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NLMSF

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Welcome to the online communication group of the National LeioMyoSarcoma Foundation! We encourage everyone to share their views, comments, diagnosis, and anything you think the rest of the group would benefit from or be interested in. We are here to support each other through good times and bad! Please see our web page at www.nlmsf.org for more information and support!

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Tim Maher, … LaVon S. Esswein8

4/18/14

Lauren Maher lost her battle

To all who have responded, Thank you for your kind words and support. Hi Paula, Lauren had made it

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Lauren Maher lost her battle

To all who have responded, Thank you for your kind words and support. Hi Paula, Lauren had made it

4/18/14

3/12/14

Hey there! http://www.taplow-ows.co.uk/-news.twitter.com?botymeqy601434

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Hey there! http://www.taplow-ows.co.uk/-news.twitter.com?botymeqy601434

3/12/14

Betse, … Rorke-Adams, Lucy B7

9/9/13

Good morning, Deborah, An arachnoid cyst is not malignant. It is less than an inch in diameter and is

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Good morning, Deborah, An arachnoid cyst is not malignant. It is less than an inch in diameter and is

9/9/13

Joni, … patricia cali9

7/25/13

10 year anniversary!

That's wonderful Joni. Congratulations. Yesterday I had my second CT-scan after my diagnosis 3

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10 year anniversary!

That's wonderful Joni. Congratulations. Yesterday I had my second CT-scan after my diagnosis 3

7/25/13

Tim Maher, … Paula Zmuda7

7/22/13

Votrient and other drugs

Hi, Patricia, Thanks for the good wishes and positive thoughts! Paula From: Patricia Cali <

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Votrient and other drugs

Hi, Patricia, Thanks for the good wishes and positive thoughts! Paula From: Patricia Cali <

7/22/13

6/3/13

http://photomi.co.kr/wertuvo.php her husband—or georges conneau whichever you like [missing

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http://photomi.co.kr/wertuvo.php her husband—or georges conneau whichever you like [missing

6/3/13

4/21/13

Dear Listmates: We have just returned from an amazing Hugfest! We had terrific speakers and updates

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Dear Listmates: We have just returned from an amazing Hugfest! We had terrific speakers and updates

4/21/13

Susan Titus, … Paula Zmuda4

4/1/13

Surgery vs No Surgery

Hi, Susan, I don't know what to tell you. I think each of us is a little bit different with this

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Surgery vs No Surgery

Hi, Susan, I don't know what to tell you. I think each of us is a little bit different with this

4/1/13

Mahoney, Dorien R, Susan Titus2

3/31/13

Re: [NLMSF] Digest for nlmsf@googlegroups.com - 2 Messages in 1 Topic

Thanks Dorien. It sounds like your journey is very similar to mine. Did you have surgery prior to

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Re: [NLMSF] Digest for nlmsf@googlegroups.com - 2 Messages in 1 Topic

Thanks Dorien. It sounds like your journey is very similar to mine. Did you have surgery prior to

3/31/13

Tim Maher, … Paula Zmuda8

3/27/13

Hi, Tim, Thank you for replying to my query! Appreciate the info. Glad to hear it was a successful

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Hi, Tim, Thank you for replying to my query! Appreciate the info. Glad to hear it was a successful

3/27/13

3/27/13

Angels lost to LMS

Dear Listmates & friends, If you have lost a loved one to LMS and we don't currently have

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Angels lost to LMS

Dear Listmates & friends, If you have lost a loved one to LMS and we don't currently have

3/27/13

Joni, … caroline pastor11

3/26/13

that handsome man NED and a long slow dance........may it continue

You can do it!!! -----Original Message----- From: caroline pastor <len...@yahoo.com> To: nlmsf

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that handsome man NED and a long slow dance........may it continue

You can do it!!! -----Original Message----- From: caroline pastor <len...@yahoo.com> To: nlmsf

3/26/13

3/13/13

Fwd: [LMSarcoma] Tissue Bank Update: 120 Participants

-----Original Message----- From: Sharon Anderson <2Tai...@gmail.com> To: @LMSarcoma Yahoo

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Fwd: [LMSarcoma] Tissue Bank Update: 120 Participants

-----Original Message----- From: Sharon Anderson <2Tai...@gmail.com> To: @LMSarcoma Yahoo

3/13/13

3/9/13

NEWS FLASH: I just found out today that the hotel for Hugfest 2013 wants our room reservations by the

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NEWS FLASH: I just found out today that the hotel for Hugfest 2013 wants our room reservations by the

3/9/13

3/9/13

Dragon Slayer Event at Green Lake in Seattle, Washington 4/6

This year Debra Gates and Warren Bailey are going to Co-Captain the LMS group at the Dragon Slayer

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Dragon Slayer Event at Green Lake in Seattle, Washington 4/6

This year Debra Gates and Warren Bailey are going to Co-Captain the LMS group at the Dragon Slayer

3/9/13

3/1/13

NLMSF Call for Director(s)

In 2013 the NLMSF Board will have four (4) positions up for election. There are three incumbents

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NLMSF Call for Director(s)

In 2013 the NLMSF Board will have four (4) positions up for election. There are three incumbents

3/1/13

Mahoney, Dorien R

2/23/13

Re: [NLMSF] Digest for nlmsf@googlegroups.com - 1 Message in 1 Topic

Sharon - fabulous U-tube! I hope we can all participate. Dorien ULMS & lung mets 2008

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Re: [NLMSF] Digest for nlmsf@googlegroups.com - 1 Message in 1 Topic

Sharon - fabulous U-tube! I hope we can all participate. Dorien ULMS & lung mets 2008

2/23/13

2/21/13

Fwd: [LMSarcoma] Tissue Drive Story from 2005

-----Original Message----- From: Sharon Anderson <2Tai...@gmail.com> To: @LMS Acor post <

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Fwd: [LMSarcoma] Tissue Drive Story from 2005

-----Original Message----- From: Sharon Anderson <2Tai...@gmail.com> To: @LMS Acor post <

2/21/13

2/19/13

Tissue Bank - up & running

Dear fellow members, Please take the time to go to http://www.nlmsf.org/tissue-donation-forms.html

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Tissue Bank - up & running

Dear fellow members, Please take the time to go to http://www.nlmsf.org/tissue-donation-forms.html

2/19/13

Karin Benczkowski

2/17/13

http://www.motoclubzuera.es/xww/gtepdh8w9lsui98hzwwaopf.73eohvc6 Karin Benczkowski ;HtmlMsgFormat=

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http://www.motoclubzuera.es/xww/gtepdh8w9lsui98hzwwaopf.73eohvc6 Karin Benczkowski ;HtmlMsgFormat=

2/17/13

2/3/13

The Tissue Bank is BACK!!!

Good Afternoon and Good News! After much waiting, training and all angles being checked by compliance

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The Tissue Bank is BACK!!!

Good Afternoon and Good News! After much waiting, training and all angles being checked by compliance

2/3/13

1/30/13

THERESA GOT HACKED....

I GOT HACKED. PLEASE IGNORE WHATEVER YOU GOT FROM ME. MOST LIKELY WILL SAY YOUR NAME IN THE SUBJECT

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THERESA GOT HACKED....

I GOT HACKED. PLEASE IGNORE WHATEVER YOU GOT FROM ME. MOST LIKELY WILL SAY YOUR NAME IN THE SUBJECT

1/30/13

Theresa Miller, Janice Bariski2

1/30/13

check this page out http://bit.ly/117iFNP Janice

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check this page out http://bit.ly/117iFNP Janice

1/30/13

Joni, Liz Simons2

1/16/13

Compassionate use for SSI/SSA

Wow Joni!!! This is such great news!! My husband Russ (36) was diagnosed with LMS 2.5 years ago and

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Compassionate use for SSI/SSA

Wow Joni!!! This is such great news!! My husband Russ (36) was diagnosed with LMS 2.5 years ago and

1/16/13

Laurie B, LaVon Esswein2

1/8/13

Laura, First, sorry for your loss. Second,dealing with the elderly & cancer is bad enough, but

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Laura, First, sorry for your loss. Second,dealing with the elderly & cancer is bad enough, but

1/8/13

1/7/13

http://intertas.com.tr/addht.php

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http://intertas.com.tr/addht.php

1/7/13

Dave Murphy, … Jane Moulds4

12/5/12

Sarcoma Survivor Sings - LA California

Annette, The Holiday season is upon us and we are here to celebrate it. I am very thankful for

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Sarcoma Survivor Sings - LA California

Annette, The Holiday season is upon us and we are here to celebrate it. I am very thankful for

12/5/12

David Murphy, … Tim Maher3

11/18/12

Re: [NLMSF] Digest for nlmsf@googlegroups.com - 2 Messages in 1 Topic

Hi Annette, I hope you and your family are hanging in there and can at least find some joy and

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Re: [NLMSF] Digest for nlmsf@googlegroups.com - 2 Messages in 1 Topic

Hi Annette, I hope you and your family are hanging in there and can at least find some joy and

11/18/12

Lise Nadeau, … Adria B16

11/10/12

Hi Everyone, I don't normally reply all the time, but, I read all of your comments and pray for

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Hi Everyone, I don't normally reply all the time, but, I read all of your comments and pray for

11/10/12

Roger Huckfeldt, … caroline pastor13

11/5/12

Linda, My lumps this time were both of the fatty type and LMS. Initially my lumps showed up on my

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Linda, My lumps this time were both of the fatty type and LMS. Initially my lumps showed up on my

11/5/12

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