Re: [PLD Polycystic Liver Disease] Health Supplement - ageLOC R2 DAY (from NU...

[BAR...@aol.com]

Diane, these foods do not have complete proteins so they must be combined with complementary foods. Hence combinations such as beans and rice and pasta fagiole (pasta and beans).

 

Barb

 

In a message dated 4/14/2013 2:07:49 P.M. Eastern Daylight Time, pld...@me.com writes:

According to MedlinePlus, proteins from food are essential to make new cells and to repair old cells.

SOME VEGAN SOURCES OF PROTEIN

1. One cup of cooked spinach =7 grams of protein. 2 cups of cooked kale = 5 grams. One cup of boiled peas=9 grams. 
 
2. Hemp 30 grams of hemp powder  = 11 grams of protein
 
3. 1 cup of almond milk = 7-9 grams of protein. 
 
4. Almond butter  1 Tablespoons = 8 grams of protein.
 
5. Quinoa = 9 grams of protein per cup.

6. Lentils One cup cooked = 18 grams of protein!

7. Beans one cup of pinto, kidney or black beans = 13-15 grams of protein
 
8. Sprouted-grain bread = 10 grams of protein in the bread alone.

9. Pea Protein = 1 scoop = 28 grams of protein

10. Garbanzo beans = ½ cup = 7 grams of protein

11. Moringa Oleifera=1/4 cup of cooked leaves=30grams
 

The following table lists the optimal profile of the essential amino acids, which comprises a complete protein, as recommended by the Institute of Medicine's Food and Nutrition 

Essential Amino Acid	mg/g of Protein
Tryptophan	7
Threonine	27
Isoleucine	25
Leucine	55
Lysine	51
Methionine+Cystine	25
Phenylalanine+Tyrosine	47
Valine	32
Histidine	18

I am NOT recommending potatoes, but for instance, here is the amino acid content of 9 potatoes, well over the required amounts of essential amino acids needed daily.

The following table shows the amino acid requirements of adults as recommended by the World Health Organization 2530 calories of baked potatoes (9 large baked potatoes)

Essential Amino Acid	Requirement mg/day/62 kg adult	9 large baked potatoes
Tryptophan	248	565
Threonine	930	1830
Isoleucine	1240	1830
Leucine	2418	2691
Lysine	1860	2933
Methionine+Cystine	930	1534
Phenylalanine+Tyrosine	1550	3553
Valine	1612	2682
Histidine	620	942

~Diane

On Apr 12, 2013, at 3:10 AM, Barb Seidman <bar...@aol.com> wrote:

Don't all foods generate new cells?
Barb

Ng <yokef...@gmail.com> wrote:

Hi Everyone,

Would like to check have anyone heard of this health supplement ? The function is to generate new cell, not sure whether is safe to take it.

It made from Cordyceps Mushroom, Mycelia Powder (Cordyceps Sinensis Fermented), Fructus Punicare Granati Powder and Panax GInseng Powder.

 

If anyone has any info on this product, pls share or comment. 

 

Thank you. 

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[Diane Smith]

Sorry I read they were complete. Pea protein and hemp are complete.  That is why I included 9 potatoes and its amino acid break down so we can see for ourselves what we eat and how our individual diets measure up to amino acid counts. 

What I was more surprised at were the amounts of proteins in vegetables and even some fruits. 

I am taking in about 30 grams of protein per day. All of my lab values are excellent currently. I'll let you know should these change. 

When I see my doc I usually get to see the renal dietitian and sometimes I am lucky enough to see a renal research dietitian. 

These dietitians can put my own diet through a computer program and they tell me if anything is lacking. So far so good. 

Sent from my iPhone 5

~Diane

[Diane Smith]

I was trying to say that not all foods trigger cell growth, only those that contain amino acids. It is the amino acids that trigger cell growth. 

Sent from my iPhone 5

~Diane

On Apr 15, 2013, at 4:59 PM, BAR...@aol.com wrote:

[saman...@verizon.net]

Hi Diane -  Amino acids are also good for your muscles, right? 

[diane]

Yes all kinds of things are good for muscles like  amino acids and vitamin D. Additionally too much dietary  protein is not beneficial to our sensitive kidneys.

~Diane

[diane]

Do any of you ever get Charlie Horses? Have any ever tried 

Life-Flo Pure Magnesium Oil Spray, 8 oz, LifeFlo?

I am considering this. It is a spray that is rubbed in immediately. I know when I take the smallest dose of magnesium after a Charley Horse this works to prevent future attacks for me. I am wondering about a spray that can be rubbed into the muscle during the attack?

~Diane

[diane]

I just discovered in my reading that  branched-chain amino acid granules are good for treating individuals with cirrhosis who get Charley Horses.

http://www.ncbi.nlm.nih.gov/pubmed/22825550

~Diane

[diane]

I found Charley Horses to be related to the type of shoe I wear. Flip-flops or a slipper that has a thong between the greater toe and the second toe can create night time Charley Horses in me.

I don't find stretching to relieve this but here is a trial that found relief a possibility from stretching.

http://www.ncbi.nlm.nih.gov/pubmed/22341378

~Diane

Do any of you ever get Charlie Horses? Have any ever tried 

[diane]

The use of diuretics, statins, and inhaled long-acting β2-agonists (LABAs) is linked to muscle cramps but largely by anecdotal evidence. 

http://www.ncbi.nlm.nih.gov/pubmed/22157068

I don't take any of these drugs. Does anyone who takes any of them notice Charley horses?

~Diane

[diane]

Before starting magnesium oil sprays get your kidney functioning checked. 

~Diane

[Barb Seidman]

I take Lipitor and there is not any cramping. If diuretics give you cramps it's because they can lower your blood pressure too much.
Barb

[diane]

Thanks Barb.

~Diane

[mde...@aol.com]

Quinine is good for cramps and can be taken in many forms.

 

Mark

[Diane Smith]

Thanks Mark, I think quinine might be banned by the FDA in the USA as it causes kidney decline, not sure, it might be a warning.

Sent from my iPad,

Diane

[Jan Meeks]

I get them alllll the time!  I would love a remedy!  I get them in my toes and ankles.  Once a get one I seem to get them continually for the evening.  I always thought it was lack of calcium... don't really know.... any suggestions?

 

Jan

[mde...@aol.com]

No it is not harmful and is in many products eg bitter lemon and it is also in pill form.

 

Mark

-----Original Message-----
From: Diane Smith <smith...@mac.com>

[mde...@aol.com]

Quinine is a good cure for cramps. Ive had it for many years and it is safe. I have had my consultant prescribe quinine sulphate pills.

 

Mark

-----Original Message-----
From: Jan Meeks <nhmom...@yahoo.com>
To: polycysticliverdisease <polycysticl...@googlegroups.com>

[diane]

Sorry . . . 

Warning about Quinine by the FDA.

http://www.fda.gov/ForHealthProfessionals/ArticlesofInterest/ucm317811.htm

Serious risks associated with using Quinine to prevent or treat nocturnal leg cramps (September 2012)

Quinine is FDA-approved for the treatment of uncomplicated Plasmodium falciparum malaria. It is not considered safe and effective for the treatment or prevention of leg cramps -- an "off-label" (non-FDA-approved) use. Quinine is associated with serious and life-threatening adverse events, including:

• thrombocytopenia,
• hypersensitivity reactions, and
• QT prolongation.

Thrombocytopenia associated with the use of quinine for the treatment or prevention of leg cramps includes:

• immune thrombocytopenic purpura
• hemolytic uremic syndrome
• thrombotic thrombocytopenic purpura with associated renal insufficiency.

Fatalities and renal insufficiency requiring hemodialysis have been reported.

http://www.fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsandProviders/ucm218202.htm

FDA Drug Safety Communication: New risk management plan and patient Medication Guide for Qualaquin (quinine sulfate)

Safety Announcement 

Due to continued reports of serious side effects in patients using Qualaquin "off-label" (a non-FDA-approved use) for night time leg cramps, the U.S. Food and Drug Administration (FDA) has approved a risk management plan to warn against the use of this drug for such unapproved uses. Qualaquin should not be used for night time leg cramps.

Qualaquin is ONLY FDA-approved for the treatment of uncomplicated malaria caused by the parasitePlasmodium falciparum, a rare infection in the United States, primarily in travelers returning from malaria-endemic areas. However, the majority of Qualaquin's use in the United States is for the treatment or prevention of night time leg cramps, a use NOT approved by FDA.

Qualaquin use may result in serious and life-threatening blood-related (hematological) reactions, including serious bleeding due to a severe lowering of blood cells called platelets (thrombocytopenia), and a condition known as hemolytic-uremic syndrome/ thrombotic thrombocytopenic purpura which in some cases may result in permanent kidney damage. In some patients, adverse reactions result in hospitalization and death.

~Diane

[diane]

I have tried stretching, helps a bit but not as much as taking the smallest amount of magnesium.

I have tried different shoes, this too helps a bit but not as much as taking the smallest amount of magnesium.

I have tried calcium but this does not make a difference.

I have tried potassium citrate and this does not make a difference.

So last night I decided to give magnesium spray a try. I sprayed it on my left wrist compression of my median nerve (carpal tunnel). It helped almost 100%. I didn't spray it on my right wrist so I could see the difference.

I am actually looking forward to a Charley Horse to see if it works during the cramping episode.  

I bought it at the Vitamin Shoppe here locally for about $10. It is called 

Life-Flo Pure Magnesium Oil Spray

~Diane

[Tracy Sullivan]

Due to the portal hypertension I have with my PLD, I've been taking prescribed diuretic medications for three years and those can sometimes produce painful leg cramps. My doctor has recommended several things:
1) Being diligent about the amount of water I'm supposed to drink each day (he gave me a guideline specific to my situation)
2) Reducing or eliminating non-hydrating fluids such as alcohol and caffeine
3) Eating at least one banana or orange a day for the potassium
4) Drinking 4 to 6 ounces of tonic water before bedtime. Modern commercial tonic water still has quinine in it, but not the dangerous amounts that were historically in the brew (see: http://en.wikipedia.org/wiki/Tonic_water) 

My doctor specifically said not to take quinine tablets as those are considered dangerous.

Regards,
Tracy

[diane]

Sounds good Tracy,

If you also happen to have kidney cysts, if this were me, I would avoid the quinine water and ask my doc about the possibility to try mineral water instead or solé, one glass in the morning.

http://www.pkdiet.com/pages/herbs/food/sole.htm

Warmly,
Diane

[Jan Meeks]

Thank you Diane, I will definitely go out and buy some, it can happen every night which makes sleeping difficult! I appreciate all your efforts toward helping others!      :-) blessings to you!       Jan

[diane]

Thanks Jan,

Let me know if it works. My friend at the apple store never gets wrist pain. She suggested I try typing with my wrist up instead of flat against the computer. I am giving this a try too!

~Diane

[Barb Seidman]

Tracy, it sounds as if the cause of the cramps is losing too much fluid too quickly. I hope you aren't being prescribed diuretics to remove fluid from cysts. It doesn't work.
Barb

diane <pld...@me.com> wrote:

Sounds good Tracy,

If you also happen to have kidney cysts, if this were me, I would avoid the quinine water and ask my doc about the possibility to try mineral water instead or solé, one glass in the morning.

http://www.pkdiet.com/pages/herbs/food/sole.htm

Warmly,
Diane

On Apr 18, 2013, at 9:03 AM, Tracy Sullivan <sulliva...@gmail.com> wrote:

Due to the portal hypertension I have with my PLD, I've been taking prescribed diuretic medications for three years and those can sometimes produce painful leg cramps. My doctor has recommended several things:
1) Being diligent about the amount of water I'm supposed to drink each day (he gave me a guideline specific to my situation)
2) Reducing or eliminating non-hydrating fluids such as alcohol and caffeine
3) Eating at least one banana or orange a day for the potassium
4) Drinking 4 to 6 ounces of tonic water before bedtime. Modern commercial tonic water still has quinine in it, but not the dangerous amounts that were historically in the brew (see: http://en.wikipedia.org/wiki/Tonic_water) 

My doctor specifically said not to take quinine tablets as those are considered dangerous.

Regards,
Tracy

[mde...@aol.com]

According to the manufacturer these are very rare side effects. I have quinine sulphate if that makes a difference. Quinine is in bitter lemon drinks and tonic water.

[mde...@aol.com]

Good computer shops will sell you a cheap wrist support to help you with this. They work. If you use a laptop use an external keyboard with a wrist support.

[Diane Smith]

Thanks so much for the suggestions.

Sent from my iPad,

Diane

[Jan Meeks]

Just to clarify Mark, I don't have carpal tunnel, I have ankle and feet cramps a lot in the evenings, Diane suggested the magnesium spray, I appreciate your suggestions!  Jan

[diane]

Hello Jan,

Have you tried the magnesium spray? Did it help, hinder, or no response?

I have yet to experience another Charlie Horse so I can try it out.

Magnesium spray worked to better my carpal tunnel.

~Diane