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Yannis CORRE

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Apr 9, 2003, 12:55:25 PM4/9/03
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Hello,

I have a friend who has a liver cancer.
It is a secondary cancer (with metastase) : the first was a breast cancer.

So, i'm looking for all the real treatements she can take.
Actually, she is under chimio, but i think it's not a really good treatment.

Where can i read any documentations about liver cancer, and all the
treatments about it.
I would want to know although the experimental actions and if it is possible
to save her...

Thank you for your help,

We are french (Paris).
Yannis.


Vladan

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Apr 19, 2003, 7:35:53 AM4/19/03
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On Wed, 9 Apr 2003 18:55:25 +0200, "Yannis CORRE"
<y.c...@cross-systems.com> wrote:

>Hello,
>
>I have a friend who has a liver cancer.

Sorry for jumping on your wagon with no answer, but I have about the
same question. My uncle's been diagnosed with liver cancer, so i'm
searching usenet for some positive experiences.

All sugestions are wellcome.

Vladan
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J

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Apr 19, 2003, 12:02:51 PM4/19/03
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Vladan wrote:

> On Wed, 9 Apr 2003 18:55:25 +0200, "Yannis CORRE"
> <y.c...@cross-systems.com> wrote:
>

> >I have a friend who has a liver cancer.It is a secondary cancer (with
> metastase) : the first was a breast cancer.


>
> Sorry for jumping on your wagon with no answer, but I have about the
> same question. My uncle's been diagnosed with liver cancer, so i'm
> searching usenet for some positive experiences.

Hi Vladan,
The treatment depends on the staging. So you have to know that info
first.
http://www.cancerguide.org/basic.html
What You Need to Get Started Researching Your Options in order to even
begin to start researching your cancer, you need to
gather some basic information about your situation. You need:

The Medical Name of Your Cancer
The Stage of Your Cancer
Possibly the Grade of Your Cancer
Possibly Other Prognostic Factors

<http://groups.google.com/groups?q=+FAQ+group:alt.support.cancer&start=10&hl=en&lr=&ie=UTF-8&scoring=d&selm=af9k8v0732tt480ocpg86fgksdj5sgr25j%404ax.com&rnum=11>

Under "Cancer Information", there's a bunch of links, which lead to
information about many of the more common cancers, one of which is
http://www.nci.nih.gov/cancer_information/cancer_type/
Then select "Digestive/Gastrointestinal" (or "L' for liver). which gets
one here
http://www.nci.nih.gov/cancerinfo/types/liver/
Certain factors affect treatment options and prognosis (chance of
recovery).
The treatment options and prognosis (chance of recovery) depend on the
stage of the cancer (the size of the tumor, whether it affects part or
all of the liver, or has spread to other places in the body), how well
the liver is working, and the patient's general health, including
whether there is cirrhosis of the liver. Prognosis is also affected by
alpha-fetoprotein (AFP) levels.

For adult primary liver cancer, stages are also grouped according to how
the cancer may be treated. There are 3 treatment groups:
Localized resectable
The cancer is found in the liver only, has not spread, and can be
completely removed by surgery.
Localized unresectable
The cancer is found in the liver only and has not spread, but cannot be
completely removed by surgery.
Advanced
Cancer has spread throughout the liver or has spread to other parts of
the body, such as the lungs and bone.
[]

So the first poster's friend was breast cancer metastasized (spread) to
the liver.

If they can't find the primary, they call it CUP (cancer of unknown
primary).
In your friend's case, maybe it's primary liver cancer ?

Hope this helps
J

J

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Apr 20, 2003, 5:21:01 AM4/20/03
to
Vladan wrote:

> Sorry for jumping on your wagon with no answer, but I have about the
> same question. My uncle's been diagnosed with liver cancer, so i'm
> searching usenet for some positive experiences.

I forgot to tell you to try the ACOR mailing list
http://www.acor.org/mailing.html
Do let us know more info and we have perhaps more helpful or specific
responses for you.
J

Vladan

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Apr 20, 2003, 4:34:29 PM4/20/03
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On Sun, 20 Apr 2003 05:21:01 -0400, J <Cala...@example.com> wrote:

>Do let us know more info and we have perhaps more helpful or specific
>responses for you.

The dignosis is: Carcinoma Hepatis Hepatocelulare, primary liver
cancer. It took the whole left and half of the right lobe.

For the therapy he got, I'm not sure about the wording here,

Hemangio Embolyzation with 5TU (or 5FU, not sure) and Lipidiol.

As I understood it, these medicines are to be injected directly into
the malicious tissue (through the artery). One to fight it and another
to deaden encompassing cells in order to stop spreading.

Is there something else we could try? Newer technique, or something.
As you may presume, he'd be willing to try any alternative,
homeopathic, or whatever medicine there is. He's already been
suggested to take Aloya. Anything else?

J

unread,
Apr 21, 2003, 7:17:54 AM4/21/03
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Vladan lux...@eunet.yu wrote:

> On Sun, 20 Apr 2003 05:21:01 -0400, J <Cala...@example.com> wrote:
>
> >Do let us know more info and we have perhaps more helpful or specific
> >responses for you.
>
> The dignosis is: Carcinoma Hepatis Hepatocelulare, primary liver
> cancer. It took the whole left and half of the right lobe.
>
> For the therapy he got, I'm not sure about the wording here,
>
> Hemangio Embolyzation with 5TU (or 5FU, not sure) and Lipidiol.
>
> As I understood it, these medicines are to be injected directly into
> the malicious tissue (through the artery). One to fight it and another
> to deaden encompassing cells in order to stop spreading.
>
> Is there something else we could try? Newer technique, or something.
> As you may presume, he'd be willing to try any alternative,
> homeopathic, or whatever medicine there is. He's already been
> suggested to take Aloya. Anything else?
>
> Vladan

Hello Vladan,

So it's Localized unresectable? (has not spread to other parts of his
body, yet)?

Sounds like he's had chemoembolization
http://www.nci.nih.gov/cancerinfo/pdq/treatment/adult-primary-liver/patient/

On that link, there's also a link to (possible) clinical trials, but a
person has to know the goal of each trial and perhaps make quality of life
decisions surrounding treatment of advanced liver cancer, sadly.

I'm going to try cross-posting to news:alt.support.cancer to see what
others there might say or have tried.
If that newsgroup is hi-lighted in blue, you may only have to click on it,
and it will be added to your newsreader.
There's lots of info recently posted about Trials and symptom management
and quality of life issues, hope you'll have a chance to read through some
of them.

So watch both newsgroups for replies, along with the ACOR mailing list
that I provided in my prior post.

Since your e-mail doesn't seem "munged" some may reply to you privately.
Remember, if someone suggests you buying something, check the web sites we
have posted on the other newsgroup about alternative therapies or post and
ask.
If it sounds too good to be true, it usually is.

I'm sorry but I don't know what Aloya is. Is that hormonal? I can't find
anything remotely connected on searching the internet.

Best,
J

Vladan

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Apr 21, 2003, 2:07:09 PM4/21/03
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On Mon, 21 Apr 2003 07:17:54 -0400, J <Cala...@example.com> wrote:

>I'm sorry but I don't know what Aloya is. Is that hormonal? I can't find
>anything remotely connected on searching the internet.

Thank you for all the help. Unfortunatelly, ther's no that "support"
NG on my provider's server, but I'l do it via Google. I went to SARC,
but couldn't figure out their subscription process. It keeps trying to
install some exe file on my PC, which turns to be a web page, but than
no files can be found on it.

As for Aloya, that's bad spelling on my side, I ment to say ALOE.

Thank's again. I'll keep attention to this place, for crosspost
responses, aswell as something new that might pop out.

J

unread,
Apr 21, 2003, 2:49:35 PM4/21/03
to
Vladan wrote:

>
> Thank you for all the help. Unfortunatelly, ther's no that "support"
> NG on my provider's server, but I'l do it via Google. I went to SARC,
> but couldn't figure out their subscription process. It keeps trying to
> install some exe file on my PC, which turns to be a web page, but than
> no files can be found on it.

Try http://www.news.cis.dfn.de English ?
Google is "klutsy" for replying and/or following a thread (in my experience).
Not sure they'll want to discuss Aloe, but others there might be in clincial
trials.
Or have other treatments which they've tried.
J

Stanbro

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Apr 22, 2003, 12:43:03 AM4/22/03
to
Liver transplantation seems to offer at least some hope of a real cure for
primary liver cancer. If your friend's liver cancer may have been caused by
hepatitis B or hepatitis C infection, there is some chance that the new
liver might also eventually become infected. You can find more information
about liver transplantation in the MEDLINE database.
Go to www.ncbi.nlm.nih.gov. Select PubMed from the menu, and then in the box
type:
hepatoma/su AND liver transplantation [mh]
You should get about 979 references.

"Vladan" <lux...@eunet.yu> wrote in message
news:q016avo790rpo6bqp...@4ax.com...

J

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Apr 22, 2003, 7:47:33 AM4/22/03
to
Stanbro wrote:

> Liver transplantation seems to offer at least some hope of a real cure for
> primary liver cancer. If your friend's liver cancer may have been caused by
> hepatitis B or hepatitis C infection, there is some chance that the new
> liver might also eventually become infected. You can find more information
> about liver transplantation in the MEDLINE database.

It's hard to know how to reply when there's not enough information supplied.
(especially when it's not the patient themselves posting and giving the info).
Liver transplantation apparently is only offered if a liver is available, the
patient can tolerate the surgery (age and other health issues) and the cancer is
localized. (and even at that, I imagine there's rejection issues).
http://www.nci.nih.gov/cancerinfo/pdq/treatment/adult-primary-liver/patient/
J

Clifford Thomas

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Apr 22, 2003, 11:53:32 AM4/22/03
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Stanbro

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Apr 22, 2003, 1:38:01 PM4/22/03
to

"J" wrote>

> It's hard to know how to reply when there's not enough information
supplied.
> (especially when it's not the patient themselves posting and giving the
info).
> Liver transplantation apparently is only offered if a liver is available,
the
> patient can tolerate the surgery (age and other health issues) and the
cancer is
> localized. (and even at that, I imagine there's rejection issues).
>
http://www.nci.nih.gov/cancerinfo/pdq/treatment/adult-primary-liver/patient/
> J
>
***Definitely true. And liver transplantation is far from simple or
pleasant. The antirejection drugs can also suppress the immune system's
response against any lurking residual cancer cells, among all their other
adverse effects. And as you say, not everyone is a suitable candidate. Just
thought I'd mention it, though, since at least for some lucky folks it can
be curative, whereas most of the other treatments are palliative ones and it
sounds like Vladan's friend is getting fairly sophisticated care. There
really aren't a lot of good new choices for hepatoma, unfortunately. Since
many hepatomas seem to have been set off by hepatitis virus infections,
maybe some new approaches will turn up once they get that pathway figured
out. But right now, surgery (including cryosurgery of discrete lesions),
chemo, therapeutic embolization, and maybe liver transplantation seem to be
the available choices.


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