Somewhere on teh intarwebs nospam wrote:
> On Fri, 25 Jan 2013 21:13:19 +1300, Peter Huebner
> <no....@this.address> wrote:
>> In article <kdt2tt$gls$
1...@dont-email.me>,
shaun.at...@gmail.com
>> says...
>>>
>>> I have a meeting with W&I coming up in a week or so to re-assess my
>>> eligibility for the 'special benefit' (read: reduce it even
>>> further) so I'll raise the issue of getting a house-cleaner in for
>>> an hour a week minimum to vacuum my carpets as I simply can't do it
>>> any more. :( We won't even talk about the black mould on the walls
>>> and ceilings of the 'wet areas' of the house that I can no longer
>>> clean off! :-/ --
>>> /Shaun.
>>
>> Gods, I am appalled that there isn't better support available for
>> you. I am pretty sure that in our area (Hokianga) the hospital would
>> send someone around to clean and help a few hours a week. Have you
>> tried talking to your community nurse if there's something available
>> in your area?
>>
>> The social security net seems to be gnawed at and whittled away bit
>> by bit by our beloved neo-con political gasbags. :-(
>
> I am also appalled.
That makes three of us. :-/
> Maybe Shaun could post back here and tell us how his meeting with Work
> & Income worked out.
I haven't had it yet. I'm stretching it out to close to the cut-off date as,
not long afer I wrote this I got the forms to also renew / reassess my
eligibility for the Invlaid's Benefit. That requires a(nother!) doctor's
visit and form filling out. I couldn't get in to see my GP before Tuesday
next, and will book my W&I interrogation after that.
> I would like to know
> 1. Do the Doctors and W&I believe the pain levels and disability you
> have?
That's a two-part question so I'll address it as such IYDM? It's hard to
make this short though... I'll try. Firstly "the doctors"....
Up until mid-2010 I'd been with the same GP for a decade. I was getting
increasingly frustrated with my situation. I felt that I wasn't being
listened to, by either my GP or by the (few) specialists I'd seen in that
time. Consequently I requested my medical records from the practice. I was
told that SOP was they forward them to the new GP - and where was I going? I
said it was undecided so I'd like them myself. They didn't like the idea of
a patient having access to their records but complied after I mentioned the
Freedom of Information act. :-/ I shouldn't have had to do that IMO.
On reading them (and between the lines - as I now know you need to do with
correspondence between medical professionals) it became clear why I'd been
treated as I had. The introduction letters my GP was sending out were along
the lines of "presents with apparent pain" and "constantly asks for stronger
pain medication".... It's no wonder that I got treated like I did. One
specialist who I saw in about 2002, widely regarded as one of the best
orthopedic surgeons in NZ treated me particularly badly.
When I visited him he talked for a while, then go me to lie on my back and
he extended my legs, asking me to tell him to stop when it became painful.
He stood at the foot of the 'bed' and lifted a leg, resting it on his
shoulder. It pinched and hurt like quite a lot at about 40� and I told him
so. He stopped there and held it, talking to me for a minute or so. Then he
quickly leaned forwards lifting my leg much higher and causing excruciating
pain (which caused me to limp badly for a week).
I'm a man who had been used to untreated chronic pain - and incidents that
caused pain so intense I'd drop to my knees, even in public - so I didn't
scream like a girl and punch him in the face. Instead I said "ouch" and he
patted me on the shoulder. His report (which I'd not seen until then) said
that "he said he was in pain when my leg was lifted to 40� but, when he was
distracted it could be lifted to more than 60�".
So anyway towards the end of 2010 I was looking for a better GP. I asked my
pharmacist - an excellent healthcare professional - who he thought were good
GPs in Pukekohe. He only gave me two names but it turned out one had handed
in his notice and the other was only a few years from retirement and wasn't
taking new patients. When I expressed my frustration to the shrink I
happened to be seeing at the time (depression, anxiety issues) he mentioned
a GP he'd met from Pukekohe who he said seemed competent.
She turned out to be far more than that. She'd postponed university to have
children and, when they'd left home she'd returned and became a doctor. She
was newly-qualified and in her mid/late 40s. She did what no other GP had
done for me since my accident - pushed ACC and, with the help of a
specialist got them to do an MRI. On getting the results the specialist says
that I shouldn't be mowing lawns, vacuuming etc. but acknowledges that there
aren't many options...
Unfortunately for me after six months with that GP she got a better job
offer in Auckland - where she lived - and so she left. The one I'm seeing
now is OK... FWIW here are a couple of images from my MRI.
The first pretty much shows the extent of the injury (as of two years ago).
It shows the badly damaged lower disc which has ruptured and lost over 50%
of it's fluid. Also the first 'fused vertebra' at the top of my pelvis is
broken and out of place, resulting in my spine being out-of-line at that
point by 1.2cm. What is less obvious is the disc above it is also ruptured
but backwards instead of forwards - resulting on pressure on the spinal
nerve
http://test.internet-webmaster.de/upload/1298068953.jpg
The second shows how the nerves for my lower extremeties are pinched where
they exit the spinal column - causing all sorts of issues with my legs.
http://test.internet-webmaster.de/upload/1298068978.jpg
It seems that my only (govt. funded) option is a spinal fusion operation
which has a 50% chance of making things worse and that none of the
specialists I've seen recommends - And I don't have the funds to do anything
else.
As to whether W&I believe the levels of pain and disability I suffer - I
couldn't honestly tell you. Frankly I don't think they care. All they seem
to care about is paying me as little as they can get away with.
> 2. Is shared accommodation a possibility?
I guess - although, with my psych issues I have trouble relaxing (hah!) when
other people are around. Also for most of my life I've had a preferece for
living alone. I've never minded having visitors and I used to socialise a
lot - but at he end of the day I need my tranquility. Also I've got a
room-and-a-half full of hoarded 'junk' (old audio equipment, a collection of
IBM ThinkPads, most of which require working on to get them going...) to
keep me busy (as if I ever get the.... energy and low-pain time to do it). I
keep them as I can't afford 'entertainment' so I have 'stuff' to keep me
entertained - keep my mind busy.
A couple of times in desperation I've advertised for boarders but it seems
the only people interested in living in this part of town are people who I
wouldn't want in my home. <shrug>
Sorry for the long-winded reply but it's not something I could have
adequately explained in a few sentences.
Cheers,