FM truehope treatment?
edel
Please let me know if you have heard about this. I would really
appreciate it. Should you have comments or more info I would be
grateful.
Our FM Association contacted me to let me know about this meeting. I
promised to tell you about the Synergy Group of Canada meeting last
night. They have conduct their researches along with 3 or 4 (cannot
remind) universities such as 2 in Alberta and one in Utah. They are now
preparing for a double-blind research which will reinforce their saying
on the medical market. It seems that their research came up with an
exciting nutritional supplement. Their belief is that FM such as
bipolar affective disorder, schizophrenia,panic attacks, depression &
MS, ADHD (hyperactivity disorder) and epilepsy are all CNS (Central
Nervous System) illnesses. They told that most of these illnesses are
100% symptoms free after 3 months under this kind of therapy, though it
appears that FM takes longer depending how long the person has it and
how strong. Actually the product is not sold on the shelves but we can
order it. They are doing meetings in many cities because their belief
is they can safe numerous lives during the time that the double-blind
research will be completed (they talk about 30,000 persons per year in
USA).
Two other meetings will be held:
Ottawa, Canada
Thursday April 13, 2000 9:30, 13:30, 19:00
St-Paul University, 223 Main Street , Auditorium 203
Hull, Quebec/Canada
Friday April 14, 2000 19:00
Université du Québec
283 Alexandre Tache Blvd
Room D0443/D0445
You can find a lot of information on
their Email address is: http://www.truehope.com
The product is expensive but may be not as expensive than total of
numerous medication taken when maintain therapy. I personally keep my
thought but I will try to know more about this. In the assistance there
was a doctor who asked many medical questions but he has been answered
right away and it seems very logic (his wife (with FM) bought the
product. I guess I will contact him and find out about how is wife is
doing since it seems that big improvement can be done within a few weeks
or mostly within 3 months.
There is so much to say about it. Should you need any further info may
be I can answer some info that have been brought during this meeting.
Would be so great..... but I prefer to get more info before. Will let
you know if anything worthwhile. Take care all. Sincerely, Hugs.
Maureen in Mukilteo
Good luck but I wouldn't put too much faith in this. I looked at the website
and it has all of the earmarks of a marketing ploy. Why not just state what
is in the supplements? Why all the secrecy? When you can only buy a product
at a presentation it raises all kinds of red flags.
One, two or three case studies prove nothing. You need studies with hundreds
to make the claims that they are making. I also feel they misrepresented
what they call a "study" in "The Journal of Musculoskeletal Pain." It was
*not* research or a study. It was not even a case study. The article was
printed in the "Ideas for Future Research" section. (This journal is the
only one that has this kind of section) This is where people make a case for
a particular area of research that they feel is being neglected. It just
reported on one woman's response to a nutritional regime. To me, this
behavior is dishonest. Honest people do not twist words around like they
have.
I have a copy of the article in front of me now. It is written up as if it
were a study but was obviously not accepted by the journal as such. She took
"a multivitamin preparation with vitamins A, B1, B2, Niacin, B6, B12. C, D,
E, folic acid, pantothenic acid and biotin, a mineral in tablet form which
included calcium, copper, chromium, iodide, iron, magnesium, manganese,
molybdenum, nickel, potassium, selenium, tin, vanadium, and zinc; grape seed
extract; a colloidal mineral supplement which contained trace amounts of all
minerals from aluminum to zinc. None of these preparations contained
unusually large doses and many of the minerals are in trace amounts."
If this woman was cured by taking these supplements, IMHO she never had FM.
I would hazard to say that many of us here take the equivalent of these and
pay a lot less. I take all of these with the exception of the colloidal
minerals and the iron and they had minimal effect. There is also no reason I
know of that this regime should be so expensive.
My FM is finally on the downswing and I am have much more energy. My tender
points are significantly reduced. In fact I have improved as much as this
woman. I can even document this because I'm still being monitored by the
Seattle Fibromylagia Research Project.
What did I do for this to happen? I bought a big box of orange sherbet just
before my energy returned. So either the orange sherbet improved my FM or
the FM was going to get better no matter what I did. I will leave it to you
to decide which did what.
The website is very low on facts and high on emotion. There is no scientific
reason to include FMS with CNS disorders. There is, however, a financial
reason. There are many more people with FM then their are all of the other
diseases added together. We are also more desperate and therefore more
vulnerable to claims such as this.
Good luck if you decide to try this but please don't let yourself get talked
into spending a lot of money. Just because this stuff helps other diseases
does not mean it will help FM.
Maureen in Mukilteo
"edel" <edelw...@sympatico.ca> wrote
FMC...@webtv.net
<Their belief is that FM such as bipolar affective disorder,
schizophrenia,panic attacks, depression & MS, ADHD (hyperactivity
disorder) and epilepsy are all CNS (Central Nervous System) illnesses.
They told that most of these illnesses are 100% symptoms free after 3
months under this kind of therapy,>
This is absolute hogwash!!!! Believe me I would personally nominate
anyone who would cause the disappearance of the symptoms of bi-polar
disorder, depression and schizophrenia for the Nobel prize in medicine.
Don't you realize that anyone who could legitimately do this would not
be shilling their compound before small groups of vulnerable patients,
they would be sitting back and counting the money rolling in and ringing
the opening bell on the NYSE! This is all a lie, a bald faced lie, and
should be denounced as such.--fran
******
"Bad officials are elected by good citizens who do not vote." -- George
Jean Nathan
Bran Everseeking
22:38:56
|> Don't you realize that anyone who could legitimately do this would not
|> be shilling their compound before small groups of vulnerable patients,
|> they would be sitting back and counting the money rolling in and ringing
|> the opening bell on the NYSE! This is all a lie, a bald faced lie, and
|> should be denounced as such.--fran
|>
|>
that or as humanitarians they would be distributing their
protocol at little profit and would be gathering an arm full of
nobel prizes
Laura
><Their belief is that FM such as bipolar affective disorder,
>schizophrenia,panic attacks, depression & MS, ADHD (hyperactivity
>disorder) and epilepsy are all CNS (Central Nervous System) illnesses.
>They told that most of these illnesses are 100% symptoms free after 3
>months under this kind of therapy,>
>
My cow died in the barnyard so I don't need your bull.
Have a nice day.
Laura Keeper of the Hounds
Cliff
a non medical research group". Non medical???? Then what kind of
research group are they, exactly?
Cliff
masuruha
Cliff <Clif...@hotmail.com> wrote in article
<38f6820c...@news.mindspring.com>...
I would guess they are a capitalist econcomic research group.
Sue in Montana, where dollars are green
Stephanie A. Hall
What did I do for this to happen? I bought a big box of orange sherbet
just before my energy returned. So either the orange sherbet improved my
FM or the FM was going to get better no matter what I did. I will leave
it to you to decide which did what.
---------------
Oh, Maureen, you really must do a study! I love it, the orange sherbet
cure! Who knows, you may have found a panecea!
I agree with you absolutely, anyone who claims to have found a cure on the
basis of one case study is, well, marketing a product, not doing a study.
This web site "information" is non-information, and that is always a red
flag. Any researcher who thinks that one case study means anything does
not understand FM to begin with. Sure taking certain vitamins and minerals
does seem to help many of us. But, that is is not news, and we don't need
to buy an expensive product to do that.
be well
Stephanie
ENTconsult
MS, ADHD (hyperactivity disorder) and epilepsy are all CNS (Central
Nervous System) illnesses. They told that most of these illnesses are
Most of these disorders are 100% free in 3 months!!!!!!
Epilepsy!!
Multiple Sclerosis !!!
ADHD !!!!!!
Schizophrenia !!!!!!!!!
hell, they deserve two Nobel Prizes if true.
In one thing they are right, epilepsy is a central nervous disorder.
Tragically, they didn't mention that it cures the really important problem -
baldness and bad hair days.
By the way, you can tell immediately what you are dealing with as soon as they
start listing many many conditions that they cure amd add that the doctors are
holding the cure back so they can make money on people's suffering.
Murray Grossan, M.D.
http://www.ent-consult.com
edel
contacted personnally each member to let us know about it). The 2 persons
who started this has no medical experience. But because of CNS problems in
the family they personally wished to do something. One of the 2 has 10
children. His first wife commited suicide because of CNS illness for sooo
many years - could'nt live longer. 4 or 5 of his children have been
diagnosed CNS illness too. He did not want to loose his family (what he
said during the meeting) - he must do something. They contacted one of the
most experienced professional recognized worlwide and collaborated with 3
universities (in research) 1 in Utah and 2 in Alberta. It seems that they
are about to do a double-blind research (7 to 10 years long) which will make
the "proof" of the product for medical professionals.
In the assistance was a MD (who appears to be consulted by my husband in
his childhood) with his wife (nurse having FM). She bought the product a
while ago (before the meeting). The MD asked many questions which have been
answered without delay and adequately. I will wait a couple of weeks before
calling this doc and ask about how his wife doing on the product. Will let
you know. The persons having CNS were talking VERY emotionnally and seem to
believe so much in this product. WHAT FOLLOWS IS VERY PERSONAL: I have seen
many sales meetings (this one looks like more human and with so much
emotion - but I'm still very careful). I still have reserve but if this is
not true believe me that there are some very good actors. Will wait to know
more with the MD's wife. Take care. Your reply would be appreciated.
--
Edel
masuruha <masu...@bigsky.net> a écrit dans le message :
01bfa5d3$462e86c0$02e4fcce@default...
edel
edel <edelw...@sympatico.ca> a écrit dans le message : ...
little D
What med's are you taking?
I was recently put on new med's.,having a very bad time just now. This
FM is really taking a toll on me the last few weeks!! Sure hope I can
find something to help me.
Missed 2 days of work last week, can't afford to keep this up!
Do you take MSM? Have heard a lot about this the past couple of weeks.
thank's
little D
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