Updated update
Bam
great medical thriller.... :)
Well, you must love the medical profession... not.
The urologist thinks I do, indeed, surely have MS. He says the problems
I'm having urologically are very indicative of MS... here one day, not
the next, no other explanation. He said MS wreaks havoc with the
bladder.... oh goodie, at least it'll be exciting, right?
(He said to me that he's very impressed with my attitude and outlook and
I told him once the sense of humor leaves, I'm done, there will not be
enough strength to come back, so I have no choice but to smile, grin,
bear it, and say WTF!)
He gave me some meds to hopefully handle the immediate issues, another
infection, etc. Told me he would definitely take my films and go to
another neurologist because I now have one that says yes, one that says
he doesn't think so, and the third whilst still not necessarily any more
right than either of the first two, would at least give me that much
more information.
Tonight I have a fever, my kidney hurts, I want to cry. I want to just
lay in the bed and say - OK, GOD... you win. For 12 years, I've fought
to get my world right and for 12 f*ing years you've been throwing road
block after road block and frankly, I'm just tired of dodging the road
blocks......
Fear not.... it's just a momentary pity party and about as much anger as
I do..... but damn, give a sister a break, will ya?
Maureen Galvin
What tests other than I'm sure brain MRIs have they done? Have you had the
VEPs, LPs and the rest of the neurological crap? I went five years, from
doc to doc to doc, and finally have what the first guy said - Benign MS - if
there is such a thing. This means that other than my first couple of flairs
in 2003 and 2004, I've not had anything noticeable or disruptive. I have a
lot of residuals from the first couple, but nothing I've not been able to
deal with. I meet all of the criteria for MS except for the O-bands which
keep coming up negative (had the last LP two years ago and refuse to have
another unless i have a major flair again). My MRIs show minimal changes
and I'm finally down to once a year rather than quarterly and then twice
yearly scans.
He's right though about urological problems. That is one of my issues -
that and fatigue and sometimes word finding. I can tell when I'm getting
over fatigued because I tend to stumble a bit, but nothing more than just
ordinary clumsiness so I deal with it. The double edged sword is the stress
issue ;) as I'm sure you are finding out. Dealing with this crap, my
husband's ongoing disability, changing jobs and school (sounds familiar
huh?) is all stressful LOL, but I"ve been learning to adapt and just say who
gives a crap about so many things that would have sent me right over the
edge just a few years ago.
I'm really sorry you are having to go through all of this - that whole LIMBO
period where you dont know if it is MS or what in craps name it is, is
rough, but keep plugging away from doc to doc until you finally get one to
listen to you and your complaints.
Good luck!!
Maureen
"Bam" <dearco...@comcast.net> wrote in message
news:5lgjtuF...@mid.individual.net...
Sue
she had MS. Turned out she had Epstein Barre disease. It took FOREVER for
them to discover this. Very, very similar side effects and symptoms. I have
no idea how they test for it. I will call her in a.m. She's across the
country and goes to bed early or I'd call now. Anyway, I will let you know
tomorrow! Hang in there!
--
Sue -- Firefighter mom -- still rabid UW DAWG fan!
"Bam" <dearco...@comcast.net> wrote in message
news:5lgjtuF...@mid.individual.net...
Barbara Carlson
Where is Dr. House when you need him? You need to find the real-life
version!
Barb C.
"Bam" <dearco...@comcast.net> wrote in message
news:5lgjtuF...@mid.individual.net...
Sue
believe he's in New York.
--
Sue -- Firefighter mom -- still rabid UW DAWG fan!
"Barbara Carlson" <bbca...@snappydsl.net> wrote in message
news:S9qdnZEHo4Q-m2nb...@tampabaydsl.com...
Sue
Magazine
--
Sue -- Firefighter mom -- still rabid UW DAWG fan!
"Barbara Carlson" <bbca...@snappydsl.net> wrote in message
news:S9qdnZEHo4Q-m2nb...@tampabaydsl.com...
Sue
--
Sue -- Firefighter mom -- still rabid UW DAWG fan!
"Barbara Carlson" <bbca...@snappydsl.net> wrote in message
news:S9qdnZEHo4Q-m2nb...@tampabaydsl.com...
Bam
> http://discovermagazine.com/2007/medical-mysteries/the-real-dr-house
>
Wonder if he's single.... just seems like there oughta be SOME reward
somewhere, right? LOL!
Sue
--
Sue -- Firefighter mom -- still rabid UW DAWG fan!
"Bam" <dearco...@comcast.net> wrote in message
news:5liimbF...@mid.individual.net...
Bam
> No kidding! He looks like he's fun!
>
Sue, I just read the whole article.... and I laughed as I read the
symptoms of one patient who came to him because I was whispering- "This
guy has celiac disease!" Sho-nuff, next paragraph Dr. "House" diagnoses
celiac.
I'm going to keep this info.... if I don't have a successful resolution
or direction by November, I just may make an appt!
RaeMorrill
Wow, that guy sounds amazing... How interesting would it be to be his
MT?
--
RaeMorrill
Barbara Carlson
undecipherable disease or treatment he prescribed! Not to mention he'd be
so nasty about any inquiry we'd all probably quit the first week!
I love the show, and sometimes come up with the diagnosis, but not too
often!
Barb C.
"RaeMorrill" <RaeMorri...@nospam.com> wrote in message
news:RaeMorri...@nospam.com...
Barbara Carlson
I did read somewhere, though, that Hugh Laurie's father is a physician.
Barb C.
"Barbara Carlson" <bbca...@snappydsl.net> wrote in message
news:Ur6dnd7GH7UKumnb...@tampabaydsl.com...
Sue
ccent -- talk about good acting!!
--
Sue -- Firefighter mom -- still rabid UW DAWG fan!
"Barbara Carlson" <bbca...@snappydsl.net> wrote in message
news:e_OdnZKVNcjxtWnb...@tampabaydsl.com...
RaeMorrill
About the accent, Sue... I think I saw him on a show, maybe Leno, where
he was talking about how hard that is, i.e., having to change the way
he says every word. He does a good job - not sure I've ever heard a
trace of it as House....
I don't know why the curmudgeon couldn't be a Brit though.
--
RaeMorrill