all the names.
Melody
----------------------------------------------------------
*Fear is a little dark room where negatives are developed*
----------------------------------------------------------
>>Jona Max wrote:
>>>
>>> The only big side effect I noticed is that my hair fell out in a mass. I
felt great on Depakote except for my otherwise thick hair falling out in
handfuls.
>>
>>I too once had long thick beautiful black hair. I have lost so much
>>hair due to the Depakote that I cut my hair short. It still looks
>>straggly and sickly. I miss my long hair! I have been on Depakote for
>>8 months and my hair is still coming out in handfuls. Can anyone tell
>>me if/when this will stop? Or should I expect to look like I am doing
>>chemotherapy for the rest of my life? Joan
Try about 100-200 micrograms of selenium a day. Its best to
use a combo of some vitamin C, minerals and B's to make everything
work synergistically. But the selenium sure stopped my hair loss.
Brian
Zinc 50mcg daily
Selenium 50mcg daily
Carma
By the way in high doses Selenium is toxic so please don't do more
vitamins = better and take too much.
Reeve wrote:
>
> Chris wrote:
> >
> > Joan <esn...@jeeves.ucsd.edu> wrote:
> >
> > >Jona Max wrote:
> > >>
> > >> The only big side effect I noticed is that my hair fell out in a mass. I felt great on Depakote except for my otherwise thick hair
> falling out in handfuls.
> > >
> > >I too once had long thick beautiful black hair. I have lost so much
> > >hair due to the Depakote that I cut my hair short. It still looks
> > >straggly and sickly. I miss my long hair! I have been on Depakote for
> > >8 months and my hair is still coming out in handfuls. Can anyone tell
> > >me if/when this will stop? Or should I expect to look like I am doing
> > >chemotherapy for the rest of my life? Joan
> >
> > I was on Depakote for one week when it appeared that lithium might
> > have been affecting my heartbeat.
> >
> > It made me so nauseous and gave me such a severe headache the entire
> > time I was taking it that I was unable to work or even think.I hear that zinc and selenium may help with the hair falling out,I
> havent
> experienced it yet(gulp:)how long into your treatment did you notice it?
> I have been on depakote(750mg) for 3 mo.
> thanks for the input-
> Reeve
It is a problem with trace minerals. I will go to my save file and see
if I saved the data to forward to you. I do know that beside taking
internal supplements someone mentioned that Head & Shoulders was an
external supply to supplement taking the mineral internally.
Carma
>Okay I can't figure out how to forward the saved message to the
>newsgroup so here are the details:
>
> Zinc 50mcg daily
> Selenium 50mcg daily
>
>Carma
THis worked for me as well. I am taking abit more of the zinc but that's just because the tabs I buy are cheaper in the larger dose. Go figure...
Blessed be
Greg
I was put on Depakote as a first line treatment. At first I think it
worked, but that could have been my expectation of it working. I gained
30# in 9 months, lost a lot of hair and eventually, it stopped working.
there is also the possibility of liver damage, so I had to have regular
blood work done.
I am now on lithium at my insistence. I have been on it since June 95 and
i am doing well. I had regular blood work in the beginning to ascertain
the adequate levels. Now, no more. It is excreted by the kidneys and I
must make sure that 1) I drink plenty of water and 2) get adequate amounts
of salt. These prevent toxicity.
The standard line is depakote is used " to treat lithium refractory rapid
cycling patients." I was not given a trial of lithium, so couldn't have
been refractory. IMHO, I think doctors follow the newest fad in drugs,
just like we follow fads. We have to be more astute and assertive and
educate them about our needs.
On the lithium side effects I would say: 1) I cannot take more than 600
mg. because it makes me sick as a dog with hands shaking so bad I cannot
sign my name and it can have an impact on the thyroid. For that I'm
grateful, since it caused the dx. to put me on meds. I have thought for
years that my "low normal" thyroid levels weren't enough for me. The
thyroid meds actually "boost" the lithium and I have been stabilising now
for about 3 months. (Happy Day!)
I hope this helps. email if you want. I'd be glad to hear from you.
BPD 99
Pat
Moira
Have I jumped from the frying pan into the fire?
So anyway, I am just wondering, because my doc and I ruled Depakote and
Lith out early b/c the weight gain, my being anorexic and bulimic...
Figuring that gaining 30 pounds would not help there.
Ges....
...you couldn't take me all in, baby because you have made me too big, you have made me too strong, I could crush you in my palm. I now have the power over words I never had before and I will throw them at you after I throw you as I throw you out the door.
" gained about 30 lbs." "lost hair," including eyelashes which used to
be thick and long and are now sparse. Took three months of total
tiredness and lethargy on depakote to get enough energy to realize how
groggy I was. I had started on lithium but switched because of the
tremor. Went back to the lithium, 900 mg/day but stayed low energy. Now
take 450mg a day with one little Propanolol for the tremor, but also 120
mg of ginkgo which helps with a lot of the lithium side effects (hasn't
made me manicky) including tremor, attention span, memory loss.
Haven't lost the weight, although my energy is back on the lower dose.
In the past (pre-meds) I lost weight when I got manicky (I'm hypomanic).
I think something in my head is waiting for another manic period to lose
it again, but that's not a good idea is it.
Here's a theory -- people with bipolar conditions don't have a lot of
will power. Is it just me?
Sound to me as if your pdoc is just plain insensitive or stupid. There are
other drugs that work just as well, but without the weight gain. I quit
Depakote for the exact same reason. I gained 30 pounds in 9 months. I
switched to Lithium.
In addition to not gaining weight, I've lost 10 pounds. It is also so much
cheaper. A month's supply only costs me $5.00.
Depakote is recommended for lithium refractory rapid cyclers, but doctors
have jumped on the fad and prescribe it as a first line teatment as I was
treated. I think they should be shot!
Find a new doctor--one who will really listen and treat side effects. I
tried 3 before I found the right one. He's switching my AD because of side
effects I don't like. He knows that treating the side effects results in
increased compliance.
Good luck and happy pdox hunting.
BPD 99
Pat
So talk about yourself, not the rest of us.
Carma
Wow, I really hope not. I was just recently diagnosed and have been on
Depakote
for about 1 1/2 mo. I've never been on Lithium. So far, I've no bad side
affects from the Depakoate at all. Each time my psych increased my
dosage (I'm at 1000mg/day now) I was tired and a little out of it for a
couple days and then my mood improved again.
I don't know if maybe I just haven't been on it long enough or what but
I haven't had any weight gain (I've been careful to eat healthy cuz' I'm
not thin to begin with) and no hair loss. So far, my husband is
convinced it's the best thing that's ever happened to me. I don't know
if I just haven't been on long enough or if I'm unusual, but so far, so
good.
Patti
I used to think the same thing--but now I KNOW I was wrong! Willpower has
nothing to do with it. How much willpower does it take to NOT eat when
your brain, because of the Depakote, tells your body it's starving?
there's isn't enough willpower in the world for that!!!
How much willpower does it take to NOT get manic or depressed. AGain there
isn't enough available.
I'm not saying that willpower is useless. On the contrary, we use it all
the time when it would be so much easier to commit suicide and we don't;
when we want to do things or not do them and we do what's right. That's
how we use willpower.
I'm tired of blaming myself for things I can't control, so I decided to
take charge of things I can control and leave the rest to the meds and
doctors.
Hope this helps.
Best wishes
BPD 99
Pat
I am gaining weight but I'm not sure it's because of the Depakote. My
weight and eating habits were very dependent upon my mood states. I feel
very balanced lately and have been eating regularly. Before medication, I
used to go days without eating or I'd just pick for weeks. Eating is
helping me stay stable too.
I'm a little worried to gain too much though. Before, I was like you. I
would just wait until that hypomania hit and then the pounds would melt away.
I do disagree though, about the will power. I find i probably have quite a
bit. I was much much sicker for years than I let on to anyone and it was
by sheer willpower that I was able to conceal it so well.
Paula
Virginia Bruce
(v...@teamweb.com) wrote:
: God, I'm so glad to hear all this, well, I mean it's horrible and gross
: but it's just what I went through. I mean, if you're fat and hairless,
: who cares if your moods are stable.
: " gained about 30 lbs." "lost hair," including eyelashes which used to
: be thick and long and are now sparse. Took three months of total
: tiredness and lethargy on depakote to get enough energy to realize how
: groggy I was. I had started on lithium but switched because of the
: tremor. Went back to the lithium, 900 mg/day but stayed low energy. Now
: take 450mg a day with one little Propanolol for the tremor, but also 120
: mg of ginkgo which helps with a lot of the lithium side effects (hasn't
: made me manicky) including tremor, attention span, memory loss.
: Haven't lost the weight, although my energy is back on the lower dose.
: In the past (pre-meds) I lost weight when I got manicky (I'm hypomanic).
: I think something in my head is waiting for another manic period to lose
: it again, but that's not a good idea is it.
: Here's a theory -- people with bipolar conditions don't have a lot of
: will power. Is it just me?
--
Hi. I had just posted my fears about Depakote and wt gain and came
across your post. I'm 5'1 too and just lost 40 pounds. My doctor knows
me from the eating disorder hospital that I was in for 6 weeks 6 years
ago- and he knew that I just spent I year losing 40 pounds. We sat in
his office and I expressed my fear of gaining weight on Depakote. We
read the PDR together. He says that the plesebo group wt gain is the
same almost as the user group- so wt gain is worst case, rare. Gaining
weight messes with my head. I get depressed!
Oh, and he says another side affect of Depakote might be, worst case--
depression and so we'll give you Zoloff. UGH! I'm crabby tonight. I
don't like the manic behavior but I really don't like the medicine. I
can't do it. Wt gain isn't just ego. It's health, mental and physical.
Is there something natural to take to curb the manic episodes? And how
does one go off Depakote? I'm calling my doctor tomorrow.
Lisa
Moira
Lisa
Hypomanic means "under mania." In full-blown mania
a bipolar does things he/she would get arrested/hospitalized for.
On the other hand, hypomania can be quite pleasant and productive,
although somewhat iritating to those around you.
Anyways, to quote from the DSM IV, these are signs of hypomania:
/////////////////////////////////////////
(1) inflated self-esteem or grandiosity
(2) decreased need for sleep (e.g., feels rested after only 3 hours
of
sleep)
(3) more talkative than usual or pressure to keep talking
(4) flight of ideas or subjective experience that thoughts are
racing
(5) distractibility (i.e., attention too easily drawn to unimportant
or
irrelevant external stimuli)
(6) increase in goal-directed activity (either socially, at work or
school, or sexually) or psychomotor agitation
(7) excessive involvement in pleasurable activities that have a high
potential for painful consequences (e.g., the person engages in
unrestrained buying sprees, sexual indiscretions, or foolish
business investments)
The episode is not severe enough to cause marked impairment in
social
or occupational functioning, or to necessitate hospitalization, and
there are no psychotic features.
//////////////////////////////////////////
It's when these symptoms go to the extreme and the person can no longer
function that it becomes mania.