We've lost another LymeNet member... [ALSLYME]
Sewer Rat
last year. He was given the diagnosis of ALS, but then went to Bach, who
diagnosed him with Lyme and treated him with longterm antibiotics.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=030713;p=1#000003
ALSLYME wrote:
"My llmd told me to expect to go through a really bad time, that i will
feel like i'm going backwards and getting worse, but he says "it gets
worse before it gets better"."
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=033480;p=1#000008
ALSLYME wrote:
"I see a Dr. B and I realize I've gotten worse in some ways during
treatment, but I also know that if I never saw him, when I did, I
wouldn't be here today, or at best on a feeding tube and trache."
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=034468;p=1#000005
ALSLYME wrote:
"I believe there are 2 Dr. B's! One of them saved my life, literally,
and he's not in NY!"
=======================================
This is topic We've lost another LymeNet member... in forum Medical
Questions at LymeNet Flash.
To visit this topic, use this URL:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=045364
Posted by Tincup (Member # 5829) on 01 July, 2006 01:32 AM :
Our good friend and LymeNet member... ALS/Lyme, recently lost his battle
with Lyme disease.
Please note the two things below that Billy wanted.
```````````````````````````````````````````````
ALS/Lyme
Frequent Contributor
Member # 6721
Hi Jenny,
I couldn't relate more to your question, for a second i thought you were
my sister
writing this! I was dx with ALS this past summer, "from one of the best"
neuros in
DC metro area.
After being given a death sentence, I found an LLMD and tested positive
within 30 days of my ALS dx. (my neuro come to find out didn't even test
me for lyme or anything related, even though i told him i was treated
for lyme 4 yrs previous - i knew i had it again and he put me on
steroids which nearly killed me)
I too have been on abx for 6 mos. now, and most recent my 3rd week on IV
rocephin, and i've never felt worse! This must be what they refer to as
a really bad herx reaction! I've had mild herx's when my abx are
switched or added, but this so
far is the worst.
My llmd told me to expect to go through a really bad time, that i will
feel like i'm going backwards and getting worse, but he says "it gets
worse before it gets better".
I sympathize completely with you, your brother, and your entire family.
Keep on, keepin' on!
ALS-AlsoLymeSymptoms
Did You Know? Lou Gehrig vacationed in Lyme, CT.
``````````````````````````````````````
```````````````````````````````````````
> >> ----- Original Message -----
> >> From: "AfterTheBite" <>
> >> To: "William Boesche" <>
> >> Sent: Saturday, June 04, 2005 2:35 PM
> >> Subject: Re: Hey there!
Good to see you again!! I am on/off the computer so I miss a bit here
and there. Sorry. It's funny.. Saturday after I saw you.. while in the
shower I thought of something I have wanted to do for a long while for a
variety ofreasons but never had the time/energy to follow through.
You reminded me of the idea because of the landscape work you did... and
our chat about
trees. I sure enjoyed visiting with you by the way. My regret is we
didn't have a quieter
place and more time. I also enjoyed your wife's
company too. You are a lucky man to have such a beauty queen at your
beckon call!
~smile~
I have a habit, tradition, whatever you want to call it... that when I
lose someone close to
me.. I plant a tree in memory of that person. I have planted trees in
parks.. my yards.. and
other places. I think trees are important and I do love them and it is
my way of dealing
with the fact the person is gone but their memory will still live on. I
also like to know the
tree will give pleasure to many, for years to come.
Anyhow.. we are having increasing numbers of deaths from Lyme, as you
know. There is no "quilt" or memorial way to remember these folks and/or
celebrate their lives.
I was hoping maybe someone could set up some sort of memorial way to
remember Lyme patients after they pass.
If this were to happen...we would need a place to get trees... a place
to plant them.. and a
way to plant them. I also thought if folks donated the trees.. or
actually paid to have
them planted and purchased from whoever was doing this.. that it would
include a little memorial sign with a name on them..
Soooooo.. I have ideas.. but no way to get the plans done. And it might
be a bad idea too..
so I really wanted someone's input. It would also make people take note
to the fact we are
losing folks to this disease that is said to not be serious.. and rarely
fatal.
If you could.. think on it.. and let me know what you think. Don't feel
bad to tell me to go
sit in my hat. I've been told that before.. HA!
Just thought your input here would either keep me going in that area..
or bring me back to
reality.. which SOMEONE needs to do every now and then.
Oh.. to reach me.. any time.. call.. XXXXXXXX
I hope you get this email! Let me know! Take care of you... and your
sweet wife too!
Love,
Tincup
````````````````````````````````````````````````
From: "William Boesche" <>
To: "AfterTheBite" <>
Sent: Saturday, June 04, 2005 3:14 PM
Subject: Re: Hey there!
> Hi! got your email - yeah!
>
> I wish we could've talked more also - but we shall meet again! You are an
> inspiration with a great sense of humor! Hopefully, next time we meet
I'll
> be able to talk better.
>
> I think you have a great idea! I too tend to plant trees in honor of
those
> I love that pass away! Something symbolic to me about trees i guess,
> whether it be the trees branches reaching toward heaven, or just the
growth
> year after year - signifying strength throughout all kinds of weather!
>
> Michele and I were just talking recently - > I want to plant a tree
in my pasture soon for my battle with Lyme, to remind me to be strong,
and i plan
to be around to watch it grow! Dig in those roots, baby!
> I'll think more about it, but my first question would be where! Maybe
along
> highway median strips, so the concept could also act as a pseudo
billboard
> (kinda like the companies that do trash pick-up along roadsides & have a
> sign with their name on it)!
>
> I have to go out for a little bit, but i'll be back. Take care, have a
good
> afternoon!
>
> Love, "your brother in arms..."
> Billy
``````````````````````````````````````
``````````````````````````````````````
From: Billy
hey there,
doin about the same, but i just got finished with jaw bone surgery - no
fun! coincidence, who
knows, but all my problems started when i began going to the dentist for
what i thought was a
tooth problem, which was in '03. the more i went to the dentist for
recurring infection, the more
my speech slurred. turns out i've had a jaw bone infection for years.
how are you doin?
keep up the good fight for Dr. Jones
take care,
billy
````````````````````````````````````
William "Billy" Boesche, 41, died June 10, 2006.
Obituary
William Henry "Billy" Boesché, 41, owner of a landscaping and hauling
business, died
June 10 at his home in Highland. He had chronic Lyme disease and
amyotrophic lateral
sclerosis, or Lou Gehrig's disease.
Mr. Boesché owned CleanUps Unlimited in Highland for 14 years, working
until about
two years ago, when his condition worsened. He had previously worked in pool
maintenance and the pool supplies business.
He was born in Bear Creek, Pa. He moved with his family in 1977 to Ocean
City, where
he enjoyed spending time at the beach. He liked to work around the house
and was
considered the family historian.
Survivors include his wife of 17 years, Michele Boudrye of Highland; his
mother, Betty
Boesché of White Marsh, Md.; three brothers, Steven Boesché of
Sykesville, Md., Jon
Boesché of White Marsh and David Boesché of Wilkes-Barre, Pa.; and a
sister, Michelle
Gilder of Bethesda.
```````````````````````````````````````````````
Billy wrote poems for us... and of course this first one was my favorite...
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=034878
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=035211
My heart is broken tonight.
Posted by Tincup (Member # 5829) on 01 July, 2006 01:38 AM :
While we say a prayer for Bily and his family...
Let's not forget the others.
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=015418
Posted by trueblue (Member # 7348) on 01 July, 2006 01:41 AM :
I'm so sorry, Tincup. -
Posted by dontlikeliver (Member # 4749) on 01 July, 2006 01:46 AM :
I'm very sad for ALSLYME and his family that he lost the fight.......and
us. [Frown]
Posted by bettyg (Member # 6147) on 01 July, 2006 01:46 AM :
Sorry to read of Billy's death. I love his idea also of a tree in his
memory.
Posted by Jon (Member # 9123) on 01 July, 2006 02:21 AM :
I"m sorry to hear this. This and other posts have got me thinking- I
never even considered this thing being fatal for some reason.
The people who die from lyme and co infections, were they battling other
types of illness's? Or Had weakened immune systems? Or were infected for
a long time?
Sorry for these questions I guess its natural to worry about ones own
health when we hear these tragic stories.
Posted by cbb (Member # 788) on 01 July, 2006 02:22 AM :
Tincup, such sad, sad news.
The list is too long!!
....and too many of them were way too young!!
It breaks my heart to hear of each person we lose to a treatable disease.
Sending love and concern to Billy's family.
Will pray that they receive the strength they need to carry them through
this difficult time.
Billy, you will be remembered and you will be missed.
Posted by shazdancer (Member # 1436) on 01 July, 2006 07:38 AM :
It is so tragic. We are still so far from being on top of this disease,
and too many doctors are hell-bent on preventing us from progressing.
Jon, just to answer your question, I am not knowledgeable on every
terminal Lyme patient, but evidence is mounting that some forms of this
disease (over 100 strains of Bb in this country) are fatal. When the
heart is affected, for example, Lyme may result in death.
There is also more and more thought being given to Alzheimer's disease,
ALS, and MS, that at least some of the cases may be due to Lyme. A map
charting charting death due to MS is chillingly identical to a map
charting Lyme fatalities. And I know of at least one ALS cluster in (no
surprise) Connecticut.
If we ever make the firm case that ALS, MS, and Alzheimer's is triggered
by Lyme (or is Lyme), I think the public outcry for adequate care will
finally turn the corner for this disease.
Regards,
Shaz
Posted by Melanie Reber (Member # 3707) on 01 July, 2006 08:25 AM :
I am just so saddened to read this...
trying to type with tears flowing freely for Billy and for so many
others, unknown to us, but special spirits indeed to those who loved them.
I really want to help with the tree plan, for Billy.
You know I have connections in that field, and feel compelled to carry
out his wishes in any way possible.
I KNOW you have your hands full, but please contact me with whatever
ideas you may want to share...and lets get this memorial planted.
May God's healing blanket of love envelope all of those who are affected
by this tragic loss...and may it surround and confort them.
Posted by lou (Member # 81) on 01 July, 2006 08:57 AM :
I'm so sorry to hear about this. He and I exchanged emails several times
because we shared symptoms of "ALS". Got no reply to my last message
several months ago. In my opinion ALS can be not only triggered by lyme
disease but it is in fact neurological lyme, active and not autoimmune
or anything else. Not saying this is the only trigger or that it can be
stopped. Giving people steroids is really adding fuel to the fire when
they have an infectious disease.
Posted by Michelle M (Member # 7200) on 01 July, 2006 09:29 AM :
Golly, Tincup. I wondered why we hadn't heard from him in a long time.
Thanks for letting us know this sad news. I'm so very sorry.
Michelle
Posted by Troup Brazelton (Member # 6297) on 01 July, 2006 09:35 AM :
Tincup, Saddened to read about Billy. It seems his death was sudden,
unlike many with ALS. Do you happen to know the actual cause of death?
My late wife's story read exactly as Billy's. She died of a blood clot
that started just below the original infected area of her left leg. She
was not on blood thinners because we had not read of the doctor in Mo.'s
research about fribrin. Her very first phyical symptom also was the left
foot, 20 months earlier. I felt she was receiving the very best care
from our LLMD and it was the first patient he lost. On IV for 7 months.
She felt she was getting better at the time of her death. There was hope.
Thank you for any information you can share.
Posted by Truthfinder (Member # 8512) on 01 July, 2006 09:53 AM :
So sorry that a Lyme warrior has fallen. Too many people just don't
understand what this disease can do.
Thanks from bringing up Billy's post to you (another thread) Tincup.
What a loss this is.
Tracy
Posted by ellenluba (Member # 1707) on 01 July, 2006 11:15 AM :
Tincup,
I'm so sad to hear about this. The kind of spirit he showed in the posts
you put out is beautiful and inspiring. This is heartbreaking.
At times like this I wish we could all be together in one place to mourn
this loss and all the others who have died from Lyme disease.
Melanie, I'm thinking that if you do plant a tree, maybe we could all
know and have a moment of silence for him at the same time.
Thank you Tincup for what you brought to Billy and what you have brought
to all of us. I know you must be feeling very sad about this and wish I
could say something to help you. All I can do is send you a big hug and
hope you realize how much you obviously gave to this young man during
his struggle.
Ellen
Posted by SAK (Member # 7387) on 01 July, 2006 11:30 AM :
My deepest sympathies for this loss. I pray that time will heal the
family's sorrow and only joyous memories remain.
Let us please remember to keep smiling up at him too. No doubt, his
patience and endurance made him even more special.
Thank you for sharing the news about him.
Posted by lymesux (Member # 6248) on 01 July, 2006 11:47 AM :
TC,
This is so sad, I'd heard of this but did not know who it was. I will
walk with a little heavier heart today.
Thanks for sharing, as always TC.
Posted by Andie333 (Member # 7370) on 01 July, 2006 12:16 PM :
Tincup,
Thanks so much for letting us know about Billy. Maybe you could print
this thread and send it to her, just to pass along our thoughts, prayers
and sorrow.
I hate the toll this disease takes, in quality of life and in actual lives.
My heart goes out to you, Tincup, to his family and to all of us.
Andie
Posted by AutumnDay (Member # 9532) on 01 July, 2006 01:13 PM :
Hi Tincup,
I am new in responding to this board, but not new because I have been a
"lurker" for over 2 years.
I have what I believe to be lyme, and am being treated for it.
I just wanted you to know that I will plant a tree for ALS/Lyme. I will
plant it on the 4th of July to represent the freedom he now has from
this disease. I will watch it grow towards heaven, ALS/Lyme will watch
it grow towards him.
Take care Tincup
Posted by Sue vG (Member # 3143) on 01 July, 2006 02:08 PM :
I'm so sorry. Thanks for letting us know, Tincup.
Posted by Lymetoo (Member # 743) on 01 July, 2006 02:56 PM :
That's terrible!!! I was just thinking about him the other day and was
wondering where he was and how he was doing.
This is truly a sad day! [Frown] I can't plant a tree now...I live in an
apartment...but when I get a house again, I'll Do It!!
Posted by FightFireWithWater (Member # 5781) on 01 July, 2006 03:49 PM :
It comforts me to think of the wonderful support Billy received here.
Thank you to the caring Lymenet helpers who were always here for him.
Posted by 5dana8 (Member # 7935) on 01 July, 2006 04:00 PM :
This is so sad. I hope and pray his family can find comfort [group hug]
Posted by secondtimearound (Member # 7249) on 01 July, 2006 04:24 PM :
My thoughts and prayers are with Billy and his family. We will carry on
the battle and you will not be forgotten.
Scott
Posted by pq (Member # 6886) on 01 July, 2006 04:41 PM :
i'm very saddened to hear this, upset, and angry. Bill and me exchanged
several emails on als/lyme.
prayer sent for him and his family.
i like his idea on planting a tree.
pq
Posted by Aniek (Member # 5374) on 01 July, 2006 05:20 PM :
If anybody knows information on contacting his family or specific
organizations to send donations too, please send me a PM.
I met Billy a few times. I really don't know what to say except that he
touched my heart immediately. He gave me a lyme green ribbon pin on our
way into a hearing at the Maryland State House.
In a way, meeting Billy changed my life. Some know I recently decided to
change my career plans to work on a movement bringing people together to
organize around issues affecting people with pain and movement
disorders. Billy's story was one of many that made me realize we need to
bring together people with all these disorders: Lyme, ALS, MS, Lupus,
Parkinsons, etc.
The hope I saw in Billy was what told me we can create change. I will
wear the pin he gave me proudly so that I always remember.
[ 01. July 2006, 09:39 PM: Message edited by: Aniek ]
Posted by lymemomtooo (Member # 5396) on 01 July, 2006 10:00 PM :
Tincup..I am so sorry..NO one else should have to die with these diseases..
I am a bit tired and praying I do not have to do a return trip to
retrieve wayward teens but I would be willing to do some quilt blocks to
use to help honor and memorialize the lives lost to lyme and associated
diseases.
I had an opportunity to view some of the AIDS quilt squares at a local
high school..They traveled around the country and were part of an
eduational program for schools..A Balto. TV news reporter and others
addressed different aspects of the disease..
I also do not remember anything about their construction except I think
each one was a finished unit, or a few in strips so they could be re
arranged as needed and easy to transport. Wish I was not so brain dead
at the moment.
I am not an artist but I can do some designing and there are many
possibilities with quilt squares. They could depict a favorite thing or
place, and there are new materials that enable you to photo copy
pictures and transfer them to fabric.
Names and dates could be done on each one and diseases listed. Other
personal info and quilter info can be copied on the back.
It would have to be a project that many of us would help with..I do not
have the time to do it all, but would be willing to give it a start.
Tin...And no matter how hard this road is for you, you must carry on and
continue the fight so soon there are no more sad tales to tell...
I will pray for the sadness in your heart to be lighter. Love to you, lmt
I just had time to read some of the other posts and it appears that this
was done before..
Posted by tabbytamer (Member # 3159) on 02 July, 2006 02:22 AM :
Tincup,
So sorry for this loss. Please take comfort knowing that you brightened
Billy's life.
Tabby
Posted by SuZ-Q (Member # 5903) on 02 July, 2006 05:55 PM :
So, so sorry to learn this. My thoughts and prayers are with Billy's
family and friends.
Posted by AZURE WISH (Member # 804) on 02 July, 2006 07:23 PM :
Such sad news [Frown]
I hope his freinds and family can find the srtength to cope with such a
tragedy.
I think the public and th emedical community has to be made more aware
that lyme can kill. It is serious and it is destroying lives.
Posted by sizzled (Member # 1357) on 02 July, 2006 08:37 PM :
This is so sad.
My sympathy to his family and friends.
May he rest in peace.
Posted by SForsgren (Member # 7686) on 02 July, 2006 09:37 PM :
My heart goes out also to those that have been impacted by this loss. It
is tragic and hopefully these things will not happen to those of us with
Lyme in the future.
I think it reinforces the critical need to look at the disease as more
than just "Lyme" and to be sure to address coinfections, detoxification,
parasites, heavy metals, and dental and jawbone infections.
We don't get sick just from Lyme. We have to look at all of the layers
and work them through one by one.
Hopefully, with a synergistic, all-encompassing approach, we can limit
the number of people that suffer this type of loss.
Be well.
[ 02. July 2006, 11:26 PM: Message edited by: SForsgren ]
Posted by Nal (Member # 6801) on 02 July, 2006 09:38 PM :
Im very sad for his family, but happy for him. His suffering is over.
May God Bless him.
Nancy
Posted by trails (Member # 1620) on 02 July, 2006 11:40 PM :
I am so sorry and so sad to hear about ALS/Lyme.
I dont have words, but a lot of tears for his family and for us all.
I like the silence Idea and I hope Melanie you will let us all know what
we can do to help create a memorial for people who are no longer here
because of Lyme.
I remember him as a kind and patient poster at lyment who was always
willing to help others through a rough spot.
[ 03. July 2006, 12:24 AM: Message edited by: trails ]
Posted by lymemomtooo (Member # 5396) on 03 July, 2006 08:40 AM :
I was at the ocean for a few days and thinking about the death of a friend..
As I drove past the Convention Center, I remembered what the firemen and
ladies auxiliary do annually at their convention..They have a memorial
program..
It includes a minister with a brief message and prayer and perhaps a
song, I do not remember and they read off the names of those that have
died during the past year. They had a program with names listed. Family
and friends would attend to remember loved ones.
Maybe something like this could be incorporated into the LDA conference
if they are interested and willing..Or maybe they already do this.
Or there could be a memorial table with photos and a brief story to help
remember those that lost the battle..While a bit scary, it might help
others to fight even more. And others could pause and remember.
Posted by DaughterOf (Member # 6962) on 03 July, 2006 03:10 PM :
This is such awful news. Billy and my father were being treated by the
same doctors at one point. Billy's wife always sounded so upbeat and
hopeful for her husband, as if any day he would turn around and improve.
I am so, so sorry to hear this.
I don't think anyone will ever be able to determine whether there is
really an ALS-Lyme connection.
I have not posted in many, many months. I was saddened when Tincup left
the board for a while and there was so much discord, and then my father
asked us not to pursue the Lyme disease connection anymore, so I backed
off. He is still alive, but just barely. He is completely dependent on
caregivers for all activities of daily living, and uses a BiPap for
breathing 24/7, except to eat. He has a very strong will to live.
I will always remember Billy's poems and his upbeat posts. He had high
hopes that he would be cured some day. My sympathy to Michele and her
family.
Liz
Posted by LostCityAgent (Member # 9050) on 03 July, 2006 07:38 PM :
I am so sorry. I just cannot believe this. He was so young. This is
absurd. WHY CAN'T OUR DAMNED NATION OF THE HIGHEST WEALTH FIX THIS CRAP?
Posted by Ann-OH (Member # 2020) on 03 July, 2006 07:53 PM :
I agree. My stomach lurches and I just keep shaking my head at such
unnecessary losses.
I was trying to find the newspaper for Highland and did. In checking for
obits, I found
1. BOESCHE', WILLIAM H.
Sun, The (Baltimore, MD) - June 18, 2006
2. BOESCHE
Washington Post, The (DC) - June 18, 2006
But I couldn't get to either of those. I am glad those papers carried
his obituary so that people could see what a dear man had lost his life
to Lyme disease and ALS.
Ann - OH
Posted by bugabooboo (Member # 7383) on 03 July, 2006 09:05 PM :
It's so strange to mourn with people you have never seen face-to-face.
(Though, it sounds like some of you have seen one another.)
Our Spirits connect and we bond.
I mourn the death of this man. He was too young.
Bug
Posted by Melanie Reber (Member # 3707) on 05 July, 2006 03:01 AM :
We are already in motion with the Memorial Park project. I'm pleased
that some of you are open to this idea in conjunction with the center.
Again, if anyone would like to help with the Memorial project, please
feel free to contact me personally, or reply to the Memorial post:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=045367
(I could sure use a bit of help with this)
Thanks,
Melanie
Posted by lymeout (Member # 8045) on 05 July, 2006 10:43 AM :
I am so sad to hear of Billy's passing and hope, Tincup, that you will
send our responses on to his family.
I am also very frightened and feel a need, as do all of you, to act on
these feelings of sadness and fright. I would like to participate in a
tree-planting program, a quilt or both. I also think donations to LDA,
specifically to the Chronic Lyme Research Center in Billy's memory,
would be a productive thing. I also think a memorial quilt hanging in
the center when it is opened would be a powerful memorial to all our
fallen lyme warriors. Though some might think it would be a downer for
patients, if it were balanced with illustrations of progress and the
hope the center presents, it could have a positive effect.
We NEED to get that Center built. We shouldn't let another victim fall
without acknowledging it by contributing to this cause. This will be
THEIR victory over lyme disease!
Posted by Tincup (Member # 5829) on 05 July, 2006 05:10 PM :
Hey all..
I have taken all the responses and copied them out and will be sending
them in a small book form to his family.
As I read through the responses you've posted, I cried again. Thank you
all for sharing your thoughts. Your words are very touching. I know this
isn't easy for any of you to handle.. and your comments are precious to
me.. as I am sure they will be to his family.
I contacted three family members and am waiting to hear back from 2 of
them. I shared your messages and told them of the Lyme Memorial we are
planning. They so much appreciated the fact this was going to happen.
They are.. no doubt.. devestated and this news will hopefully help them
deal with the tragedy of losing their son, husband and sibling.
Thank you for your kind words and prayers for Billy and his family.
When I hear back .. I will share with you.
TC
Posted by Kerryblue (Member # 4077) on 05 July, 2006 06:56 PM :
I have been quite ill & not been on sites for awhile. Not familiar with him.
I am so sorry for his loved ones.
I always try to turn a negative into a positive or out of everything
bad, comes good.
Think it is time to combine all of these named diseases with whatever
name they have given my 13 yrs. of research we have found a link.
We need away to combine the FMers/Cfids.MS/MPS/Parkinsons, also ALS
which has been on huge growth of resent.
Lets find away to combine as all diff. type cancers/ Jerry Lewis`s
funding, etc.
If we bind together all the deaths, is 1 few things that get attention.
No diff. than a star or well known named person can get out fight,
because they have clout. Can get to TV., mass media.
If we put this list of deaths all together would be huge.
These are the diseases on the growth.
Somehow all linked to bite of any sort including mosquito`s Govt. let
out for bio-terrorism, that backfired big time.
For all in need,I know I do [group hug] For all battling & suffering.
Kerry
This is way past ignorance now/we need help yeterday.....
Posted by Tincup (Member # 5829) on 06 July, 2006 08:55 AM :
Yesterday afternoon and evening I spoke with Billy's dear wife, his
mother and his sister-in-law. Although I bumbled my way through the
conversations.. they all said they were very happy I called and most of
all pleased to hear you all cared so much. They said to share their
thanks with you and to let you know they appreciate your kindness.
I know they miss him dearly and this is a tragic time in their lives.
Last weekend there was a Memorial Service to celebrate Billy's life and
several hundred people showed up. It seems we weren't the only ones who
loved Billy.. but then I kinda knew that. He had a way about him. He was
a warm soul and cared for and helped many folks.
I shared your idea to have a Memorial built for him and the others who
have lost their battle with Lyme disease and they were very pleased to
hear about it.
I know Billy's wife will keep up the good fight to help those who have
been misdiagnosed and to hopefully prevent others from going through
what her husband did during his short life time. She has been an
advocate for years... not only for her husband... but for all of us.
Actually his whole family has been involved.
Billy had his computer set to notify him of any responses to his posts
here at LymeNet, so his wife has been able to read your comments here.
She may come online at some point.. but right now she needs some space
and time.. as would be expected.
His mother does not have a computer so I will be sending the printed
copy of this post to her.
His mother read to me the most heart warming poem I've ever heard. Billy
wrote it a while back... only to be opened at the time of his death.
There is no doubt .. no doubt what-so-ever that he loved his family.
Again.. be sure to know that Billy treasured your friendship and all the
support he got here at LymeNet. He spent a good deal of time here and
the folks at LymeNet were an important part of his life.
God bless Billy.. and his family.
We won't forget him... and we won't go away!
Here is one big smile for Billy...
[Big Grin]
Posted by Tincup (Member # 5829) on 06 July, 2006 10:11 AM :
As I looked out front and saw my tree.. I just remembered..
Billy's wife will be planting the BIGGEST weeping willow tree she can
get... in memory of Billy. He was fond of weeping willows. They are
beautiful trees!
[Big Grin]
LunaTick
> I
I suggest a Marijuana plant instead of the weeping willow.