Vegan Diet Child Cures
ironjustice
Disease
Tuesday, January 05, 2010
At his first birthday, John Klor couldn't sit up on his own. A few
months later, he was cruising like any healthy toddler — thanks to a
special diet that's treating the North Carolina boy's mysterious
disease.
What doctors initially called cerebral palsy instead was a rare
metabolic disorder assaulting his brain and muscles, yet one that's
treatable if caught in time.
Urged by John's family, Duke University researchers are working on a
way to test newborns for this disease, called GAMT deficiency. It's
part of a growing movement to add some of the rarest of rare illnesses
— with such names as bubble-boy disease, Pompe disease, Krabbe disease
— to the battery of screenings given to U.S. babies hours after birth.
"There's other children out there that can be helped and be saved,"
says Melissa Klor, John's mother.
But just how many illnesses can that tiny spot of blood pricked from a
baby's heel really turn up? And not all are treatable, so when is
population-wide testing appropriate?
"Families go through these odysseys of diagnosis" to learn what's
wrong with a child, says Dr. Alan Fleischman of the March of Dimes,
who's part of a government advisory committee studying what to add to
the national screening list. Often, "they argue that they would have
been better off knowing even if there were no treatments."
Since 2004, specialists have urged that every U.S. newborn be tested
for 29 rare but devastating genetic diseases, using that single heel-
prick of blood, to catch the fraction who need fast treatment to avoid
retardation, severe illness, even death. States gradually adopted
those recommendations, and federal health officials say the testing
catches about 5,000 babies a year with disorders ranging from sickle
cell anemia to maple syrup urine disease and others with such tongue-
twisting names that they go by acronyms like LCHAD.
John Klor's illness is too new for that list.
By the time her son was 6 months old, Melissa Klor knew something was
wrong. John missed developmental milestones, unable to sit, stop his
head from wobbling, or babble. He regressed, quitting rolling over. He
stared blankly for moments at a time, a kind of mini-seizure.
A neurologist diagnosed cerebral palsy. But John never had an MRI scan
to prove the diagnosis, and Klor eventually sought a second opinion.
Right after John's first birthday came the news: His brain scan showed
no sign of cerebral palsy, but he might have any of a number of
degenerative metabolic disorders.
In a lucky break, John's blood and urine were sent to Duke's genetics
laboratory for specialized testing that found he couldn't process
protein correctly. John's body wasn't producing a substance called
creatine that's crucial for providing energy to the brain and muscles,
leading other protein metabolites to basically clog his system and
damage his brain.
Creatine deficiency syndromes weren't discovered until 1994; Duke is
one of the few labs able to diagnose them. Fortunately, John's version
— called GAMT deficiency for the enzyme, guanidinoacetate
methyltransferase, that his body lacks — is treatable in the young.
Doctors ordered a vegan diet — only fruits, vegetables and specially
processed pastas — with no more than 6 grams of protein daily. John
drinks a formula containing creatine and other missing nutrients.
"Within days, we started to see him getting stronger," says Klor, of
Pine Knoll Shores, N.C.
Today at 19 months, John runs and climbs stairs. He's starting to make
sounds like "ma" but speech is coming more slowly; doctors are
optimistic but make Klor no promises.
Only 40 cases of GAMT deficiency have been reported in medical
journals, but Duke specialists say creatine disorders probably are
underdiagnosed, with symptoms similar to other metabolic diseases.
GAMT deficiency may eventually be a candidate for newborn screening,
although it's not yet clear if the troublesome substances will show up
in blood at birth or if a different test will be required, cautions
medical geneticist David Millington. His lab is studying that now.
The work is the latest in a push to expand newborn screening:
— Within two years, Missouri and Illinois are to begin screening for
five of the roughly 40 "lysosomal storage" disorders, where the
microscopic recycling bins inside cells fail, allowing toxic buildup
that harms different body parts. They include Pompe disease — the
subject of a soon-to-be-released Harrison Ford movie — and Fabry,
Gaucher, Niemann-Pick and Krabbe diseases.
Currently, New York is the only state to test newborns for a lysosomal
disorder, the Krabbe disease that killed the son of former Buffalo
Bills quarterback Jim Kelly. The federal government's advisers are
considering adding lysosomal disorders to the national screening list,
despite few treatments.
— Also under consideration for the national list is the bubble boy
disease, formally known as SCID, or "severe combined immunodeficiency
disease." Wisconsin is screening newborns in a closely watched
experiment to see if SCID and related immune-crippling diseases can be
caught in time for babies to get life-extending treatment.
Who loves ya.
Tom
Jesus Was A Vegetarian!
http://tinyurl.com/2r2nkh
Man Is A Herbivore!
http://tinyurl.com/a3cc3
DEAD PEOPLE WALKING
http://tinyurl.com/zk9fk
veg...@lover.com
prevents the normal metabolism of protein. To greatly restrict protein
intake veggies of a limited variety are used that are low in protein.
Animal products are high in protein. There is no cure, there is only
the hope that restricting protein from all sources will help in place of
the genetic disorder.
ironjustice
The subject line is misleading. <<
It ain't misleading ..
"Special Diet Cures North Carolina Toddler"
I tell you what ..
You take YOUR definition of .. cure ..
and .. stick it .. up your ass ..
The kids parents says he's cured .. he says he's cured .. and his
doctor says he's cured ..
veg...@lover.com
"It ain't misleading ..
"Special Diet Cures North Carolina Toddler"
I tell you what ..
You take YOUR definition of .. cure .. and .. stick it .. up your ass ..
The kids parents says he's cured .. he says he's cured .. and his doctor
says he's cured .."
Nope, this is what the text says:
"doctors are optimistic but make Klor no promises."
Not only is it misleading for the subject line and cure, but because it
is a veggie diet very low in protein that is used. Many many veggies
can not be included because all but a tiny amount of protein must be
avoided.
This is not about some inherent quality of a veggie diet but about where
is it easiest to get very low protein.
ironjustice
Ok ..
You have a problem with the fact the doctor cannot say cure ..
Fine ..
I'm not really sure why I included him in it anyhow ..
Just .. a .. fkg .. dweeeeb ..
You have a problem with the word .. vegan ..
It IS a vegan diet ..
Who cares whether you .. find .. it somehow .. misleading ..
HERE we err on the side of cup half full ..
Here .. you would NOW .. **read** the article .. MORE .. thoroughly ..
IF one has no agenda ..
YOU .. seem to have a problem with .. the vegan .. or vegetarian .. or
maybe you are a
pork eater ..
Take your agenda .. cup half EMPTY ..
Over to alt.atheism I bet would be where you belong ..Special Diet
sounds like "ma" but speech is coming more slowly; doctors are
optimistic but make Klor no promises.
Who loves ya.
Tom
ironjustice
ordered a vegan diet — only fruits, vegetables and specially processed
pastas — with no more than 6 grams of protein daily <<
THAT would .. coincidentally beeee .. ?
Jesus' .. diet .. aka .. the Jesus diet ..
one gram of protein ten pounds .. give or take ..
http://groups.google.com/group/sci.med/browse_thread/thread/d0dc589a607792d1/55bc8fe24b9074f5
THEY say one gram for every for three pounds / RDA as opposed to one
gram for ten pounds per the famous Danish dietician Dr M.
Hindbede ...
The RDA for protein is ALREADY about 80% ABOVE what is considered by
the famous Danish dietician Dr M. Hindbede .. to be adequate ..
Sooo when they say 'malnutrition' one MUST take into account what
THEY .. think .. malnutrition IS is actually based on .. stupidity ..
Therefore the reduction of over three hundred percent LESS PROTEIN
still is not considered to be .. malnutrition .. by the famous Danish
dietician Dr M. Hindbede ..
They have no idea what malnutrition is ..
Sooo .. over 75% less protein can be still considered to be not
malnutrition ..
---------------------------
The RDA for protein is .8 gm/kg bodyweight, or 56 gm for a 154 lb
male.
http://www.time-to-run.com/nutrition/rda.htm
"Dr M. Hindbede, famous Danish dietician, says a 150-lb. man can live
on half an oz. / 14 gms of protein a day"
Who loves ya.
Tom
Jesus Was A Vegetarian!
http://tinyurl.com/634q5a
Man Is A Herbivore!
http://tinyurl.com/4rq595
ironjustice
a vegan diet — only fruits, vegetables and specially processed
pastas — with no more than 6 grams of protein daily <<
http://www.sciencedaily.com/releases/2010/01/100104151923.htm
Solar-Powered Irrigation Significantly Improves Diet and Income in
Rural Sub-Saharan Africa
ScienceDaily (Jan. 5, 2010) — Solar-powered drip irrigation systems
significantly enhance household incomes and nutritional intake of
villagers in arid sub-Saharan Africa, according to a new Stanford
University study published in the Proceedings of the National Academy
of Sciences (PNAS). The two-year study found that solar-powered pumps
installed in remote villages in the West African nation of Benin were
a cost-effective way of delivering much-needed irrigation water,
particularly during the long dry season.
The results were striking. The three solar-powered irrigation systems
supplied on average 1.9 metric tons of produce per month, including
tomatoes, okra, peppers, eggplants, carrots and other greens, the
authors found. Woman who used solar-powered irrigation became strong
net producers in vegetables with extra income earned from sales --
significantly increasing their purchases of staples and protein during
the dry season, and oil during the rainy season. During the first year
of operation, the women farmers kept an average of 18 percent by
weight -- 8.8 kilograms (19.4 pounds) per month -- of the produce
grown with the solar-powered systems for home consumption and sold the
rest in local markets.
"Garden products penetrated local markets significantly," the authors
found. "Vegetable consumption increased during the rainy season (the
time of greatest surplus for the women's group farmers) for the entire
four-village sample of households."
Survey respondents also were asked about their ability to meet their
household food needs. Seventeen percent of the project beneficiaries
said they were "less likely to feel chronically food-insecure. In
short, the photovoltaic drip irrigation systems had a remarkable
effect on both year-round and seasonal food access," the authors said.
Who loves ya.
Tom
Jesus Was A Vegetarian!
http://tinyurl.com/634q5a
Man Is A Herbivore!
http://tinyurl.com/4rq595
DEAD PEOPLE WALKING
http://tinyurl.com/zk9fk
>
> THAT would .. coincidentally beeee .. ?
>
> Jesus' .. diet .. aka .. the Jesus diet ..
>
> one gram of protein ten pounds .. give or take ..
>
> http://groups.google.com/group/sci.med/browse_thread/thread/d0dc589a6...
>
> THEY say one gram for every for three pounds / RDA as opposed to one
> gram for ten pounds per the famous Danish dietician Dr M.
> Hindbede ...
>
> The RDA for protein is ALREADY about 80% ABOVE what is considered by
> the famous Danish dietician Dr M. Hindbede .. to be adequate ..
>
> Sooo when they say 'malnutrition' one MUST take into account what
> THEY .. think .. malnutrition IS is actually based on .. stupidity ..
>
> Therefore the reduction of over three hundred percent LESS PROTEIN
> still is not considered to be .. malnutrition .. by the famous Danish
> dietician Dr M. Hindbede ..
>
> They have no idea what malnutrition is ..
>
> Sooo .. over 75% less protein can be still considered to be not
> malnutrition ..
>
> ---------------------------
>
> The RDA for protein is .8 gm/kg bodyweight, or 56 gm for a 154 lb
> male.
>
> http://www.time-to-run.com/nutrition/rda.htm
>
> "Dr M. Hindbede, famous Danish dietician, says a 150-lb. man can live
> on half an oz. / 14 gms of protein a day"
>
> Who loves ya.
> Tom
>
> Jesus Was A Vegetarian!http://tinyurl.com/634q5a
>
> Man Is A Herbivore!http://tinyurl.com/4rq595
>
> DEAD PEOPLE WALKINGhttp://tinyurl.com/zk9fk
> > DEAD PEOPLE WALKINGhttp://tinyurl.com/zk9fk- Hide quoted text -
>
> - Show quoted text -
veg...@lover.com
"net producers in vegetables with extra income earned from sales --
significantly increasing their purchases of staples and protein during
the dry season, and oil during the rainy season".
Ah, we see you don't know much about nigeria. This is in the dryer
north. The "protein" was meat. This is expensive so this more
profitable system allows more purchases of a greatly desired food item.
"Jesus' .. diet .. aka .. the Jesus diet ..
one gram of protein ten pounds .. give or take .."
Nope, Jesus ate meat as the scripture leaves no doubt. He did eat the
mediterranean diet with much seafood and for special feasts and
religious reasons mutton.
The kid in this article needs more then the tiny amount of protein for
physical development of muscle etc. but is being deprived because he
cann't metabolize it and it builds up in his body and threatens his
life. Any advantage of the diet is to control the amount of protein
even suboptimal.
""You have a problem with the fact the doctor cannot say cure .."
No, but you have a problem putting "cure" in his mouth and in the mouth
of others when the article clearly did not say it. Dishonest if nothing
else and most likely not read very well.
"You have a problem with the word .. vegan .."
Nope, but it is not for any inherent factor of such a diet that is the
topic. A diet of that kind can be very high in protein which would kill
the kid. You try to attach meaning to the diet and this kid that is
just not there.
ironjustice
veg...@lover.com
Ah, we accept your confession that you can not support your conclusion
in the subject line. And that it was not supported by the very article
you presented.
ironjustice
"Giiiiiit .." <<
"Vegan Diet Child Cures"
I don't know WHY or HOW you could .. construe .. THAT
to actually .. MEAN .. anything ..
That phrase is .. garbled ..
Trying to understand that phrase is .. stupid ..
Maybe you shouldn't try to understand phrases that .. are ..
garbled ..
I know JUST BECAUSE your brain and that phrase are synonymous ..
doesn't
MEAN .. that you are able to understand things because your brain is
garbled
AND the thing you are trying to understand is ALSO .. garbled ..
I'd ask if you understood what I said .. but ..
We both know you .. don't .. don't we ..