Juvenile Diabetes Cure Alliance -- Practical Cure for Insulinitis

[Pro-Humanist FREELOVER]

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Found out about this group from reading
the following recent article, "JDCA Report:
Diabetes Research Spending Ignores
Donors’ Desire for Practical Cure", pub-
lished May 20, 2013:
http://www.timesunion.com/business/press-releases/article/JDCA-Report-Diabetes-Research-Spending-Ignores-4532852.php

Key Excerpts [with inserts, not part of original
article, included in brackets]:

... A report released today by the Juvenile
Diabetes Cure Alliance shows that only 2 cents
of every donor dollar contributed to the four
major ... [High Glucose Conditions] nonprofits
goes toward research that could deliver a
near-term cure for people currently living with
... [Insulinitis (old name: type 1 diabetes)].

In analyzing $380 million in donor contributions,
the JDCA found that only $9 million went toward
practical cure research in 2012. According to the
report, the vast majority of funds were used for
research that is unlikely to deliver a cure in the
next 100 years; other research not aimed at
finding a cure; and non-research activities.

The report concludes that the spending priorities
of the American Diabetes Association, JDRF,
Joslin Diabetes Center and Diabetes Research
Institute Foundation are inconsistent with the
wishes of donors.

...

The JDCA distinguishes between a practical
cure that would allow people with ... [Insulinitis]
to live a normal lifestyle in the foreseeable future
and an idealized cure that would completely
eliminate the disease for future generations.

...

[see article for details on their financial assess-
ment of cure research, and details on their criti-
cisms of the actual amounts/percentages going
to practical cure research for Insulinitis]

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As for what they're referring to when they use
the term "practical cure", that's iterated at their
website:
http://www.thejdca.org/practical-cure/practical-cure-projects-in-human-clinical-trials/

o Minimal Monitoring: does not require blood
glucose monitoring beyond once a week
[actually, the perfect glucose situation
would entail non-invasive monitoring of
glucose levels for everyone, displayable
via a watch which everyone wears, so
that -if- any glucose anomaly transpires,
everyone would know and would seek
medical help in order to deal with it quickly]

o Minimal Monitoring: keeps HbA1c levels
between 5 and 7 [actually, per the follow-
ing website, normal HbA1c levels are at
or below 5.6%, so the goal for the cure
should be to keep HbA1c levels at or
below 5.6%, while also avoiding all hypo-
glycemic risk, as transpires automatically
in all who have no glucose anomalies]

- - -
http://www.nlm.nih.gov/medlineplus/ency/article/003640.htm
Excerpt: ... An HbA1c of 5.6%
or less is normal. ...
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o Free Diet: does not restrict a patient's
diet [well, seriously, everyone should
have a well-balanced diet that provides
adequate nutrition and which maintains
normal weight, so that's true whether
or not the cure comes about; what the
cure would eliminate is the constant
monitoring of glucose ramifications
which persons with Insulinitis must
participate in, trying to balance food
intake with insulin guesses which place
persons with Insulinitis at an unrelenting
risk for low and high glucose events]

o Free Diet: does not require carb
counting [the caveat, everyone should
avoid excess carbs in order to main-
tain weight and to reduce the risk of
developing metabolic problems, pre-
Cellosis (old name: prediabetes), and
Cellosis (old name: type 2 diabetes),
true unless a way of preventing or
curing those glucose anomalies is
found and it does not entail dietary
restrictions]

o Reasonable Meds [if pharmacological,
an easily managed regime, though
as far as I'm aware, most cures for
Insulinitis do not involve medications
being required; however, the effort
to develop a "smart" insulin, that
may involve a once per week injec-
tion of a "smart" insulin that results
in normal HbA1c levels, if recent
research is successful in bringing
that near-cure about and that
near-cure is able to have normal
HbA1c levels without hypoglycemia]

o Sleep Worry Free: allows patients
to sleep care free [obvious, is refer-
ring to being able to sleep without
having to worry about a severe low
glucose event causing unconscious-
ness or death]

o Fast Recovery (if surgical): if surgical,
less than 72 hours recovery [difficult
to relate to -- for example, surgery
for a broken leg, that takes a long
time to recover from, and I'm unclear
why a short recovery time is part of
the JDCA's "practical cure definition"]

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Pro-Humanist FREELOVER
C.ure I.nsulinitis A.ssociation
http://prohuman.net/cureinsulinitisassociation.htm
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