Other support for name changes
Pro-Humanist FREELOVER
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November 22, 2010
From New Zealand, at www.stuff.co.nz
http://www.stuff.co.nz/marlborough-express/features/focus/4371879/No-days-off-with-diabetes
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Excerpt:
...
Type-1 diabetes is so different from type-2 that
in their opinion it should have a different name,
the mother and daughter say.
...
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One year ago, at forums.webmd.com:
http://forums.webmd.com/3/diabetes-exchange/forum/932/30
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Excerpt:
DonnaOT posted:
I am so sick and tired of being lumped in to the
"diabetes" category!! So many people don't know
the difference between T1 and T2 and it makes
me crazy!
An article in today's Denver Post talks about the
increase in the number of obese and sedentary
people in this country and how it ultimately leads
to diabetes. No where in the article did it say it
leads to TYPE 2 diabetes! I have type 1 and I am
neither obese nor sedentary! We need to band
together and fight to change the name of this
disease! Maybe then the general population will
not just assume that we have this disease because
of a lifestyle choice we made!!
Sorry for the frustration and anger! This is hard!
If you are with me let's come up with a new name
and get this done!
(From the Type I Diabetes Support Group)
...
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In a post I made under an alternate ID, Dan Jeff,
at facebook.com:
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July 23, 2010
Topic: New Words for High Glucose Conditions
http://www.facebook.com/topic.php?uid=280698979764&topic=19423
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Excerpts:
...
Peter Thomas
HAve only looked at 2 pages so far but have to say
wow! just what we have been waiting for... can't
believe you have also been recieving the heckling
I have also faced fron others ojecting to changing
the names! Will read on and add more later. Thanks
...
Shauna Chastain
Just echoing Peter; Thanks so much for posting these
links Dan, and for all your work in compiling all of this :)
...
Dan Jeff
Thanks for the upbeat responses. I'm grateful for finding
this discussion board where likeminded ideas regarding
new names can be offered. Much appreciated.
...
Peter Thomas
Look at the spelling mistakes in my previous post...that's
how excited I have been!
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Jude Ewing
...
I'm working my way through this but so far I am deeply
impressed! Well done!!! The need to differentiate between
the different conditions, especially Type 1 and Type 2 is
something that I feel very strongly about - it is causing
so much confusion and misunderstanding!!!
We need to get your work to the attention of the BMA
and other medical associations!
...
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Pro-Humanist FREELOVER
C.ure I.nsulinitis A.ssociation
http://prohuman.net/cureinsulinitisassociation.htm
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Pro-Humanist FREELOVER
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Follow-up: Some more articles on support
for name changes for High Glucose Conditions,
focused on a new name for type 1 diabetes.
The first follow-up article, below, in which
Scott King solicits ideas for a name change
focused on the condition which currently
goes by the name "type 1 diabetes".
Scott is the President of Cerco Medical, a bio-
technology company working with the Han-
uman Medical Foundation to develop the Islet
Sheet ... He was diagnosed with type 1 diabetes
[and my suggestion for a name change for that
condition, a condition I've had since March of
1961, is the 11th response to his article] in
1977, and since then has been devoted to
understanding and curing the disease.
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Type 1 Diabetics are Different:
Their Life Depends on Insulin
Scott's Opinion
by Scott King - September 26th, 2010
at solvingdiabetes.org
http://tinyurl.com/type1diabetes-newnamesolicited
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Excerpts:
I sometimes think those of us advocating for
type 1 (juvenile) diabetics would be better off
if our disease had a different name.
...
I have been asking around for suggestions
relating to a type 1 diabetes rebranding.
...
What do you think is a better name for our
diabetes? Scientific names over the centuries
have included diabetes mellitus, ketosis-prone,
juvenile-onset, type 1, and insulin-dependent.
So there is precedent for a name change.
Put your name idea in the comment section,
with a rationale, and we’ll pick the best for
a poll. Then maybe we’ll petition the doctors
for a name change.
...
11. Dan Jeff [that's my alternate ID name I'm
using to post to blogs & facebook in an effort
to lobby for name changes] says:
November 23, 2010 at 7:33 am
Toward the end of March, 2010, I began working
on new words for High Glucose Conditions, start-
ing with a new word for type 1 diabetes, and pro-
gressing to come up with new words for all glucose
anomalies and new words for all conditions which
currently include diabetes in their name.
Details of that effort are far too lengthy to address
in a single post. Brief chart of the new terms for
High Glucose Conditions:
Old Term ……. New Term
Diabetes …….. High Glucose Conditions
Other
Diabetes
Mellitus ………. Other High Glucose Conditions
Type 1
Diabetes …….. Insulinitis
Type 2
Diabetes …….. Cellosis
Prediabetes … PreCellosis
Gestational
Diabetes …….. Gestational Cellosis
MODY ………… Diminosis
(Mature
Onset
Diabetes
of the
Young)
Neonatal
Diabetes …….. Neonatal Diminosis
Diabetes
Insipidus …….. Insipidus
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I encourage everyone to read all of the websites
listed below, consider the suggested names, and
ponder the possibility of supporting these names
to address the issues brought up in these articles.
Thanks for your consideration.
References:
Diabetes Bubble / Diabetes Bubble Burst
http://tinyurl.com/diabetesbubble
Table : Nature of the Diabetes Name/Names
Problems and the Solution
http://tinyurl.com/diabetesnamenamesprobssolution
Reasons for Using Diabetes Word(s)
http://tinyurl.com/usingdiabetesword-words
What is Insulinitis?
http://prohuman.net/insulinitis.htm
C.ure I.nsulinitis A.ssociation
http://prohuman.net/cureinsulinitisassociation.htm
What is Cellosis?
http://prohuman.net/cellosis.htm
Reasoning for Using Insulinitis and Cellosis
http://tinyurl.com/reasons-insulinitis-cellosis
What is Diminosis?
http://prohuman.net/diminosis.htm
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Graphics:
Insulinitis — Glucose Tests
http://prohuman.net/insulinitisglucosetests.jpg
Insulinitis — Insulin
http://prohuman.net/insulinitisinsulin.jpg
Insulinitis — Significant Short-Term Risks
http://tinyurl.com/signifshorttermrisks
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In the following article, Riva Greenberg sug-
gests "betasin" or "mellitus".
"Betasin", catchy, has the advantage of having
few syllables, and clearly distinguishable from
other High Glucose Conditions. As compared
to Insulinitis, "betasin" has fewer syllables, but
has less widespread recognition because far
fewer are aware of beta cells than are aware
of insulin. Also, its use of the word sin, what
with its religious connotations, in the modern
day and age, perhaps a better choice of a
single syllable indicator would be well-advised.
Changing the diabetes implied message of
dying to the betasin implied message of sin-
ning, I think we can do better.
"Mellitus", latin for honey-sweet, I'd prefer that
over diabetes, but that really would be a replace-
ment for all diabetes, aka High Glucose Condi-
tions, and would not be distinguished from other
High Glucose Conditions, so it really would simply
replace diabetes with mellitus, and the adjunctive
descriptors currently added to diabetes/diabetic
would simply be added to mellitus. Not the clear
break from the old terminology that's needed,
in my opinion.
I must say, though, it's a pleasure to see that
others are at least trying to come up with a new
name for type 1 diabetes, although in my opinion,
the solution of new names for all High Glucose
Conditions (which I've been promoting since
March of 2010, see my sig below) is the ideal
nomenclature group to address all of the name
problems with the diabetes/diabetic core words
and the adjunctive words added to those core
words.
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Diabetes' civil war
People with Type 1 diabetes, outnumbered and
overshadowed by Type 2, fight for recognition,
resources — and a new name for their disorder
http://www.latimes.com/health/ct-met-diabetes-rift-20101122,0,6297121.story?page=2
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[this article focuses on some contentious issues,
most of which I disagree with regarding the com-
ments of several which invoke a degree of opposi-
tion among folks with different types of High Glu-
cose Conditions that doesn't actually exist in the
real world, in my opinion, with all due notice of
the renaming aspects of the post, many of which
I agree with]
Excerpt:
...
Greenberg, based in Brooklyn, N.Y., thinks a name
change is worth fighting for, especially since Type 1
diabetes often comes on in childhood and "when
children hear 'die-abetes,' all they think is that
they're going to die," she said.
She proposes "betasin" — as in, "isn't it a sin my
beta cells (in the pancreas) gave up?" — or "mellitus,"
the second half of the full name of the disease, which
is "diabetes mellitus."
...
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"Pro-Humanist FREELOVER" <proh...@cableone.net>
wrote in message news:icdupr$o5o$1...@news.eternal-september.org ...
Pro-Humanist FREELOVER
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Follow-up 2: Recent article in which the mother
of an individual with Insulinitis commented on
her belief that it would be well-advised for the
medical community to change the name for
type 1 diabetes (December 18, 2010):
http://timestranscript.canadaeast.com/news/article/1357764
Excerpt:
... "I truly believe that in order to see the differ-
ences, you have to make it simple for everyone
and I personally think that it would be easier if
the medical community were to change the name.
Not just switch the number from 1 to 2. ..."
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"Pro-Humanist FREELOVER" <proh...@cableone.net> wrote
in message news:icj1a3$9n4$1...@news.eternal-september.org ...