Thank you so much for reaching out to us again. It is great to hear about you and your family. I

Our son still has difficulty with bowel movements. Miralax does seem to help him, but often we are

Hi everyone, it has been a long time since anyone has posted anything! I hope all is well. Our

No problem on the picnic. We'll make it work one of these years. This was a very busy summer for

I have attached a recent picture of Mackenzie with her brother and sister. Mackenzie is on the left.

Great, the 28th works great for us, anytime after 11am. -----Original Message----- From: sotos-

I just wanted to let everyone know that I'm looking into incorporating our little group. It is

My wife and I have plans on the weekend of the 15th, and possible plans on Memorial Day weekend (most

Melody, Hello and welcome. My daughter is 2-1/2 and is at 18 month old level for comprehensive

Thanks Jenny! Even though every child is different, it helps to have a ballpark. My little girl is

It is the opposite for our family. I love that our older daughter is constantly helping Mackenzie. I

Our therapists have suggested preschool, but we are leaning toward keeping Gideon home until

As much as I would love to meet all of you, October is out for us. The Autumn begins my husbands

As you may have noticed, we've had two spam posts in the past couple of days. I'm going to

Thanks Marie. Sometimes I think it is improving and then other days I don't think so at all. ld

We have had our share of tears and triumphs. I too get frustrated when people tell us to appreciate

What a great idea!! We live in Shakopee but are more than willing to travel a little ways to meet

We've had our son working with various therapists since he was less than a year old. In the

Ive found its obviously easier to deal with at home than out in public. Im not quite sure how to

I guess I'd be satisfied if they looked at our son differently, but with compassion rather than

You are absolutely right!! I very much love my daughter and would do what ever necessary to help her

In just 24 hours, our little guy went from being well to being hospitalized. He woke up early in the

Because verbal/expressive delays are very common for children with Sotos Syndrome, many people

My wife and I have a little boy, 22 months of age, who has been confirmed as having Sotos Syndrome. I