Fibrous macular traction

[BrianF]

Between July and November last year, I suffered progressive visual
disturbances in the evenings and when turning out the lights at night. In
August, an opthalmologist said there was no physical defect visible in the
eye, even with a slit lamp and he suggested going to a neurologist. My
doctor said that was unnecessary as it was probably just occular migraine
and he sent me for a cerebral CT scan. That was clear so I put up with it
until mid-November when I woke up one day with severely blurred vision in my
left (amblyopic) eye. It is like having a veil over that eye.
To cut a long story short, since then I have visited a hospital neurologist
as well as my regular opthalmologist and a hospital opthalmologist and I
have gone through various blood tests and fluorescein angiography.
The diagnosis has gone from papilloedema to macular oedema with the possible
cause being a parasite such as toxicaris. Top specialists have now
discounted that and are calling it a rare form of fibrous macular traction.
They are suggesting that I may have sarcoidosis - although I do not have any
other symptoms. My chest X-Ray was clear but they are now proposing a CT
scan.
I do not have another hospital appointment until 21 Feb. when they will
decide whether vitrectomy is a possibility. My feeling is that they think it
may detach spontaneously in the meantime and I guess that would be best all
round.
Does anyone here have any ideas?

brianf