Corruptitards and "Rare Diseases"
Mort Zuckerman
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Subject: Corruptitards and "Rare Diseases"
Date: Jun 18, 2008 11:23 AM
COURANT ARTICLE BELOW
===================================
Oh, that's good, because my ex-family has Neurofibromatosis, Autism,
and mine
have Congenital Lyme and Congenital Ehrlichiosis, but no one in the
"family"
besides myself thinks the kids' future is worth 2 cents.
http://www.actionlyme.org/Schoen.htm
http://www.actionlyme.org/DIANE_EHRLICHIOSIS.htm
http://www.actionlyme.org/JAMES_PHILLIPS_HOMEPAGE.htm
In fact, they reported me falsely to duh DCF for being a bad parent
for being an
activist for Lyme disease, since my kids have it.
http://www.actionlyme.org/CAROLYN_VOSSLER_MARTIN.htm
My sister with the Neuorfibromatosis sais she had never even thought
about her children's
future once she's gone and all three of them are disabled - Two with
Neurofibromatosis
and one with Neurofibromatosis Autism.
The Vossler Family does not believe in helping people. Rather, the
reverse.
Kathleen M. Dickson
http://www.actionlyme.org
(PS, Being a Darkefeller, I was literally disowned the day I was born.
Carolyn Martin
tried to return me to the nurses in the Maternity Ward of Milford
Hospital because
my hair was black and I was too ugly, she said, to possibly be her
baby. These are
the kinds of nutcases who report others falsely to duh DCF.
http://www.actionlyme.org/Hilarious.htm
http://www.actionlyme.org/DCF_NANCY_MARTIN_BLOW_ME_OFF_1996.htm
Carolyn Martin invented for me that I threatened to "slit my own
throat."
I am told by "professionals" that that means that Carolyn Martin would
like to slit my throat.)
=============
http://www.courant.com/news/health/hc-aptaskforce0618.artjun18,0,5219014.story
Task Force May Aid Those With Rare Diseases
By SUSAN HAIGH | Associated Press
June 18, 2008
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Connecticut lawmakers are looking for ways to help families grappling
with rare
diseases, some so uncommon they affect just dozens of people.
The Public Health Committee is planning to create a task force this
fall that will
come up with proposed legislation for next January's legislative
session.
"This is the beginning and not the end of this discussion," said Sen.
Mary Ann Handley, D-Manchester, the committee co-chairman.
At a special hearing on Tuesday, genetics experts and a Danbury-based
organization
that helps people suffering from rare diseases urged legislators to
help families
with everything from an early and accurate diagnosis to covering the
cost of treatment.
There are an estimated 6,000 to 7,000 diseases in the U.S. that are
considered rare,
affecting 200,000 or fewer Americans. Some affect a few hundred.
Others impact a
few dozen.
Mary Dunkle, vice president for communications at the National
Organization of Rare
Diseases, said the legislature can enact bills that provide services
to families
with older, disabled children, cover gaps in reimbursements for
medically necessary
foods, and make sure there is adequate screenings of newborns for
certain diseases.
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