Some banker-type folks in the UK went a litlle ballistic over "SMITHKLINE and THE HAGUE"....Re: CT USDOJ, Blumenthal's Office, and Chief State's Attorney's Office Corruption
Peenies, Peenies, Peenies, My Name is Chuck and I love McSweenies'
From: "LymeQ Ween" <lyme...@yahoo.com>
Subject: Some banker-type folks in the UK went a litlle ballistic over
"SMITHKLINE and THE HAGUE"....Re: CT USDOJ, Blumenthal's Office, and
Chief State's Attorney's Office Corruption
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Hmmm.
This post (below) really upset some people over there
especially since I made it a headline on my website.
Can't imagine why.
Think it has anything to do with Anthony Walton
and the insider investor venture cap firms associated
with the ALDF and their FRAUDs on Lyme, too?
Remember they were all a-celebratin Steere's bogus
LYMERix vaccine at the Pierre Hotel in NYC, while
at the same time, declaring Lyme to be a non-disease
in June 2000.
http://www.actionlyme.org/SIKAND.htm
(get the 1998 LYMErix transcripts from the FDA's website):
Ol' Vijay tawkin 'bout how serious Lyme disease is at the 1998 FDA
meeting about LYMErix. Later these crooks all claim Lyme is
imaginary:
"It is well known that Borrelia burgdorferi indeed after asymptomatic
infection can lurk or secrete itself in certain areas of the body,
perhaps the central nervous system or perhaps the joint spaces, only
to reappear months or maybe years later in the form of late stages of
illness which are harder to diagnosis and treat.
"It is probably worth noting, since I have learned a lot, that we
don't have the clinical luxury in private practice that we had in the
SmithKline Beecham trial in which we had baseline sera on all the
patients who enrolled so that when they presented with symptoms, we
could draw acute and convalescent serologies so as to compare them
with each other and with baseline to better understand what symptoms
they are presenting with.
Finally, there are indeed many dilemmas in therapy. In particular,
untreated or inadequately treated Lyme disease may lead to the chronic
morbidity with which we are very familiar. Most commonly arthritis
and the not common but complex neurological syndromes are what often
result and which confront the primary care physician in the office
diagnostically and therapeutically.
These particular outcomes result in much more intensive, long-term
expensive therapy, often in the form of long-term intravenous
antibiotics. These are the patients who often are refractory to
treatment. Indeed, these are the patients in whom symptoms seem to
persist despite what we have given in terms of adequate antibiotic
therapy by any known measure.
In conclusion, we need a vaccine for Lyme disease because it is
increasing in incidence and geographic spread. We need a vaccine for
Lyme disease because there are problems in clinical diagnosis, its
laboratory evaluation, and its treatment. We need a vaccine for
Lyme disease because preventive measures are unfortunately
ineffective. Lyme disease is indeed vaccine preventable.
Availability of this vaccine would lead to a significant reduction in
chronic sequelae and substantive morbidity. Lyme vaccine is thus a
critical new public health approach to the primary prevention of Lyme
disease in the United States. Thank you very much."--
Vijay Sikand, EAST LYME, CT
So, which is it?
And why is Anthony Walton or anyone else
involved in this FRAUD?
http://www.actionlyme.org/ALDF_BOARD.htm
It's insider trading, HMO FRAUD, and SmithKline
indeed committed a huge international crime.
Took me a while to figure out How-Who the
extreme traffic, but now I know Who-How in
the UK.
Bankers.
Probably specific bankers.
http://www.actionlyme.org/WALTON_VICE_CHAIR.htm
Vice Chairman of the American Lyme disease Foundation:
Anthony J. Walton
Mr. Walton is a partner at McFarland Dewey & Company, LLC, a private
investment banking firm. Previously, he was President of Armstrong
Holdings Corp., a private investment company and corporate finance
advisory firm, in this capacity, he was a co-founder of Effinity
Financial Corp., a successful Internet Bank for affinity groups and EC
Trade Services. In 1998, he was recruited as CEO of Caspian Securities
Group and in 1994 and 1995, he served as CEO of the Llama Company, a
private regional investment bank owned by members of the Wal-Mart
Walton family.
>From 1983 to 1993, Mr. Walton served as Chief General Manager,
Americas and Europe, of Westpac Banking Corporation, then Australia's
largest banking group. In 1991, he was appointed to the Board of
Directors of Westpac. Mr. Walton joined the Chase Manhattan Bank in
New York in 1966 and undertook a series of London and New York-based
assignments. A highlight of Mr. Walton's 16-year Chase career included
forming Libra Bank Ltd., an eight-member consortium bank for Latin
America.
In New York as Senior Vice President and CEO of the Global Trade
Finance Group, he established Chase as the premier trade bank
worldwide with over 300 staff and offices in 33 countries. Mr. Walton
was born in London, England and received his B.A. from Haverford
College and his M.B.A. in International Finance from the Wharton
Graduate School of Finance at the University of Pennsylvania.
He is a director of a number of private companies; a Member of the
Council on Foreign Relations; a Director of the American Australian
Association; and a former Vice Chairman of the Board of Trustees of
the Institute of International Bankers.
Hmmm.
Looks as guilty as hell of spinning Lyme, and supporting
the Yale-Plum Island Corrupticut Haven Bioterrorists.
KMDickson
LymeQ Ween <lyme...@yahoo.com> wrote:
Alright.
One more time, because I really do not give
a shit any longer about what happens to corrupt
and insane Americans.
OspA was the vaccine, so Yale et al invented
an imaginary blood testing standard around it-
leaving OspA and B (encoded on the same
plasmid).
Steere went to Germany to hire some young
STUPID lab rats to imaginate that OspA is
not part of the antibody repertoire of
Lyme victims, even though he previously
published that OspA and B antibodies *WERE*
"Lyme Disease."
They wanted OspA to be the vaccine, and they
knew they could not read their Western Blots
in LYMErix vaccinated people, so Yale and
related Assholes lied to the FDA and everyone
else about what the antibody repertoire looked
like in Lyme.
A complete 180, did Steere, and the Yale creeps,
including the psychopath Edward McSweegan who
still has a job approving grants at the NIH,
despite his record of
harassment and outing the
Navy as well as the NIH and everyone else...
http://www.actionlyme.org/McSweegan.htm
I explained all this to the FDA, in person, on Jan
2001. It's all scanned into my website,
including
the pages the FDA left off their PDF files for
submissions for that data (Jan 31, 2001).
Look up and look at what I told them. I refuse
to explain this scam any more, especially if the
assholes on ActionLyme, and Pat Smith's group,
including the psychiatric idiots in ILADS and MMI,
are not reading it, and are not stating specifically
what the crime was all about *** TO THE COURTS and TO
THE USDOJ,*** even though this is totally no-brainer
stuff and they certainly have the money to pay
a lawfirm.
http://www.actionlyme.org/LYME_CORRUPTICUT.htm
OTHER NATIONS are looking at this
crime and
are responding.
Americans themselves have proven they are not
worth saving, by their chronic selfishness and
negligence towards others.
IN THE BEGINNING of ActionLyme, one of the mission
statements was NOT TO talk about our
whiney-ass
symptoms to the media, because the media then
says we're whining fools, and use this information
to discredit us.
That was 1999, September, when I started this group.
THEREFORE, Pat Smith (LDA) tells all her idiot
groupies to do nothing but whine to the media
about how miserable they are, rather than explain
to the media about how the testing for Lyme is
SCIENTIFIC FRAUD.
So, Pat Smith and her idiot groupies are doing
the exact opposite of the ActionLyme mission, and
that would be because to start stating scientific
facts about the FRAUD in Lyme disease, would make
the psychopath Pat Smith look like she is validating
me, and not Pat
Smith.
Now, anyone who has attended a conference where
Pat Smith was a speaker knows that if Pat was
given 30 minutes to talk, the first 20 minutes
is about the "VERY FAMOUS AND AMAZING LIFE OF
PAT SMITH." Pat Smith is exactly like my
sister
Nancy Martin. They decompensate when they're
not the center of attention, and in a room full
of people, if Nancy Martin the pinhead, does not
understand what is being said, she changes the
topic back to herself.
HERSELF is a topic Nancy Martin and Pat Smith
can handle. It could even be about an AMAZING
THING Nancy Martin's kitty did today!!! It's
*cute* what Nancy Martin's kitty did, meaning
Nancy Martin is also cute, I guess. (Nancy
Martin has no children, so she's still stuck
at age 15, emotionally.)
The nutcase Nancy Martin with the no-kids
and three husbands blows me off and then
sends me a mass card from someone else:
http://www.actionlyme.org/DSS_BLOWS_ME_OFF.htm
http://www.actionlyme.org/DCF_NANCY_MARTIN_BLOW_ME_OFF_1996.htm
You can see that my oldest
kid missed most
of school that fall, because I was too sick
to get her out the door.
In other words, and nevertheless she, Pat
Smith and women like her, perpetuate the
notion that we're all a bunch of self-possessed
yuppies and that our disease is yuppiitis
and not Lyme Disease.
I do not appreciate this kind of selfish
behavior being taught to children and adults
by example. Such incompetence and self-centeredness
is not limited to the snotty-ass women of Lyme
however, it's an epidemic at the USDOJ,
Blumenthal's Office, DCF, DMHAS, the Chief
State's Attorney's Office, the Corrupticops
and the Department of Health...
Think
about it.
Who does what I do?
No one in ILADS, MMI, or at the Corrupticut
Department of Health, and especially Blumenthal's
DCF whose job it is to see that all kids get
adequate healthcare...
What do they ALL DO instead?
Priss, preen,
schmooze, Party and F, gossip,
conspire, spend 40 hours a week in front of a
mirror and trash the only decent people in the
State.
And we have no decent lawyers in the State of
Corrupticut, so it will be likely that some
other state wins the Qui Tam.
Or even some other country, because SmithKline
staff know the testing for Lyme is bogus.
Just go to PubMed and type in Lobet and flagellin.
You will find that the SmithKline employee
Yves Lobet published the right primers to use
to identify borreliosis in humans, as recombinant
antigens, and he published that in 1992:
Infect Immun. 1992 Nov;60(11):4856-66.Click here to read Links
Evaluation of genetic divergence among Borrelia burgdorferi
isolates by use of OspA, fla, HSP60, and HSP70 gene probes.
* Wallich R,
* Helmes C,
* Schaible UE,
* Lobet Y,
* Moter SE,
* Kramer MD,
* Simon MM.
German Cancer Research Center, Heidelberg.
In order to assess the genetic variation of immunologically
relevant structures among isolates of the Lyme disease spirochete,
Borrelia burgdorferi, three chromosomal genes encoding flagellin (fla)
and the heat shock proteins HSP60 and HSP70, as well as the plasmid
gene encoding outer surface protein A (OspA), from 55 different
European and North American strains obtained from ticks and mammal
hosts have been investigated by restriction fragment length
polymorphisms (RFLPs). RFLPs of fla and the HSP60 and HSP70 genes
revealed two distinct banding patterns (A and B) for each of the three
genes and allowed the definition of four genomic groups [AAA, BBB,
BBA, and B(A/B)A] for the three chromosomal genes. On the other hand,
RFLPs of the OspA gene revealed six distinct banding patterns (types I
to VI) making up six independent genomic groups for the plasmid-
encoded gene. Furthermore, we have sequenced the chromosomal HSP60
gene from B. burgdorferi ZS7 and the plasmid-encoded OspA gene from
two strains, ZQ1 and 19857. Alignment of the deduced HSP60 amino acid
sequence from B. burgdorferi ZS7 (genomic group AAA) to a previously
published HSP60 sequence derived from strain ACA-1, which according to
the proposed classification is in a different genomic group (BBA),
revealed a sequence identity of > 99%. Similar alignments of the OspA
sequence of strain ZQ1 to those of other isolates that were published
previously revealed sequence identities of between 70 and 94% among
strains of distinct OspA genomic groups. These data indicate the
existence of a restricted number of species-specific subgroups and
clearly show that genotypic variation is much more pronounced for the
OspA gene than for fla and the HSP60 and HSP70 genes. A phylogenetic
tree constructed on the basis of distance matrix analyses of 12 OspA
sequences supports the proposed classification of genomic groups of B.
burgdorferi.
PMID: 1356932 [PubMed - indexed for MEDLINE]
That means SmithKline could be skewered at
The Hague for committing an international
scientific crime, which killed people and
is the worst medical crime in human history.
Yale was behind it all- they own all the
significant and related patents.
Kathleen
I am resending this because the file
got corrupted went I sent
it.
===========
It would be better for ActionLymers to let the whole
world know what Kaiser is doing. Remember, any state can
bring a False Claims Act case. It does not have to be
Blumenthal. Kaiser and SmithKline got nailed for
defrauding Medicaid by relabeling Paxil, together,
before and had to pay an 87 million dollar fine.
Imagine how much someone could get for "Lyme Disease,"
since that would include charges against Yale, NYMC,
Tufts, Boston University, the Mass Medical
Society,
IDSA, the ALDF.com and all their venture cap firms,
Anthony Walton (Banker of the Walmart family) Robert
Woods Johnson, and the Mayo Clinic, as well.
Winnings in the claim would probably be in the billions.
Kathleen
========
B-
I have yet to learn of a single instance where Kaiser has tested
for
coinfections.
The PCP I had who admitted (in written form) that I had Lyme (but
wouldn't do anything
about it since it would incur the wrath of the
Kaisergods) refused to give me any coinfection tests. She said
the
tests were
very unreliable. She was right.
Kaiser uses the labs most likely to give negative results on just
about
any disease. When I was trapped in Kaiser, they sent their Lyme
tests
cross-country to American Medical Labs in New Jersey who
advertised
they
catered to HMO's. AML has been taken over by Quest.
Kaiser seems to continue to do cross-country shipping
of blood samples,
presumably to optimize the chances of sample degradation
(resulting in
negatives for just about anything). One Kaiser lady on the East
Coast
said her samples were sent to Utah. Another, in San Diego, said
her
samples were sent to San Juan Capistrano in Northern California
although
there appears to be a Quest lab capable of WB's in Las Vegas,
which is
much closer. Others on the West Coast have their samples shipped
to
Steere's "no-Lyme" lab.
They have protected themselves against lawsuits using binding
arbitration as a condition of enrollment. Not many realize that
bringing a case
to arbitration can involve legal expenses as high as bringing a
case to
a fair court of law. In California, I believe there is a $250,000
cap
that has been legislated in California. So lawyers have lost
interest
in
challenging Kaiser. I have known at least one case (not Lyme) that
cost
$250,000 to bring to
arbitration and the arbitrator, hired from a
Kaiser pool, ruled against the party whose leg was irresponsibly
amputated.
Kaiser members are totally ignorant of the potential costs of
arbitration.
Kaiser is very much involved with the CDC and IDSA.
I am told that the Mid-Atlantic division, which includes
Washington,
DC, is run as a loss leader so that the politicians will think
Kaiser
is
a fine health
plan.
M
A way around the IDSA guidelines is to have your doctor put down
that
he's
treating the co-infections we all have, such as Mycoplasma,
Bartonella, etc.
LymeQ Ween <lyme...@yahoo.com> wrote:
Klempner mishandled the urine samples, which,
anyone who works in a lab knows what Klempner
did. He did not shake the
samples before
decanting and he left them in the refridgerator
for weeks, instead of freezing them immediately,
which are the specific instructions from Igenex
in urine antigen sample handling.
Anyone who works in a lab knows what will
happen to such samples. They're no good
due to bacteria growth as well as degradation
of the normal proteins.
Klempner did not store the Igenex samples right
and he did not
shake them before decanting
them. That is why Igenex got wacky results.
It also happens to be criminal scientific
fraud on Klempner's part.
However, now, to impede the investigation of
the Lyme crimes, in addition to insano BushCo
and the incompetent suck-up CT US Attorney Kevin
O'Connor, we have to endure Veteran abuse hysteria
which, although long overdue for an investigation,
these Congressman are too retarded to look into
the similar facts in Gulf War Illness and Lyme
Disease
victim abuse.
And the GAO is a joke and a half.
So, again, our only recourse is to contact the
embassies of foreign nations and explain why
no one should do business with Corporate
America.
The benefit of the abuse of Gulf War Vets
(I and II), is that in complaining to the foreign
nations, our complaints about the abuse of Lyme
victims is much more believable, especially since
we sold bioweapons to
Saddam Hussein, and everyone
in the world knows the reason Iraq hung Saddam so
quickly was so that he would not have a chance to
testify about where he got the biological and
chemical weapons he used against Iran and the Kurds.
The net benefit is that the US economy crashes
even sooner.
When that happens everyone in the US will suffer
like Lyme victims have suffered. For decades.
Lyme/Borreliosis is considered a bioweapon,
according to the US Army *AND* Navy.
'We
learned from Sweeg:
http://www.actionlyme.org/GOLDWATER_LETTER.htm
Kathleen
-------------------------------
K,
Kaiser discredits Igenex results.
The fact that Igenex Western Blots are rated the highest of any
lab in
the country is dismissed by Kaiser.
Mark Klempner, Paul Mead and the CDC propaganda machine have done
a
very effective
smear job against Igenex to the detriment of the
patient.
M
LymeQ Ween wrote: I've made the whole affair simple with videos
which are published on YouTube or on my website
(most of them).
[Responding to Announcement below]
Kaiser, Yale, and SmithKline have committed scientific
fraud together at New York Medical College, when they
conspired to set up the "American Lyme Disease Foundation,"
which is as bogus a non-profit as is the Mayo Clinic and
Robert Woods
Johnson in New Joisey.
The essense of the fraud is in the bogus testing
for Lyme. Nick Harris at Igenex explained the bogus
testing for Lyme in a published journal report, and that
report is still on his website:
http://www.igenex.com/labtest.htm
Together, Allen Steere and Louis Magnarelli at the
CT Agricultural Experiment Station in New Haven have
said (published in
scientific journal articles) that if you
don't have severe periodontal disease or syphilis and
have band 41 on a Western Blot, you have Lyme.
This evidence, this published evidence, is in both
the US Attorney's Office in New Haven, and in the
office of the New Haven FBI at 600 State Street
New Haven- an otherwise unmarked building which
has the same Fort Knox-type iron fencing around it that
the DCF Building has at 505 Hudson Street in Hartford.
Perhaps they both anticipate
some resentment
from the community since neither entity does anything
of benefit to the citizenry. The humongous iron fences
we can now take to be a simple of "AGAINST THE PEOPLE."
VERIFY INDEPENDENTLY ON MEDLINE, now called
PubMed, that Lou Magnarelli and Allen Steere have said
that band 41 in the absence of syphilis or severe periodontal
disease means Lyme, especially with Lyme symptoms
(chronic flu-like illness with
migraine).
If Connecticut Attorney General Richard Blumenthal is
going after the Lyme crooks on the basis of the ALDF's bogus
testing schema for Lyme, you can be sure he understands that
the testing for Lyme is bogus, because Blumenthal is a former
US Attorney, and such people almost NEVER bring a case they
think they can't win.
So, how to specifically deal with Kaiser, is to NEVER see
any kind of psychiatrist or psychologist, especially at
their request, and retain a lawyer
immediately.
You can use the Markers of Disease page on my
website, or rewrite these markers on your own, printing
them out, page by page. I demonstrate how to use
MedLine in my videos.
The reason we have psychiatrists or psychologists is
for the specific purpose of BLAMING THE VICTIM, since
that is the only way they get paid. Anyone who is
a manipulative psychopath, like Donald G. Dickson,
knows enough to stay away from
these psychiatric
assholes, and conversely, psychiatrists and psychologists
stay away from psychopaths because they are afraid
of them.
So, How to Beat Kaiser is with the scientifically valid
testing, and the first place to start with that is indeed,
Nick Harris's lab, Igenex.
Igenex is the best lab in the country. Think about it-
Nick identified this problem with the testing for Lyme
over which Blumenthal will nail their asses, in 1998.
(I found out about that publication only
after I was
let out of jail for being a "Unibomber chemist"- the product
of the sicko imagination of one of these psychopaths who
works for the State of Corrupticut - AND YALE - James
Phillips- who did not want to be sued for malpractice).
I went through the trouble of obtaining thi$ electronic
equipment and making movies for people who do not
want to read, to put these movies on the web, just like
I went through the trouble of
creating three websites on
Lyme disease- ALL WITH THE SAME ARGUMENTS-
based on scientifically validity, and here we are...
Over 7 years later...
Perhaps I should try Chinese? Some other language?
No one in the United States can speak English?
What exactly is the problem here?
This is winnable. One should assume that since
the scumbag CT US Attorney Kevin O'Connor was PROMOTED
to Washington, that his failure to prosecute Yale for their
crimes was rewarded, since we
now know the movements
of the US Attorneys is based on intended CRIMINAL outcomes
for the AmerIsrael Regime and Violent Hegemony PNAC
plan for the world's resources based on the bogus "war on
terror," including approving torture and indefinite incarcerations
(actions by the BushCo DOJ meant to be, in themselves, a
means to terrorize people into handing over their property),
and which means there is a yet another good indicator that what
I am saying about Yale must be true.
The Asshole Gonzales promoted Kevin O'Connor to a position
in the USDOJ in Washington as a reward for not prosecuting
Yale for their Lyme crimes.
http://www.actionlyme.org/USDOJ_COMPLAINT_RICO.htm
Constition Gonzo could have given us no better proof that
I am right and that this is a crime and not a controversy.
Now, the only difficulty is in finding a
decent lawyer,
especially if you are poor, which is usually the case with
someone who has Lyme (except for Blumenthal's neighbors,
the Stepford Wives, down in Greenwich). So, in order
to attract some assistance from the ALCU - they will not
help you unless you are, for example a QUEER Lyme
victim, since the ALCU only does stuff that advances the
ACLU's agenda - say you are a QUEER Lyme victim.
Lyme is a not a sexually transmitted disease,
so Kaiser
can't say you acquired this disease the same way AIDS
people acquire AIDS, for example, and deny you treatment
on the basis of the argument that you brought this disease
upon yourselves.
ALCU only does stuff that advances the ACLU's agenda.
I have nothing against queers, since I believe this to
be a biological aberration, but I *do* object to their constantly
putting this behavior in our faces in the same way I object
to the DCF exposing THEIR slutty ways to us,
constantly.
Keep it in the closet. Tolerance swings both ways. Queers
should be reminded that the rest of us find this behavior
revolting. Similarly, if the DCF sluts- who are taught to be sluts
in college by psychologists or the Corrupticut Department
of Mental Health and Addiction Services (Yale)- should stop
slutting around on the taxpayers' dime.
At least stop getting caught. That may be a tough challenge
I realize, and that is
because the DCF sluts are also retarded.
Sociology is well known to be the epitome of no-brainer college
degrees. All you have to so is show up and suck up to the
instructors. And think about it: What is an college instructor
in sociology or psychology? NOTHING. The correct answer
is the one that matches the OPINION of the instructor.
Opinion is what happens before the valid scientific discovery.
The more discovery, the less anyone is entitled to an
opinion.
Additionally, people like Patricia Leebens should expose the
fact that all females in the Yale Psych Department are sexually
harassed. Not doing so, perhaps means she enjoys that
scene, too.
*Who knows* what exactly makes these Corrupticut-Yalie
creeps tick (to so speak).
Regardless, you best bet is to say you're a queer Lyme
victim and acquire an attorney immediately. Make the EFFORT
to guard your life and possessions.
We can't
expect the USDOJ or ILADS.org to do this, since the
DOJ is not what it pretends to be and ILADS is almost all
psychiatric types, so they would have a hard time divorcing
themselves from their phoney profession- which is what they
would have to do to fight for you.
And Nick's lab, Igenex, is the best. No question about it.
Nick knows the bad guys' game. He's known about
it longer than I have, and scientific validity in analytical
chemistry is my
expertise.
'Which is why Yale and the State of CT toasted my ass.
Think about it.
Kathleen
ActionLyme.org
wrote: http://www.kaiserpapers.info/lymevictimadvice.html
Advice For Kaiser Lyme Disease Victims
Most of the many Kaiser Lyme disease victims who have contacted
us
through the
Kaiser Papers these past few years want to know how to obtain
treatment
for Lyme disease. Virtually all of these members have chronic
Lyme
disease, the late-stage persistent form of the disease.
Kaiser follows Lyme disease guidelines issued by the Infectious
Diseases Society Of America (IDSA).
http://www.journals.uchicago.edu/CID/journal/issues/v31nS1/000342/000342.html
These guidelines do not
acknowledge or address the chronic form of Lyme
disease. They only address the acute or early-stage Lyme disease.
The
IDSA guidelines are a subject of an antitrust investigation
initiated by
the Connecticut Attorney General in 2006. The guidelines appear to
be
constructed in a manner that limits diagnosis and treatment and
favors
HMOââ,¬â,,¢s and insurers.
There is an alternative Lyme disease guideline formulated by the
International Lyme and Associated Diseases
Society (ILADS).
http://www.guideline.gov/summary/summary.aspx?ss=15&doc_id=4836&nbr=3481
These guidelines are based on unbiased evidence-based medicine and
the
clinical experience of specialists who have treated many thousands
of
Lyme disease patients. In essence, the ILADS guidelines recognize
chronic Lyme disease
and that Lyme disease patients should be treated until
symptoms resolve or are under control. ILADS has provided a
comparison
with the IDSA guidelines.
http://www.ilads.org/guidelines_compare.html
Although every patient has the right to choose their medical care
options, Kaiser has chosen to ignore the ILADS guidelines and,
therefore,
not provide the member this option. The probable
explanation is that the
ILADS guidelines would recognize a vastly greater number of Lyme
disease victims and the open-ended treatment, sometimes requiring
the use of
expensive antibiotics, would result in costs that are unacceptable
to
Kaiser.
It is possible that Kaiser patients can receive treatment for
early-stage Lyme disease if they meet the restrictive
qualifications provided in
the IDSA guidelines. The Lyme ââ,¬Å"bullseyeââ,¬Â
rash, erythema
migrans, is the hallmark symptom of Lyme disease and is specific
to the
disease. If a Kaiser member is fortunate enough to get this
distinctive
rash,
http://en.wikipedia.org/wiki/Erythema_migrans
photograph it and, if possible, go to a Kaiser urgent care or
emergency
care facility so it will be documented and you will hopefully
receive
timely and adequate treatment, which
is critical. Do not wait for an
appointment with your primary care or other doctor as the rash can
quickly
fade.
If you are not so fortunate as to get the Lyme rash, and most are
not,
a diagnosis of Lyme disease is unlikely, particularly on the West
Coast
where the bulk of Kaiser members reside. Kaiser promotes the
notion
that Lyme disease is very rare on the West Coast;
http://www.kaiserpapers.info/misbymile.html
The ELISA screening test that Kaiser uses is unreliable for East
Coast
Lyme victims and is virtually worthless for West Coast Lyme
victims;
http://www.kaiserpapers.info/nytimesart.html
Please inform yourself of the IDSA guidelines, so that you
receive
diagnosis and treatment at least conforming to the minimal
treatment stated
in these guidelines. A patient who presents with a Lyme rash
requires
no testing. One danger in receiving care for Lyme disease through
Kaiser
is that the member will likely not be tested for coinfections of
Lyme
disease, some of which require different treatment than the
antibiotic
protocol for Lyme disease. Another risk is that treatment may be
inadequate and not resolve symptoms completely. In this case, the
patient can
go on to develop treatment resistant forms of the disease.
For those with chronic Lyme disease, which comprise 100% of the
Kaiser
members who have contacted us, help from Kaiser is virtually
impossible. Kaiser physicians who diagnose and treat the chronic
form of this
disease are subject to reprimand. These patients are usually
assigned to
infectious disease specialists who will normally refuse diagnosis.
To
our knowledge, only one chronic Lyme patient who has contacted us
in the
past three years has received a diagnosis of Lyme disease. This
patient
was given 30 days of antibiotics, told she was cured, and informed
that
any future symptoms she has are not due to Lyme disease. The
patient
continues with Kaiser and continues to be very ill.
Kaiser members have essentially two choices in receiving care for
Lyme
disease;
a.. Change health plans to an ethical insurer providing a
PPO plan in
which a patient is able to select their own specialists rather
than go
through a ââ,¬Å"gatekeeper,ââ,¬Â if this is possible in your
situation. In this way physicians knowledgeable in tick-borne
diseases can be
consulted. Expert medical opinion should be sought since ticks
can
transmit a number of coinfections and most doctors, even outside
of Kaiser,
are not competent to deal with these. Kaiser members with a choice
of
group plans should not have a problem changing because
pre-existing
conditions cannot disqualify one from joining another group plan.
Kaiser
members with individual plans are in a more difficult position,
can be
disqualified with pre-existing conditions and should proceed with
caution.
b.. Pay for competent help for Lyme disease outside of the
Kaiser
system. This can be expensive. Do not expect reimbursement from
Kaiser.
Cases we know of that have been run through Kaiserââ,¬â,,¢s
arbitration
system have been unsuccessful in providing adequate compensation
to the
Kaiser member. In a very few cases we know of, Kaiser has been
known to
pay for extended antibiotics (prescribed by a physician not with
Kaiser
and purchased through a Kaiser pharmacy) provided the medication
is not
expensive. But this may be old information and Kaiser may no
longer do
this.
In either case, Kaiser members with Lyme disease should seek help
from
their local support group.
All or most are very familiar with
Kaiserââ,¬â,,¢s stance on Lyme disease and their tactics. The
links below will
help in locating a support group in your area;
http://www.lymeinfo.net/support.html
http://www.lymenet.org/SupportGroups/
http://lymedisease.meetup.com/about/
There are also Internet discussion groups for Lyme disease such
as
and others. Sites such as these are useful for learning some of
the
issues with Lyme disease and to ask questions. However, it should
be noted
that not all participants are knowledgeable and some of the
information
is not correct.
We recommend that Kaiser
members get copies of their medical records
pertaining to Lyme disease, including laboratory tests. Experience
with
arbitration proceedings has shown that records have a habit of
being
ââ,¬Å"misplacedââ,¬Â when there are legal challenges.
Members who have received abusive treatment should complain to
the
chief of medicine of that Kaiser facility, an approach which has
reportedly
been more effective than filing
a complaint with member assistance. If
the problem is serious enough, the member should file a formal
grievance with Kaiser. If there is no satisfaction, the member has
the option
of filing a grievance with the appropriate regulatory agency in
their
state. In California this is the DMHC. A risk is that the member
may be
labelled a ââ,¬Å"troublemaker,ââ,¬Â possibly compromising
future
medical care.
We realize that it is extremely difficult for a chronic Lyme
disease
patient
with impaired mental cognitive ability to absorb some of this
information for this complex disease but help can be obtained.
The
patient, family member or an advocate has to take the initiative.
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