Morgellon's, NASA, and Los Alamos - This is some sort of a stupidity test, for real.
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Subject: Re: [SpinLyme] NIELS (MORGELLONS) LETTER TO THE CDC
Date: Jan 20, 2008 9:28 AM
I have my doubts about Bill Harvey, since he had Level S security
clearance at Los
Alamos and is a NASA space suit designer. One suspects that such a
person would
have access, still, to Los Alamos labs, and could get a "Morgellon's"
sample in for DNA analysis, not to mention the fact that porosities
and materials,
and infectious diseases, would have to be an area of his expertise.
Sorry, but I think he's a plant.
No pun intended.
There is reason to suspect that if Morgellon's is a real, growing
organism,
it would be some some of a lichen or plant-like fungus, and that it
shows up Lyme
victims is due to the immune suppression, particularly against fungal
antigens that
is characteristic of Lyme/Fibromyalgia/MS/Chronic Fatigue Syndrome,
and that's
not a hypothetical but a FACT:
http://www.actionlyme.org/BIOWEAPONEERS_CORIXA_YALE_TLRS.htm
Duplicated numerous times, including and especially in the ImmuLyme
trial by Gary
Wormser:
http://www.ncbi.nlm.nih.gov/pubmed/10865170?ordinalpos=5&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum
If the CDC says anything, assume the opposite must be true.
Kathleen
-----Original Message-----
>From:
>Sent: Jan 19, 2008 10:42 PM
>To: Spin...@yahoogroups.com
>Subject: [SpinLyme] NIELS (MORGELLONS) LETTER TO THE CDC
>
> http://morgellonsgroup.proboards23.com/index.cgi?board=priority&action=display&thread=1188617937
>
> NIELS LETTER TO THE CDC...A MUST READ
> « Thread Started on Aug 31, 2007, 10:38pm »
>
>--------------------------------------------------------------------------
> This letter is a "must read" for anyone wishing to truly understand
the concerns of the Morgellons community over the CDC award of the
morgellons etiology
study to the giant west coast HMO Kaiser Permanente. The following
letter was excerpted
en toto from its original location at lymebusters.com. The original
can be seen
there. This letter, written by Niels, is very well constructed. It is
an important
contribution to the ongoing struggle of the Morgellons community for
validation
and justice.
>
> -Cliff Mickelson
>
>
> Niels' letter to CDC
> --------------------------------------------------------------------------------
> Date: Mon, 27 Aug 2007 15:58:15 -0700
> From: "Niels"
> To: morgellon...@cdc.gov, Dan Rutz <dw...@cdc.gov>, bo...@cdc.gov,
Barry....@kp.org, Beverl...@kp.org
>
> Subject: why is CDC using a lyme-denialist organization to study Lyme-related
Morgellons?
>
> And why is the CDC specifying all the wrong tests to get to the bottom
of
> Morgellons etiology???
>
> The CDC's Kaiser Morgellons study appears to use the corrupt IDSA
Lyme
> guidelines in its testing protocols. These ensure that not a single tested
> Morgellons patient will show serologic evidence of Lyme disease, even
though the
> majority of Morgellons patients have Lyme disease when tested by a reputable
lab
> such as Igenex, using ILADS diagnostic guidelines.
>
> In particular, the CDC/IDSA protocol of ELISA-first will ensure a 100%
false
> negative test for all Morgellons patients. This "gateway" to
the proper test --
> IgG/IgM Western Blotting -- will never be passed by any of the patients
you
> test with the corrupt and fraudulent IDSA guidelines for Lyme. But your
doctors
> will play "stupid" with these tests, which by the CDC's
own admission, are for
> "surveillance" and not "diagnosis." Furthermore, the
CDC and Kaiser continue to
> ignore ILADS significant science-based conclusions regarding the false-negative
> rate on the ELISA, especially for people infected with Lyme in the three
> epidemic states for Morgellons -- California, Texas and Florida (as opposed
to
> the borrelial species found on the east coast of the USA).
>
> Since the Kaiser Morgellons study patients will be prevented from getting
a
> Western Blot test, there will be no chance to identify the "telltale
bands" of
> Lyme Disease infection. And even if a patient was able to get a western
blot
> test, the tests Kaiser uses (Unilab) delete significant reactivities seen
in
> most Lyme patients, thereby further ignoring clear signs of infection.
The
> reason for this is the CDC's own complicity in Lyme denialism -- it's
coverup of
> the Lymerix vaccine fiasco and the deletion of bands from Western blot
tests to
> prevent "false positives" from a vaccine that nobody can get
because it was
> pulled from the market. The fact that this study perpetuates that fraud,
> continues to coverup the LymeRix fiasco, makes the current Kaiser study
a
> complete waste of time and money from the get-go.
>
> Ultimately, this Morgellons study will perpetuate a scientific fraud the
CDC is
> involved in -- denial of chronic Lyme -- and further ensures that patients
with
> clearly visible Lyme symptoms (rashes) will continue to be ignored and
> misdiagnosed. The CDC's position and the Kaiser study directly
> contradicts the opinions of doctors treating Morgellons patients. For
example,
> http://www.morgellons.eu/ claims "According to Dr. William Harvey
(chairman of
> the NASA Education Advisory Committee) 94% of people suffering from Morgellons
> have tested positive for the bacteria associated with Lyme disease, or
> Borreliosis." The only valid and peer reviewed medical literature
on Morgellons
> also speaks of the connection with Lyme disease (
> http://www.morgellons.org/AJCDerm1.pdf ) and is co-authored by the head
of
> ILADS, which is one of the few professional medical societies that recognizes
> Morgellons and Chronic Lyme.
>
> IMPORTANT: By ignoring ILADS conclusions regarding Lyme disease and Morgellons,
> the Kaiser Morgellons study represents a SYSTEMATIC VIOLATION OF CALIFORNIA
LAW
> by a large corporation and a federal government entity. This is due to
Kaiser's
> refusal to abide by California law, insisting on using the IDSA guidelines
for
> Lyme treatment and diagnosis, and excluding ILADS guidelines. The issue
is that
> in California, according to California Health and Safety Code, Section
104190
> (as amended by SB 772) patients should not be denied the choice of treatment
> under ILADS guidelines, which are designated medically viable:
>
> > "Medically viable" as applied to treatment alternatives
> > means a mode of treatment recognized by a substantial part of the
> > medical profession to be within the scope of current, acceptable
> > standards, including the longer term treatment approach reflected
> > in the treatment guidelines of the International Lyme and
> > Associated Diseases Society (ILADS), "ILADS Evidence-Based
> > guidelines for the Management of Lyme Disease."
>
> Furthermore, SB772 speaks of "outdated CDC surveillance
> criteria" and makes it clear that the misdiagnoses fostered
> by the CDC are medically significant:
>
> > Some persons affected by the advanced stages of Lyme
> > disease have suffered irreparable damage to their health, career,
> > and family. Many victims suffer permanent physical or mental
> > damage due to misdiagnosis or ignorance of the disease. Lyme
> > disease can be fatal.
>
> For more info:
> http://info.sen.ca.gov/pub/07-08/bill/sen/sb_0751-0800/sb_772_bill_20070223_introduced.pdf
> http://lyme.kaiserpapers.info
>
> .....
>
> The IDSA guidelines used by the CDC and Kaiser are under legal challenge
by the
> Connecticut Attorney General. If Blumenthal's case succeeds against
the IDSA,
> all the Kaiser Morgellons study patients would need to be retested under
ILADS
> guidelines, which would invalidate all the Lyme findings of the study.
This
> means that in addition to the decade or so that the CDC has been
> "sitting on it's hands" ignoring Morgellons reports, the
outcome of this bogus
> Kaiser study will also miss a significant aspect of the etiology of this
disease
> AND WASTE AN ADDITIONAL YEARS' TIME AND MONEY.
>
> For more info, see:
> http://www.the-scientist.com/news/home/49605/
> http://www.ilads.org/publications_cameron_11_2006.pdf
> http://www.ilads.org/files/press_release_10_25_06.pdf
>
> Based on this ongoing "controversy", the Kaiser Morgellons study
should "play it
> safe" and test patients under both ILADS (aka use Igenex IgG/IgM
western
> blotting and ignore the CDC's bogus "surveillance" rules
for how many bands need
> to be positive) and IDSA/CDC guidelines (aka all the Morgellons patients
that
> didn't contract Lyme on the east coast will come up as negative and
won't get
> IgG/IgM tests). That way, when the IDSA guidelines are shown to be the
result of
> corruption and scientifically invalid, valid conclusions may still be
drawn from
> the study patients' Igenex test results.
>
> .....
>
> In summary THIS MORGELLONS STUDY BREAKS THE LAW!!
>
> (1) THE CDC/Kaiser STUDY VIOLATES CALIFORNIA LAW AND IGNORES CALIFORNIA
HEALTH
> AND SAFETY CODE SECTION 104190 as per SB772.
> (2) THE CDC/Kaiser STUDY is based on IDSA/CDC guidelines which are currently
the
> subject of an antitrust/corruption lawsuit by the Connecticut Attorney
General.
>
> WHY IS THE CDC VIOLATING CALIFORNIA LAW? WHY IS KAISER VIOLATING CALIFORNIA
> LAW?? Why is the study predicated on Lyme guidelines which appear to be
corrupt?
> Why should the taxpayer waste money on a study which is predicated on
corrupt
> guidelines that has the potential of invalidating the entire study??
>
> .....
>
> Finally, in reviewing the tests Kaiser will be performing on patients,
it is
> clear the CDC has specified a number of serologic tests which will always
come
> back "normal" for Morgellons patients. This will probably be
used to
> fraudulently establish that Morgellons is "Somatization Disorder"
-- which is
> Kaiser's current misdiagnosis of Morgellons and Chronic Lyme, a kinder
and
> gentler "delusional parasitosis." Kaiser will want to continue
this conclusion
> because properly treating and curing Lyme and Morgellons patients will
take
> years of antibiotics and antiparasitics, and will be very expensive. It
is
> financially expedient to let patients suffer with palliative treatment.
This
> will be the conclusion the Kaiser study will reach, based on Kaiser's
purposeful
> non-recognition of Morgellons/Lyme disease etiology, and Kaiser's
refusal to run
> tests which might indicate a chronic infective condition.
>
> In contrast, there are doctors treating Lyme/Morgellons who have published
their
> findings to date. Why is the CDC and Kaiser ignoring this important information
> and pretending that this knowledge does not exist within the medical community?
>
> Specifically, the CDC is ignoring the following important diagnostic information:
>
> (1) According to Dr. Harvey's "PHYSICIAN PROTOCOL, BORRELIA-ASSOCIATED
ILLNESSES
> CURRENT DIAGNOSIS AND TREATMENT" (
> http://www.dstressdoc.com/Morgellons/skin%20physician%20protocol.htm ).
> suggests the following:
>
> > . IgG subclasses (Often S-C 1 and 3 are low. Occasionally Total IgG
is low)
> >
> > . EBV panel (IgGs always elevated)
> > ...
> > Testing for Borrelia-associated agents
> >
> > WHERE these tests are done is crucial. Borrelia and its associated
agents can be difficult to find even with the most recent, carefully
crafted tests.
Rationale is brief here but stems from the initial test criteria being
set 10 years
ago, where inclusion criteria of specimens were for recently-infected
individuals
with high antibody levels, where test positivity depended strictly on
antibodies
(then state-of-the-art), and where two of five crucial Outer Surface
proteins (P31,
P34) were removed for vaccine research. Detection methods now
available are for
antigenic material, and are more sensitive and specific, such as PCR
and DFA.
> >
> > The following specialized laboratories are recommended because they
have given us the highest correlation with successful treatment, and
greatly minimized
the number of tests presently needed to find these agents at
"standard"
commercial clinical laboratories. See relevant attachments.
> >
> > . Igenex Laboratories
>
> (2) According to Burrascano (http://www.ilads.org/files/burrascano_0905.pdf
),
> the CD57/NK1 test is often low in Lyme patients, and this is backed up
by people
> on "lymebusters" Morgellons board posting their CD57 results.
For more info,
> see Stricker RB and Winger EE Immunol Lett. Decreased CD57 Lymphocytes
Subset in
> Patients With Chronic Lyme Disease 2001 feb1;76(1): 43-48.
>
> (3) According to
> http://morgellonstreatmentsteps.com/Morgellons_Medical_informat.html the
> following tests are recommended
>
> > - CD-57+ NK (natural killer cells) (Lymphocyte Subset Analysis)2
> > - IgG (188) and IgM (189) from IgeneX (Western Blot Antibody Assays
for B. Burdorferi)3
> > - CBC (Complete Blood Count)4
> > - CMP (Comprehensive Metabolic Panel)4
> > - ESR (Erythrocyte Sedimentation Rate)4
> > - CRP (C-Reactive Protein)4
> > - ANA (Antinuclear Antibody)4
> > - RA (Rheumatoid Arthritis) or CCP test4
> > - CPK (Creatine Kinase-MB)4
> > - T-4 (Thyroxine)4
> > - TSH (Thyroid-stimulating hormone or Thyrotropin)4
> > - RPR (Syphilis detection test)4
> > - ELISA-WB4
> > - B-12 (Vitamin B12 or Cobalamin; Folic Acid, RBC folate)4
> > - Heavy Metal Screen4
> > - Hb A-1-C (hemoglobin)4
> > - Insulin Assay4
> > - SPEP (Serum Protein Electrophoresis)4
> > - IgG-A-M levels4
> > - IgG subclasses4
> > - Herpes Panel4
> > - C1q (auto-immune marker)5
> > - IL-6 (Interleukin-6)6
> > - TNF (tumor necrosis factor)7
> > ... - Chlamydia pneumoniae IgG/IgM
>
> Of these tests, it is particularly important to test Morgellons patients
immune
> systems, as IMHO, Morgellons is an opportunistic infection brought on
by Chronic
> Lyme's damage to the immune system (and also, possibly through chronic
chalmydia
> pneumoniae infection).
>
> In summary, the Kaiser Morgellons study completely "misses the boat"
because the
> following tests will not be performed on patients:
> > - CD-57+ NK (natural killer cells) (Lymphocyte Subset Analysis)2
> > - IgG (188) and IgM (189) from IgeneX (Western Blot Antibody Assays
for B. Burdorferi)3
> > - SPEP (Serum Protein Electrophoresis)4
> > - IgG-A-M levels4
> > - IgG subclasses4
> > - Herpes Panel4
> > - EBV panel
> > - Chlamydia pneumoniae IgG/IgM
>
> (4) According to Dr. George Schwartz, author of "Lisa's Disease,
Fiber Disease,
> Also known as Morgellon's disease: Origins, staging, clinical course,
treatment,
> case histories, decontamination of house--much more" -- testing for
> microfiliaria should be done via microscopic examination of a peripheral
blood
> smear.
>
> My own research indicates that "ONCHOCERCA VOLVULUS" and it's
Blackfly vector
> may be present in areas considered Morgellons endemic and may be a significant
> aspect of morgellons etiology. In Florida, this is backed up by Trish
> Springstead, RN, who appeared on a recent Florida News segment on "Body
Bugs" (
> http://www1.wsvn.com/features/articles/investigations/MI46364 ). In California,
> Morgellons endemic areas such as Los Angeles county have had longstanding
> problems with blackfly: http://www.lawestvector.org/black_flies.htm
>
> Although it is repeatedly claimed that onchocerca volvulus is not found
in the
> USA, there are scattered reports in the medical literature indicating
otherwise.
> Furthermore, the presence of Morgellons in Blackfly endemic areas of the
United
> States, indicates that these claims need to be updated for the 21st century.
>
> Thus in addition to standard peripheral blood smears for microfiliaria,
blood
> collection should occur through a "bloodless skin snip" as suggested
by
> http://www.mssushi.com/stuff/medschool/notes/micro/other/GKHelminths.doc
.
> That document also suggests "microfiliaria migrate through dermal
lesions"
> therefore the skin snip and blood collection should probably occur from
a
> morgellons lesion and not uninfected skin.
>
> There is also a Lyme connection to Microfiliaria. After all Dr. Burgdorfer
> discovered borrelia by accident while investigating microfiliaria in ticks:
>
> > A microfilaria of exceptional size from the ixodid tick, Ixodes dammini,
from Shelter Island, New York Beaver, P. C.; Burgdorfer, W. 1984
> >
> > Journal of Parasitology 70(6): 963-966
> >
> > Thirty or more microfilariae 0.70-1.32 mm in length were recovered
from the haemocoel of an unengorged adult tick, Ixodes dammini, that
was collected
from vegetation on Shelter Island, New York, USA. Among approximately
500 I. dammini
collected from the same area only one other was similarly infected.
Outstanding
features, in addition to size, were absence of a cephalic space and
the presence
of nuclei in 2 or 3 irregular rows extending to the end of a bluntly
rounded tail.
The microfilariae apparently were ingested in a blood meal that was
taken when the
ticks were larvae or nymphs, and had persisted alive without
development.
>
> For more info, see
> http://lymebusters.proboards39.com/index.cgi?action=display&board=rash&thread=1186564783
>
> ....
>
> PS: Unfortunately, I cannot expect the CDC to be "reasonable"
in its position on
> Lyme disease (and by extension, Morgellons), given the organization's
complicity
> in a coverup of Lyme disease and it's ongoing conflicts of interest
with Lyme
> vaccine manufacturers (see http://www.canlyme.com/Conflicts.doc and
> http://www.canlyme.com/cdc_implicated_2006.html ):
>
> > For instance, the CDC and SmithKline Beecham worked together on the
Lyme-disease vaccine. A 1992 CDC activity report, obtained by UPI,
says the agency
had an agreement "with SmithKline Beecham that currently funds three
positions
at (the CDC) for the purpose of providing information of use in
developing advanced
test methods and vaccine candidates."
> >
> > In June 2001, the General Accounting Office delivered a report on
the issue to Senator Chris Dodd, (D-Conn), that noted that CDC
employees "are
listed on two Lyme-disease related patents" including "a 1993 joint
patent
between CDC and SmithKline Beecham Corporation." The report also said
that
six of 12 consultants working for the CDC on Lyme vaccines "reported
at least
one interest related to a vaccine firm."
> >
> > According to CDC meeting transcripts where the committee weighed
its recommendation, 3 had conflicts of interest with
SmithKlineBeecham. The LYMERIX
lyme-disease vaccine was approved by the CDC on February 18, 1999, and
by October
of 2000, more than 1.4 million people had received the vaccine.
> >
> > But 18 months later, according to UPI, in February 2002, SmithKline
Beecham pulled the vaccine off the market claiming that sales of
LYMERIX were insufficient
to justify the continued investment. However, according to UPI, the
company also
faced hundreds of lawsuits by people who said they suffered side
effects from the
vaccines.
> >
> > The government's database at the time, listed possible side effects
from LYMERIX as 640 emergency room visits, 34 life-threatening
reactions, 77 hospitalizations,
198 disabilities and six deaths after people took the shots since the
CDC endorsed
it, according to UPI.
>
> Thus, I see the CDC's Morgellons study as further corruption and coverup
of Lyme
> disease. I expect the study to be a complete waste of money, and another
> scientific fraud that the CDC will perpetuate.
>
> This is why I'm requesting all Morgellons and Lyme patients to contact
their
> senators and congressmen, especially the ones involved in budget and oversight
> of the CDC. The CDC is wasting our taxpayer dollars on this bogus study,
and has
> been complicit in the suffering of millions of taxpayers who are supporting
the
> organization financially. The selection of Kaiser for this study is pure
> corruption as they have a vested interest in perpetuating the status quo
of
> ignoring Chronic Lyme and Morgellons sufferers symptoms as psychosomatic.
>
> This is the most egregious case of "the fox guarding the henhouse"
I've
> witnessed to date. The congressmen, senators and their constituents have
> all heard about or seen Michael Moore's "Sicko!" in which
Kaiser figures
> prominently. We, the taxpayers funding this study are thus angry, and
we're not
> to allow this medical fraud to continue unchallenged.
>
>
>
>[Non-text portions of this message have been removed]
>
>
>