~~~~~~~~~~~~~~~~~~~~~~
Do you believe that if everyone in America ate a proper diet from the time
they were small children--that the number of people in America that
developed type 1 diabetes would be less than half the number that it now
it? I should note that I saw a doctor on television that claimed that the
wrong sort of diet is one of the main reasons that people develop
diabetes. Believe it or not--6.2 million people have diabetes and don't
even know it--source: "Rite Health Guide to Healthy Living" First Quarter
2007 edition.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~
Jason are you brain dead? type 1 diabetes is spread because of diet.
your ignorance is blatant.
> I have been insulin dependant now for 50 years
same here
> and am 53 years of age.
>
> Imagine how I felt when told I was lucky that I still had my
> legs and my eyesight and my kidneys were functioning beautifully.
> well all I could do was laugh
at 1st i laughed (~ late '98)
but a few months later, i cried as hard
as i ever have
> as I have spent my whole life doing all
> the right things medically but with the attitude that I am in control
> NOT the diabetes. to any people out there recently diagnosed - it is
> not so bad honestly and feel free to ask an experienced , not old,
> diabetic.
aside from yer liability to autoimmune disease,
i'm guessing that you, like me, lucked out in
getting a gene set that is somewhat resistant to
the complications of very long term t1 diabetes
don't get too smug
bill t1 since '57, ex 8-yr pumper, beef-L 1x, simple MDI
Mack, you left out "not." ;-)
Actually no type of diabetes I know of is spread because of diet. Diet
may exacerbate it, but in the absence of the necessary genes, t'ain't
gonna happen.
> your ignorance is blatant.
Priscilla
>x-no-archive: yes
>
>Priscilla H. Ballou wrote:
>
>> Actually no type of diabetes I know of is spread because of diet. Diet
>> may exacerbate it, but in the absence of the necessary genes, t'ain't
>> gonna happen.
>
>I completely disagree with this statement. In fact, the generation
>growing up upon implementation of the food pyramid had epidemic
>childhood type 2 DM due to dietary influences and has done away with the
>term "adult onset diabetes."
But it's not just you guys who use the USDA pyramid; it's happening
all over the world. The Chinese stats are particularly scary.
Nicky.
T2 dx 05/04 + underactive thyroid
D&E, 100ug thyroxine
Last A1c 5.5% BMI 25
>x-no-archive: yes
>
>Nicky wrote:
>
>> But it's not just you guys who use the USDA pyramid; it's happening
>> all over the world. The Chinese stats are particularly scary.
>>
>
>
>Nicky, low fat has been promoted for a few decades in more than the
>U.S., if not by the pyramid.
Sure - but look at the Chinese example; their diet is traditionally
low fat, and it's not until they start eating in the same way as the
West that you see problems escalating.
Personally, I'm more suspicious of the whole corn thing, than the low
fat angle. Pesticides and herbicides also make me feel very
uncomfortable.
>x-no-archive: yes
>
>Nicky wrote:
>
>> Sure - but look at the Chinese example; their diet is traditionally
>> low fat, and it's not until they start eating in the same way as the
>> West that you see problems escalating.
>
>That's actually not true, I found when I investigated such a claim. In
>fact, by region, Chinese diet is highly variable, and includes quite a
>bit of fat.
I know Szechwan and Cantonese cuisine, and whilst there are a few
fatty dishes, most calories come from rice. Protein and veggies are
savoury additions, rather than the staple.
>In poor rural areas where there's little access to meat and
>fish, there's a great deal of DM and CVD among the highest starch eaters
>as well.
CVD I've heard of; I'd imagine "classic" DM as we see it wouldn't show
up in a poor rural area, with a high manual labour lifestyle.
>> Personally, I'm more suspicious of the whole corn thing, than the low
>> fat angle. Pesticides and herbicides also make me feel very
>> uncomfortable.
>
>This is a digression. The point I disputed was that only genetics,
>rather than diet, lifestyle or other factors will allow DM to occur.
Mostly - I agree. But the genetic susceptibility might be in a whole
range of areas - from thyroid or adrenal pressures, to simply a low
starting number of beta cells. I don't think there's any doubt that
it's not a simple picture! : )
> CVD is part of the same process. High manual labor would offset some
> of the damage of glycation, I imagine.
I tend to agree with the notion that diabetes is a subset of CVD. Most
people are well on their way to plaque deposits by the time they are 20
years old.
>
>> Mostly - I agree. But the genetic susceptibility might be in a whole
>> range of areas - from thyroid or adrenal pressures, to simply a low
>> starting number of beta cells. I don't think there's any doubt that
>> it's not a simple picture! : )
>
> I'm not suggesting that genetics don't play any role. I'm just
> disagreeing that they play the only determining role.
There have been a few articles lately concerning excessive salt in the
Chinese diet. The type 2 diabetes in Asians is expressed at a much lower
BMI than in most other populations, yet they have the same problem with
visceral fat.
Jason made a bad generalization involving type 1 DMs, so this thread got
off base.
Frank
> I'm not suggesting that genetics don't play any role. I'm just
> disagreeing that they play the only determining role.
I'm not sure if "only determining role" is a technical term, so I won't
dispute it. However, one can have the genetic potential but not pile on
other conditions that actualize it. Genetic predisposition is, however,
in my understanding the one *required* factor. Otherwise everyone in my
office would be diabetic, and not just a handful of us. Most of us are
middle-aged, many of us are fat, and most eat the typical American diet.
Priscilla
> http://www.joslin.org/Action_Medalist.asp
<"Awards to Date
Since 1970, Joslin Diabetes Center has presented
more than 2,400 50-year medals. Joslin has also
awarded 17 distinctive 75-year medals from 1996
to present.">
subheaded to the above ref, i read thru
joslin.org's publicly presented "history" of the
life of 4 long term diabetics (2 beyond 75 years
with insulin, and 2 beyond 50 years with insulin;
all 4 almost certaintly type-1 (99+% certainty, imo))
to my mind, it (their current/recent insulin usage)
is the one best thing that they could comment on
yet, there was *no* mention of their current insulin
routine, nor of their recent insulin usage!
the one mention of "insulin" was that one gave
thanks to their use of an inslin pump
in other words, that one person's use of an
insulin pump is completely out of context,
without knowing the person's specific use
of insulin(s) for the last 10+ years
in my own experience (and opinion), the current
beef and pork insulins are still the best insulins
ever made for long term insulin using diabetics
too bad for US type-1 diabetics that our
"all knowing" FDA has seen fit to recently
short circuit their availability in the USA
which is why i'm starting to not trust Joslin,
and will probably not add my name to their
medal list of those who've passed 50 years
with use of insulin
in my own experience with highly qualified docs,
2 endos and an oncologist, they don't know that
much about insulin and more importantly don't want
to hear my input on problems with synthetic insulin!
(mainly for some subset of type-1, although
i suspect that it also applies to a subset
of the type-2 insulin users, but only near
the end of their life; and yes i used synthetic
insulin for 8 years while i used an insulin pump)
i can only think that this also is true of Joslin!
I have to agree with Alexander on this issue and feel Ihave much
better control with Humalog and Lantus than I did with the animal
insulins when I first started injecting.
But I know Bill is passionate about his animal insulin and feel sorry
for him that he has such a tough time getting it. I mean if it's what
he feels works best for him then it's a pity he can't get all of it he
wants.
You two have both been diabetic longer than I have and I always love
reading your posts because it gives me hope for the future. You are
living examples of how a T1 can tame this beast for a long long time.
Thanks!
Kurt
Yes individual experiences vary *greatly* among diabetics, and I agree
with Bill that the animal source insulins are far better for many of
them. Not all, just as your blaanket statement that "todays insulins are
far better". True for many, not at all for others. Great that they work
for you, but don't think your experience is universal.
I've been using insulin over 45 years so far, have used almost everything
they ever made, almost died because of Humulin, and am currently well
controlled with a Medtronic Guardian RT 522 pump and Novolog. A part of
that is the insulin, and a bigger part the real-time bloog glucose
readings.
Larry L [in Honolulu]
Type-I 45 years so far
I have to agree with Alexander. Because I've used the same the same
insulins and have increasingly better results with the newer insulins.
--
MâckŠŽ Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
http://www.pandora.com enter "Jason & Demarco"
"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt
(o ô)
--ooO-(_)-Ooo--------------------
"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
....Bilbo Baggins
DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
.
^^^^^^^^^^^^^^^^^^^^^^^^^
that's one of the tricky things about synthetic insulin;
namely that it is "compared" to the beef/pork insulin
of 30/40/and even 50 years ago when there were still
serious impurity problems with it. when Lilly came
out with synthetic human insulin, and Novo had no
synthetic insulin, it put the screws to Novo to
address the impurity problem(s) with pork, which
of course quickly followed over to both the main
product on the market (which since day 1 was a mix
of beef and pork), as well as to beef by itself
then too, he'd have to return to using animal
insulin, and very few actually ever do that
> True for many, not at all for others. Great that they work
> for you, but don't think your experience is universal.
>
> I've been using insulin over 45 years so far, have used almost everything
> they ever made, almost died because of Humulin, and am currently well
> controlled with a Medtronic Guardian RT 522 pump and Novolog. A part of
> that is the insulin, and a bigger part the real-time bloog glucose
> readings.
>
> Larry L [in Honolulu]
> Type-I 45 years so far
hey Larry! nice to see you're still kicking. :)
it's been so long since i'd last seen you post
that i'd written you off due to your return to
using synthetic
what i know for myself since returning 100% to
beef and pork (summer '98) is that those miserable
winter colds have gone away and stayed away; and
that was in LA where the winter is very mild.
now that i'm in Chicago for the last 6 winters,
still no worries
but the snow and ice is not what i remembered
from my younger years. :(
on a side note: when i started actively posting
on m.h.d. (late '97?), i was pumping and looking
for my best approach to ditching the pump
if you remember, i was in a sweat about ditching
the pump, as i'd come to believe that i couldn't
do without it
it was a real learning experience
bill t1 since '57
Bill,
Yes I laughed when I came here recently and saw you here. I was equally
happy to see you're still around too!
After so many years of staying away from pumps I did the opposite a few
months ago and started on one. I did it for the Continuous Glucose
Monitoring System. However, while I love the CGMS, I have found I also
love the pump. The 1st week I wore it I realized those were the 1st 7
days in over 45 years I hadn't picked up a syringe. Man was that odd!
The cost is indeed higher, especially with the CGMS sensors, which are
supposed to be good for 3 days at $35 each, with NO insurance coverage on
them. However they actually last 7-8 days (you have to trick the pump)
and I can only say it's still amazing to me that I can press a button and
read my bg. In my case I find I can afford the cost, at least for now.
The pump also gives me the ability to treat say a 50 point too high bg,
which I won't do with a syringe, for just the one unit. It also makes it
simple and painless to take any odd amount, such as 1.3 or 3.1 if I
choose, and yes I have found that to be appropriate considering the CGMS.
I also believe that the 1st company to market with an "artificial
pancreas" will be Medtronic (I have my reasons) and I well know as a
current customer that will put me at the head of the line. My guess is at
least 5 years, but I plan to still be here so . . .
You're now in Chicage, and I've been in Honolulu the past 10 years. Bill,
I gotta say I did better! February 1, sunshine, blue skies, 79 degrees.
April 7, 81 degrees. Need I say more?
So great to see you here, my old friend!
Larry L [in Honolulu]
Type-I 46 years so far
Medtronic Guardian RT 522
Here in Washington DC:
85 Degrees on Mon/Tues April 2/3.
Snow advisories and a few inches expected this morning, Saturday April
7. Bing Crosby got the words wrong, it was supposed to be "White
Easter"!
On Tuesday I went down to the Tidal Basin, nominally to see the cherry
blossoms, but I think I spent more time leering at girls half my age
running around in shorts and tight tops :-). You'd NEVER have that
problem in Hawaii, right?!
Tim.
> After so many years of staying away from pumps I did the opposite a few
> months ago and started on one. I did it for the Continuous Glucose
> Monitoring System. However, while I love the CGMS, I have found I also
> love the pump. The 1st week I wore it I realized those were the 1st 7
> days in over 45 years I hadn't picked up a syringe. Man was that odd!
agreed
when i started the pump (jan.'91) it was
the 1st time in 34 years that i'd felt
half normal
>
> The cost is indeed higher, especially with the CGMS sensors, which are
> supposed to be good for 3 days at $35 each, with NO insurance coverage on
> them. However they actually last 7-8 days (you have to trick the pump)
> and I can only say it's still amazing to me that I can press a button and
> read my bg. In my case I find I can afford the cost, at least for now.
maybe i haven't been paying enough
attention to what's going on
is the CGMS a separate device?
(meaning separate from your pump)
>
> The pump also gives me the ability to treat say a 50 point too high bg,
> which I won't do with a syringe,
so long as you have ok eyesight, it's actually
easy to do with 30 unit syringes, which i find
that i can estimate shots to +/- .2 units
per log, my most recent example was this past Tuesday:
got up very late 11:00AM=53, drank a cup of
black tea (no cream nor sugar), 1:20PM=107,
2:30PM=123 1.0R 19.4L and a small piece of 72%
dark choclate, 5:15PM=63 eat for the 30% SL action
> for just the one unit. It also makes it
> simple and painless to take any odd amount, such as 1.3 or 3.1 if I
> choose, and yes I have found that to be appropriate considering the CGMS.
for the last 10 years, i've preload my 30 unit
syringes (to 30 units) with pork-R and beef-R,
with the syringes kept in the individual plastic/
paper enclosure that some syringes come with.
(BD does not do this, so i occasionally buy
another brand simply to get the enclosures,
which i mark with either PK or BF). per input
on this n/g, i stopped using alcohol swabs for
doing shots. on average i take maybe 5 shots
of R (anything from less than .9 to as much as
maybe 12 units) before the syringe is emptied
my A1c's have been consistently near normal
(non-diabetic) for this past 10 years. :)
if anything, i still feel half normal with
this new/old shot routine. :) and i find
it easier to do than the hassle of all the
pump's parfinalia (is this a word? it's
not in my dictiony!)
fwiw, my number of shots this past 5 days are:
L Meal Correction
M 1 1
T 1 1 1
W 1
T 1
F 1 1
my correction shots tend to be small,
but this morning i got up with 261
at 6:35 and took an "overcorrection"
of 8.0 slow beef-R. (i ran abnormally
high all day yesterday) meaning that
roughly 10:30AM i'll have to eat for
the excess 4/5 units of beef-R
>
> I also believe that the 1st company to market with an "artificial
> pancreas" will be Medtronic (I have my reasons) and I well know as a
> current customer that will put me at the head of the line. My guess is at
> least 5 years, but I plan to still be here so . . .
>
> You're now in Chicage, and I've been in Honolulu the past 10 years. Bill,
> I gotta say I did better! February 1, sunshine, blue skies, 79 degrees.
> April 7, 81 degrees. Need I say more?
>
> So great to see you here, my old friend!
thank you Larry
especially thank you for your help
back in '97 and '98
bill t1 since '57
> Larry L [in Honolulu] wrote:
>
>> After so many years of staying away from pumps I did the opposite a
>> few months ago and started on one. I did it for the Continuous
>> Glucose Monitoring System. However, while I love the CGMS, I have
>> found I also love the pump. The 1st week I wore it I realized those
>> were the 1st 7 days in over 45 years I hadn't picked up a syringe.
>> Man was that odd!
>
>
> maybe i haven't been paying enough
> attention to what's going on
>
> is the CGMS a separate device?
> (meaning separate from your pump)
Actually a couple of companies have CGMS systems now, though Medtronic
(Used to make pacemakers, bought Minimed) seems to ahve the lead. The
System I have uses the pump for the display. I press a button and it
shows me the current reading along with a graph of the last 3 hours. The
data is read and kept every 5 minutes, and it lags your bg by about 10
minutes, because it's actually reading the glucose level of the
interstitial fluid between your cells, not the actual blood sugar.
The beauty is that you not only see the number, but which direction it's
going in, with warning arrows if the rate of change is steep. You also
get alarms at whatever levels you choose for high and low readings if you
want. The pump does NOT make any decisions about that information, but of
course you can then inject insulin as you wish based on the info.
The system is available withOUT the pump. It's just a display unit with
the same sensors. So far, no insurance co's seem to be paying for the
sensors, and they're $35 each and are supposed to last for 3 days. So
after 3 days you just tell the pump you have a new sensor, and presto it
goes on. The readings get less accurate though as days pass, and at some
point it quits working altogether. People generally get 7 days out of a
sensor, and I've heard of people get up to 14, but that's rare.
>>
>> So great to see you here, my old friend!
>
>
> thank you Larry
>
> especially thank you for your help
> back in '97 and '98
>
> bill t1 since '57
>
>>
Nice to be remembered after all these years. Who knew we 'd still be
here?
Larry L [in Honolulu]
Type-I 45+ years so far
Medtronic Guardian RT 522
What is it that kills the sensors? It would be ironic if it was high
BGs! :-)
Chris Malcolm
Actually Chris, your body does. The sensor is essentially using a
chemical reaction, and your body uses up the chemistry. If you add more,
the results aren't accurate, so that's pretty much the state-of-the-art
today. The FDA is the one that limits the use to 3 days, that's in the
approval, however, Medtronic well knows that they can be used longer and
is apparantly applying for approval for 6 days. I suspect they might
produce one that lasts longer with time, but they have no incentive to.
Remember that we can generally get a free meter because the strips are
where the $$ is. At $35 every 3 days, there's a LOT of payback there.
FYI, as I am typing this I just got a warning from my pump saying "Weak
Signal" which is the death knell of the sensor. Today is 7 days for this
one. I guess it heard me.
Larry, is the alarm loud enough to wake you if you have a hypo while
sleeping? Does it vibrate?
My pump won't wake me with the audible alarm, but when it vibrates, I go
through the roof. Compared to my pager, my pump vibrates like an
electric shock.
Vicki
Vicki, Good question, and one way to personally specific to answer. I'm
on peritoneal dialysis, meaning I sleep nights connected to a machine.
It's rare for me to make it through a night without an alarm or 3 from my
machine, so if my pump beeps I also wake up. It's actually only done that
maybe twice in 3 months, however, so I don't have a lot of evidence, and
no, it doesn't vibrate.
What it does, however is effective I think. When it alarms, for any
reason, you have to press two buttons to cancel the alarm, or it goes off
again every couple of minutes until you cancel it. It's quite insistent!
My blood sugars have been so much better with it that I have high and low
alarms set at 65 and 200, and so far I've never heard the low one, and
the high one has gone off twice in the last month. That's *nothing* like
my experience before, when I'd generally see 50 once or twice a week and
300+ once a week. When you can press a button and see what it is and
where it's going, you can much more easily stay ahead of it, or at least
that's been my experience.
You'll also get an alarm if you haven't done a calibration check in 12
hours, so you need to do that just before bedtime so you don't get
reminded in the middle of the night. It beeps as a reminder 1 hour before
the limit. If you go past the 12 hours it simply stops giving readings.
The 2 endos in our city have been fighting for an auto dialysis program
for years. Doesn't seem like it's going to happen in the near future,
you're fortunate to have that option.
At this point in time the system is unusable for me. The Minimed rep had
a display system at our last support group meeting. The sensor is just
too darned big. I spend a lot of time at work squeezing into a freezer
packed full and I've pulled out my Sils enough times to know it's not
feasible. Luckily for now my bgs are stable, my basals are on-the-money,
and since I've been pumping my hypo unawareness is much better.
I have an Animas pump. It will be interesting to see what they come up
with now that Johnson & Johnson have taken over.
Vicki
Vicki,
Not true any longer. While the old system was indeed large, Medtronic
started shipping its new "Minilink" three weeks ago (I'm wearing one).
It's the size of a couple of quarters stacked up. It's so small and
light, most people don't even tape it down.
I loved reading everyone's story. I think people forget that type 1's
dx'd as children do live past the age of 18. Although we're still
forgotten about to a large extent.
Anyway, I was dx'd type 1 in the summer of 1978 (age 12). There was
no diabetes anywhere in my family (still isn't), and I'm complication-
free today. My opthamologist tells me every year that she'd never
guess I had type 1; my eyes are just fine. The pediatrician I had at
diagnosis told me I'd most likely never see 40. Ha! What did he know?
I take Humalog/Lantus. The Humulin R & NPH almost killed me. I am
grateful to have had good luck with the current insulin routine. I'm
healthy, take no prescriptions except insulin, and I feel grateful
that I've survived this long. I've had Humulin hypos that have almost
killed me, though. It hasn't been easy that's for sure.
Bill mentioned that dna/heredity can play a role re longevity/
complications w/diabetes. I tend to agree. My parents are 80 yrs old
and still going strong. They look younger than their years and despite
a few "manageable" health issues it's all good.
Jenn
Type 1 for 29 yrs.
~~~~~~~~~~~~~~~~~~~~~
Jenn,
It's my guess that the pediatrician had a good reason for telling you that
you would never see 40. The reason was probably because he had seen case
histories about diabetes patients while he was in medical college. Those
case histories indicated that lots of people (I don't know the exact
percentages) that had diabetes died before the age of 40. The reason is
because those people in those case studies did NOT do what Snowflake done
and would not have been able to make this statement:
"I have spent my whole life doing all
the right things medically but with the attitude that I am in control
NOT the diabetes. "
Yes, I agree that good genes also play a role. Medical care and knowledge
is also much better now than it was 20 years ago and far better than it
was 50 years ago.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Steve
Type 1 Since 1967.
"Jenn" <Jen....@gmail.com> wrote in message
news:1178385946.8...@w5g2000hsg.googlegroups.com...
>
>Steve
>Type 1 Since 1967.
>> Jenn
>> Type 1 for 29 yrs.
>>
hmm there's a theme developing.